One aspect of the old website that Mike and I didn't want to lose was the Guestbook.  Unfortunately, there was no way to transfer that same guestbook to this site so instead I just copied it.  So many times during Keeghan's battle it was the comments from so many kind people here that kept us going and we will be forever grateful to all of you who took time to offer your kind words.

12/02/2009

cheryl
Hi Shannon, Mike and Maxx
Holidays can be so hard sometimes. I know that for sure. Just wanted you to know you are all still very much in my thoughts and I wish for you a peace-filled Christmas and less pain in 2010.
This holiday season, i hope you enjoy happy memories, sunny skies, family and every small blessing. We will never forget your wonderful young man, Keeghan.
hugs
cp

11/13/2009

Jimmy Brannon
just came on your page, very impressed but also sorry of your last post. i understand however, although in my case it seems that writing about my loss helps. I was born and raised in the newspaper business, maybe that is why. I wish you the very best. Thanks for your posts.

Gail Burns
Shannon I have been trying to find you again for a few years now. I came across the article in your news paper as well as this website. I am truly heartbroken to hear about Keeghan...my heart goes out to you, Mike and Mackenzie. I have often wondered what happen to you and your family after you moved to Texas. Last time I believe we were in touch you lived in NC. I hope that you get this message and get in touch. I tried to find you on facebook but do you know how many people have the same name as you...and yes I looked under your maiden name. Take care of yourself!

10/31/2009

Nancy Boriack
Shannon,

I just read your final post. You commented that many think you are a good writer (a club I belong to) but if you were a good writer you'd have Keeghan's story written.

You have written Keeghan's story. From "The Journey" to "Moving Forward" you have written the story of love, hopes held, hopes dashed, family, friends, the nitty gritty of chemo and hospitalizations, the agony of Keeghan's death- the story came through- it comes through loud and clear.

The story is there. You have shared your heart with your readers. That is the mark of a gifted writer. A writer whom readers want to read.

Your readers are not coming to the web site to rejoice that your story is not their story. Your readers flock to the site because your story is compelling. Your readers love you and your family and are sad that Keeghan died. Strangers have written that they have become attached to your family and are sad for the grief, the loss, the pain, the emptiness.

You have suffered, Maxx has suffered, Mike has suffered. Your readers and your friends cannot bring Keeghan back but they can love you and support you in these dark days. There are no expectations for how you act or express yourself. There is genuine care as you walk this dark, dark road.

One of your loving readers,

Nancy

inga
Hey there, just wanted to say hi! Been thinking of you all today.

10/08/2009

Ethan
WOW! Your posts are always heart-touching but that last one....GEEZ! I cried TWICE! That's the first time I've EVER cried at what somebody wrote. I still read your posts, and I hope you the best of luck and HAPPY HOLIDAYS!!!!

10/07/2009

Tasha Lea
Miss Shannon, I just wanted to let you know that I still read your posts here on skeleigh. I agree with you absolutely that it's absolutely sad how adult cancers are so in-your-face while childhood cancer is rarely mentioned. Everyone always asks about my gold (and grey) ribbons...it's so sad when I think that if it was a pink ribbon, no one would ask. People are just stupid sometimes.
I love you.
Mr. Mike and Mackenzie, I love you.

PS-I'll never forget Keeghan. I think about him every day.

09/30/2009

Steph
Thinking of you this morning.

09/22/2009

Tami
Wanted to let you know I continue to pray for all of you. May you come to know peace. . .and a new, very different, joy in life. I know Keeghan would have wanted that for all of you. He had such a beautiful, selfless spirit.

09/04/2009

Tami

Keeghan's goodness and spirit touched so many. He was unforgettable. Yes, he will be with us all forever.

08/31/2009

Hurst's

Thinking of you all today...

Tami

Type, delete, type, delete. . .there are not words to describe the injustice that today represents. I still don't understand. I'm thinking of you all, and sending a big virtual hug. Although that is quite empty, only the hug of your boy would make you complete again. I continue to pray for some peace, and the ability to enjoy the greatness that Maxx is.

Tasha Lea

Miss Shannon, Mr. Mike and Mackenzie,

I love you all so much. I think about all of the Barrys every day. I wish I could be there to give you huge hugs. If there is anything I can do, please let me know. If you want to talk, I'm always here for you. You're all so amazing. I love you all.

08/24/2009

Cindy Clark

You are incredible Shannon! I hung on every word you typed, tears streaming down my face. My heart just breaks for you and your family over and over again. I'm so sorry you have to go through this again and again. I love you cuz! CC

Inga

Hi Shannon,
another heartbreaking post from you again. I can relate to some things you said, though. As you know I went to a burial a few days ago. (Thanks for the kind words, btw) It was sad, yes. But it was a burial after 83 years well lived. It wasn't hard to get back to normal afterwards. It's the way things are supposed to be. You life your life and then you die. Before your kids die. Parents should never have to see their kids die. And I don't say that to appease you or anything. I cannot even really know what that would be like, because I am not a mother yet. But I know it is true.
I am not religious either but I envy you your spirituality. It must be good to feel that you will be together with your 'funny little man' in the end. That phrase made me smile.
All my hugs and support in advance to you, because I will be unable to be online on the 31st of August and I want to send all my thoughts and wishes and support out now, so they'll reach you in time to support you on that unsupportable day.
I am with you and I send youmy all.
Inga

08/23/2009

Laura Hurst

Hey - yeah...we've been thinking about you all a lot this month. I know thinking doesn't help you one bit, but just wanted you to know that there are a ton of folks who will forever think of August and think of Keeghan and the Barry family...with the Keeghan/Barry fam part bringing a smile.

08/23/2009

Jerrie
 
Once again, I cry with you. Your posts remind me of the person you are, my friend, so vocal, so talented in how you tell your story, how you remind me of why I love you so much. I am forever grateful to have you as my friend, Shannon. I'm glad that you came into my life for some reason and that I know you, your family and your children. Always, always, always, there will be a special place in my heart for all of you. I know that one day you will reunite with Keeghan, somehow, someway. I hope that maybe, by some chance, I will see Keeghan, too, whether spiritually or in the next life, whichever we may believe. I'm looking forward to seeing Mike, Maxx, and you soon, maybe even in California, or here, at the lake house. The few times we get to see each other now are so special to me and the next time can't come soon enough.
I send you my virtual hugs.
I love you and miss you, very much. Kisses to you all, Jerrie

08/12/2009

Tami

Glad to hear putting the bed up has helped you feel settled, and also that you are able to enjoy some of those good moments.
We are still on our epic summer journey, hoping to arrive at our "home" soon. After 4 months, and nearly 8,000 miles of traveling we are ready to settle in somewhere.
Call me when you have time. I am still missing Saturday coffee.

08/04/2009

Ethan "Maccy" Henderson

I STILL read your blogs. They're getting better especially with Maxx I think that that was a great idea!

~Ethan~

07/29/2009

inga

hey guys, those pictures are SO wonderful! I needed a good laugh and you gave it to me today! I never tried this method of producing a fart sound. I would rather stick my hand in my armpit or blow on my arm without the straw... I'll have to try Maxx' method, though!
Big hugs to you all!

07/29/2009

Jayme

We are still following along and so glad to read whatever you chose to share. I LOVE the pictures of Maxx. She looks like she was laughing the whole time!

07/27/2009

pam

hey there guys. so glad maxx got to go to brass camp. that is so great. i think is is good that she is going to be a counselor too. i think she will have a lot to give. i am also glad your home feels right after moving keeg's bed in. i don't know how i would feel but i can imagine i would probably feel exactly as you do. i am looking very forward to you getting your jewerly back out as you know i am one of your
biggest fans and that is a huge conversation peice on spreading the word for the fight for cancer and our guy keeg. hope this finds you all hanging in. love and miss you all very much. love the BEE's

07/18/2009

Tasha Lea

Miss Shannon, Mr. Mike, and Mackenzie,

I've said it before and I'm sure I'll say it a lot more...I wish I could be there to give you a big hug. I wish there was something I could say to help. Just know that I will never forget Keeghan and I talk to everybody about him. This last week, I was at church camp and people kept asking me about my "Keeghan bracelet" so I told them a little bit about him. He'll never be forgotten. I love you all and wish I could give you hugs in person.

Love,
Tasha

07/10/2009

Tami

Oh Shannon, I'm sorry. I wish I could give you a big hug. Not that it would take away the pain, but just so you would know that I care. When everyone may think it should be getting easier for you, I can only imagine at times the pain increasing each day. The reality of this "new" life must be such a heavy burden to carry. I will continue to pray for you all, and may Keeghan visit your dreams often. I know you miss him so.
Tami

pam

hey guys. hadnt been on in quite a while. you all are still on my mind everyday. hope things are going more smoothly with the house by now. just want you all to know we love and miss ya and we're thinking about ya. love, pam

07/07/2009

inga

Oh Shannon!
It is good to hear from you. It is good Maxx will go to school soon and settle a bit in your new life. It is good you get to incorporate Keeghan into your daily life.
But this post made me cry again... I am still and forever so sorry...
I wanted to say somethign else though: I love that Keeghan's picture is on the top of this page and thus on every page in this journal. I love that you can't read about your story and his story without looking at him also. And I really love the picture!
Big hugs to you dear Shannon!

07/04/2009

Leigh Ann Erdman

Greetings Barry Family,
Home, what a wonderful word...home. Just a nice peaceful word. Congrats on getting into your home and bringing the warmth of family into it even without the furniture. Keeghan will always be with you even as you have new beginnings. Blessings to you!

07/02/2009

Tami

Just stopped by to see how everything was progressing. I hope the new house is treating you well.

06/30/2009

Tanya Clark

So glad to see you guys are finally getting moved in! Only one more day and you'll have your stuff and the headache of unpacking it all. lol. We miss you!

06/29/2009

Tami

YIPPEE!! I am so happy to hear you are in your house, and now can start settling in. I love the fireplace, it is beautiful. I can't wait to see the house once you get it put together.
So good to hear your boy is walking with you each day. It is something I pray for you often.

06/28/2009

inga

YAY! for finally being at the house! I think you have your priorities just right. Those huge pictures of Keeghan must be a joy to look at.
Good luck for getting all your stuff together and finally making a home for you again. Sunny greetings from Germany!

06/26/2009

Tami

Okay, it is the 26th of June. Please, oh please let you be busy unpacking! I can't wait to see pictures of the new pad.

06/16/2009

Tami

Just checking in. Here's saying a prayer that the house closes on time.

06/09/2009

Cindy & Kevin Clark

Welcome to California! So glad you guys made the trip safe and sound. Very glad to hear you found a house! Sorry you are having to live in the craptastic place (I love that word!). I'm glad to see the site back up - missed reading of your adventures! Soon Shannon, you will be in your home with your family! Keeghan will be everywhere in that house - I know you will make sure of it! I'm sure he is helping push your loan through! Love you & Miss you Cuz! Can't wait to see you guys!
Cin & Kev

Tami

I'm so glad the site is up and working again too! It is my little connection to you guys, I missed you. I will continue to pray for the housing situation. I'm so glad you have a house, and I'm with you when you wonder, "what in the world takes so long in closing a house!?" So here's to quick paper work and moving SOON!

inga

Oh Shannon,
I am so sorry this is taking so long. To be running around and having no fixed place would suck anytime. But it was approved! You WILL get into that house. Let's just hope it'll be soon!
I love to hear from you, your posts always make me smile or cry, mostly both! :)
Hugs, Inga

06/08/2009

Tasha Lea

Hey, you guys.

I'm so glad that the guestbook and website are up and running again!

I just wanted to say that I miss you guys and I love you so much! Good luck with everything is California and life; and I wanted to remember you all that I'm always here, just a text or call away. I wish I could still be 10 seconds away but, I'm not. So I'm here and I love and miss you all so much.

Tasha

06/07/2009

Jayme

I am so happy to see that the site has recovered. I am glad that you found a new house and school for Maxx. I'll be thinking of you as you get settled in CA.

06/06/2009

Laura Hurst

Glad to see you all are at least there...and I hope the house is squared away before you know it. Also looking forward to seeing your jewelry on Etsy again...that part of the plan??

Leigh Ann Erdman

It is good to see you online again. Congrats on the house as you make it your home. I understand the challenges of multiple pets (2 dogs, a cat and 2 horses) and my mom as I get ready to go through the same process as you only I won't be going across country. I am awed by the resilency of the Barry family and am also humbled by how well you make it through whatever comes your way. Continued prayers to you all and best wishes!

Angie Zitto

Shannon and Family,
I am so glad you had a safe journey to CA. And that you were able to find another house, that is great.
I pray that TLF will et you stay longer, or another door will be open until you close on your house. I know all of that can be extremely frustrating, especially with so many animals.
Since moving to FL Bruno has added to our zoo.
Our parakeets are still multiplying, we should have 20 babies again soon. Bruno traded the last 20 for some Cockatiels. My house is NEVER quite. =) So we have about 24 parakeets in Blake's room (poor kid) the cat stays to the upstairs while the dogs are downstairs and the cockatiels are in the living room. CRAZY!!
Enjoy CA. I LOVED living in Monterey, wish we could go back, but it is so expensive.
Good luck with everything. Say hello to your beautiful family for me.

06/05/2009

Tanya Clark

We are all glad that you guys made it there safe. I'll keep the prayers coming that the house and hotel crud goes well!! =O)
Tanya and Family

Lisa G

    Hi--I'm a stranger who just happened across your blog. I read the whole thing yesterday and today and my heart is absolutely broken for Keeghan. What a brave and beautiful boy. I am so deeply, deeply sorry for your loss.

05/16/2009

Tasha Lea

    Hey, you guys!

I wanted to kind of mirror Hannah's entry and add to it. I will miss you guys so much, you are such amazing people! It's going to be weird without Mr. Mike's amazing food and quick wit (I'll try to be good haha!)...Mackenzie's music, books, and in general awesomeness..and it definitely will not be the same without you just being here, Miss Shannon, you're so great. You're so amazing and I love you all. I hope you guys enjoy your trip as much as possible (Ohio is kind of boring.); I'm sure you will since you have Uncle Brad. :)

I will never forget Keeghan, either. He'll always be with each of you, no matter where you go.

I love you all and I hope to talk to you (or at least text you) soon. You guys are in my thoughts and prayers, as always.

Nancy Boriack
 
    Thank you for your continued updates including ones made despite no TLF internet access.
We are holding all of you in our thoughts and prayers as you transition to California. Thanks for reminding us how especially difficult this move is for Maxx. She has such a tender heart! We are thankful for Maxx and for the wonderful daughter that she is and continues to be. What a blessing!

Our daughter, Anna Jane, turned 30 yesterday! We spent the day moving Anna and her husband, Mike, into a 3rd floor (no elevator) apt in Richmond where Mike just accepted a job. I delight in the young woman that Anna Jane has become as I know that you both, Shannon and MIke, delight in Maxx.

Blessings to all the Barrys as you travel and adjust to new surroundings. Although a place where Keeghan has not lived, the memories of your special boy will permeate all aspects of your California life.

With much love,
nlb

05/15/2009

Hannah

    Hey Mr. Mike, Ms. Shannon & Maxx,

I just wanted to let you know how much I will miss you...I love you guys. Ms. Shannon--you are an amazing woman and the best yearbook leader! Mr. Mike--I'll miss all the delicious food at BATS! yummy! and Maxx--I don't think bowling will ever be the same again for me without you and Tasha *does one-fingered high-5 and misses* Man, I'm just not Irish enough, eh?

I love you guys!

I will never forget Keeghan.

Hannah

Tami

    It was great to chat the other day. I will be keeping you all in my prayers. Happy trails!

05/14/2009

The Hursts

    Praying for Max and you two too. Hang in there and I look forward to seeing the new, new house pics...it's just waiting on you to find it. :)

05/13/2009

inga

    Hey there, it's so good to hear from you! I've been checking here almost daily! :) I have you all in my thoughts, of course Maxx as well. I know how hard it can be to start new somewhere as a teenager, new school, new city, new friends. All of this alone is tough enough, I can not imagine how much harder it must be for Maxx right now.
I press my thumbs for all of you and still hope for as smooth a new start as it can possibly be. *hugs*

05/11/2009

Jayme

    Shannon, I hope that the move is smooth & uneventful. Good luck with the move and finding a place in CA. I will be thinking of you.

Tami
 
    Just dropping by to check in on you. I hope this finds you doing okay. Know you are in my thoughts and prayers each day.

05/09/2009

Leigh Ann

    Just wanted you to know that even though I am not signing the guestbook as often, you are always in my thoughts and prayers.

05/07/2009

Tami

    I hope the move is going okay. Did you get good packers? Are you holding up okay? Moving alone is stressful, but leaving that piece of you behind must be so hard. On the lighter side, you will definitely be an interesting site as you cross the country with your own little zoo in tow. I'm praying that things calm down and the drive goes well. Keep us posted.

05/04/2009

Dr. J Weinberg

    Just thought I would check the blog. I think of you often and hope you are doing well. Keeghan touched all of us at MDACC...me especially. Best of luck to the entire Barry family during this next chapter of your lives.
Best,

Jeff

inga

    Oh Shannon, that picture made me cry! They look amazing! Sopping wet and proud. And they should be. I hope Maxx is off for a good start in a new school. Starting new somewhere is always tough and with the housing situation on top of it and the knowledge that the new house is one Keeghan never lived in... I think of you guys a lot. I hope the change of scenery will do all of you good. Because you might leave stupid people behind and hopefully get closer to people that will be good for you. Having a beloved family nearby is always a plus.
I'm glad to hear your race for hope went well and press my thumbs for a smooth move and a good start into what hopefully will be your new home. hugs, Inga

Roni
 
    Awesome job! It was great to hear the Race went well, even if it did rain. Moving is enough to make the most seasoned veterns shake in their boots...let alone trying to remember every special keepsake. Funny how "little" some of those keepsakes meant to us when they were still with us...but after they're gone they are priceless. The puppy and I had it out over Natalia's pink backpack...she left it under her bed and I found Redd knawing on the corner of it...saw red...went balistic...dog will skirt around edge of room to get to Sophia's side now. Those momentos of our children become the bandage that covers the missing piece of us and God forbid if anything happens to them. Sometimes it is not one day at a time but one moment at a time.

Here's a thought...have you ever thought that this move has so many obstacles because, as a fighter, you need something else to focus on besides leaving the last home you had with Keeghan. I know you guys are in need of a lucky break but...sometimes that break is in a weird form...just thought I'd add to your list of things to think about.

My thoughts and prayers are with you...be safe...much love, Roni

04/27/2009

Tami
 

    Just wanted to let you know I am thinking of you and praying for a home for you in CA. I wish I were still there to stop by and help out packing or just give you a big hug. I cannot image how much your heart is hurting.

04/23/2009

Jayme

    I am so sorry to hear about the house. I hope that you find what you are looking for once you get there.

04/18/2009

Tami

    That sucks! I will pray for a home and a smooth move.

04/17/2009

Laura

    Geez!! Hang in there...it'll come. But, I'll hold a grudge against the weirdo who jumped ship too as my show of support!

inga

    Aaaargh! What a load of unnecessary bull****! Why does he offer a house he doesn't want to sell after all? Oh well, do try and stay positive, it's probably better for you. I hope something will turn up before you move, so that you can go straight to the right house. I press my thumbs!

04/15/2009

Cheryl
 
    Welcome back from your trip.
Congrats on your new house! Glad you got just what you were hoping for. Keeghan will be with you always no matter where you may be.
Lucky you moving to beautiful CA! Mather, then Beale, were my first assignments and I lived in Roseville. I loved that the wx is great most of the time and there's tons of stuff to do all year round. For you, being close to your family is certainly bonus. This trip was bittersweet, I am sure, but I am glad to hear it went so well.
Your honesty here has taught us ALL how to be better and kinder.
Thank-you for that.
xo
Cheryl

04/14/2009

Tami

    I LOVE IT!! I'm so glad you found a great house. Yippee. Keeghan will be there, he'll always be with you.

04/12/2009

inga

    hey there,
happy to hear that you've found a house! it sounds like a wonderful space. i wish you good luck for your move and settling in!

04/10/2009

Jayme Hines

    Congratulations on finding a great new home. I hope that move is a smooth one. I agree...you are due for a little good luck.

Leigh Ann Erdman

    Congrats on finding the perfect home. New beginnings are hard anyway but I pray for your family especially now. No matter where you go, you will take Keeghan with you. The latest ski picture, wow...Maxx is a lady and I know you are proud. Blessings to you.

pam

    hey, by the way. once you get settled will you be selling your jewerly again? I want to buy more peices. They are GORGEOUS!!!!

pam
 
    shan, mike and maxx,
sorry its been sooo long since ive wrote. we were busy trying to sell the house, pcs and you know, all you are doing now. we just got settled in at ellsworth. i dont think you should EVER be afraid of offending anyone. you are allowed to feel the way and believe the way you want to believe. it is a free country, and just because everyone does not believe the same things does not mean they should hold it against you. if they do, they are really not your friend anyway. my heart aches for keeghan too--of course differently than yours, but if i lost a child my life would NEVER be the same. it has got to be as if a peice of your heart has been ripped from your chest. im sorry that it never goes away.
i am very happy that you did find a wonderful house in california. i am also glad that you will be closer to your family. hopefully the semi will get all your furniture there in one peice this time hey:) sure do miss you guys. tell mike and maxx i love them and miss them. iam here for ya you know if ya need. hope you all have a good visit from the easter bunny. love, pam

04/09/2009

Cindy Clark
 
    Love the house! This house was meant to be, especially the way it fell into your lap. It will be nice having you closer to the family. Time for us to catch up and stay caught up! Have a safe trip back to DC and we'll see you very soon! Love you Cuz - Cin

04/08/2009

Laura

    Hey - LOVE the house from the front. We need more inside pics. Very happy you got what you wanted.

04/06/2009

Tami

    Just checking in to see how the house hunting is going for all of you. How bittersweet this is for you. Know that I am thinking of you and praying for you.
We've made it to Springfield, IL where we toured Lincoln's Presidential Museum today.
Take care and I'll check back next time we have internet access. :)

03/23/2009

Cheryl

    Greetings and Salutations to you! (said Charlotte to Wilbur in Charlotte's Web)
Glad to hear you are...surviving. That is all you can be expected to do. This is not an easy path--though you eventually begin to expect adn avoid the switchbacks that send you tumbling down to where you just came from. With time, it becomes easier to breath--the crushing weight that sits on your chest 24/7 becomes less--or is it you become stronger? I don't know. The missing never stops. The loving never stops. Grief may subside but it never fully departs.
I admire you for the strength journaling here must take but please don't think we judge you, we just try our pitiful best to help with words, thoughts and prayers. No-one has ever made YOUR journey before (because Keeghan was YOUR son, not theirs) and only you can find your balance and meaning in this new chapter. What we do with today, including the way we choose to grieve, becomes the foundation on which we stand tomorrow. Your words have penetrated someone's heart and made them love better, live better.
We speak of Keeghan often and believe he is well and happy and sees and hears all who loved him--but espcially all of you, his dear family. Still praying for all of you. Peace, comfort, wisdom and strength to you all.
xo
cp

inga

    hey shannon.
I am happy to hear that you made it through birthday week.
Maxx really! looks like she knows what she's doing! Isn't it too warm on California to go snowboarding, though?
I made a reeeaaally small donation to your walk, but I'd rather be there and walk. All I could find in Germany as an equvalent was actually 'running against cancer' which is running an actual marathon. Sadly, I am not fit enough for that.
I hope you will reach your money goal and will have a good walk. I'm there in thoughts.
Inga

03/17/2009

Tami
 
    Just stopping by. I was looking for pictures of the birthday cake Maxx decorated.

03/14/2009

A Friend

    I am still praying for you. Your words do reach miles away & I am still reading.

03/11/2009

aunt lynda
 
    Happy 15th birthday to Maxx!!

I hope today is a good one for all of you. Sarah and I have been thinking of y'all all week. We are always a phone call, email, text message or two day drive away (I always want to do it in one but 22 hours is more than my old body allows!)

I have nothing profound to offer today just love, hugs, positive energy.

Namaste
LyndaJayneBarry

03/08/2009

Tami

    Just checking in.

Leigh Ann Erdman
 
    Greetings Barry Family,
First Happy Birthday Maxx! I only remember you as a young girl at Pope but now you are a young woman. I only know you now from the posts of your mom and the inquiries of your dad when I happen to run into him while TDY, which is very infrequent. You are a gifted artist and a compassionate soul. Have a happy, happy day as I continue to keep you and your family in my prayers.

03/07/2009

Brad, Susan, Tayler, Nolan, Kruse Kelley

    Our hearts are with you...know that we love all of you.

Tami
 
    Happy Birthday Keeghan. Thinking of you all this week.

03/06/2009

Nancy Boriack
 
   We are thinking of you all this week as you celebrate the gift of Keeghan's life and the gift of Maxx turning 15 years old! What a milestone!

Blessings to all of you during this very special Barry family time.

With much love,
nlb

Roni
 
    Hi Shannon, I got the jewelry today...amazing work. Thank you so very much for the earings. I put them on immediately. Never think a letter is imposing. We belong to an exclusive club that few others will, thank god, never know. So it is always wonderful to hear from you. I am glad you're feeling better or should I say not so low. The mood swings suck and I still have Talia with me but to know she will be leaving me soon...you know. I refuse to dishonor her stregth and absolute joy of life by being glum...well not for long anyway. Please tell Maxx Happy Birthday from us here in Clovis. Natalia and Sophia wished Keeghan Happy B-Day in their prayers last night.

Much Love,
Roni

03/05/2009

Tami

    Shannon, I just read through your guestbook, and Lorri hit the nail on the head. As I've been reading, I haven't posted because I couldn't find those words. Whenever I would type it didn't come out right and I worried I would offend and cause more pain. Lorri summed it up beautifully. Please remember you are not forgotten.

Tami

    Congratulations on the book. That is exciting. I can't wait to read it.

03/04/2009

Jerrie
 
    Hello my friends! I am reading this as I'm heading down the road to Daytona Beach. (No, I'm not driving at the moment). I just want to let you know, I check this site every day to see if there is some new news. I get excited when I see there is a new post. I guess it is my way of keeping in touch when I can't talk to you on the phone every day. Know, that I love you, ALL, and I miss you very much.
Love XOXOXO,

Jerrie

Tasha
 
    Hey...I love you.

And just so you know, Keeghan's Story is the homepage on all of my family's computers.

Again, I love you. Happy birthday, Keeghan.

Ethan Henderson

    I still read the pages, though original ones more. Wish you the best of luck with anything and everything.
~Ethan~

03/03/2009

Lorri

    Shannon, It was nice to meet you, finally.

So much of what you've written is familiar to me as I've traveled along the path without my daughter Rebecca. She has been gone for 4 years now and still there are times when I am just blindsided by the fact that she is gone. It's the times when we are together as a family, doing something fun that I remember that we are incomplete. She should be HERE with ME. She should be enjoying Disney World, playing in the snow, opening Christmas presents, just having popcorn with her siblings.

Death sucks.

I remember moving for the first time after Rebecca died. Leaving the only home she'd ever known, leaving behind the people that were a part of her daily life. Her clothes and toys had not been packed away until that time, and we made sure that the box was labeled in such a way that we'd know it before opening it. In our house now, some of her clothes are hanging in a closet and there is a box in there labeled "Rebecca - to grow in to." I can't let them go. Even though it hurts to see them and grieve over what should have been, I need to keep them.

Sigh. Did I mention that death sucks?

I think people want you to have some measure of healing, and so they push their faith on to you. Faith brings so many of us comfort and your friends want you to be comforted. They want you to believe what they believe so that you can have the same kind of hope that they have. But you have to find your own way. I pray that you will find comfort and hope and the strength to get up each day and not fall over. I considered it a victory in that first year if I could get up and get dressed and remain upright.

Feel free to email or call me if you need to talk or cry or scream. I'll listen or cry or scream with you.

Lorri

03/03/2009

Roni
 
    Yes, keep writing. There are times when I feel like I can only feel better after I have written out my feelings. We get in such a habit of posting messages that it becomes our shout to the world that we still exhist. I have gained so much from your writing...and hey, if you can help one person and that person can help another one doesn't that make those few posts worth the effort. A huge thank you for the super sibs site. Pia got her first packet the other day and is making quick work of the emotion magnets. As to faith and offending anyone...hey you know what you feel in your own heart no one can push you to something that is not right for you. It took me years of traveling the world and meeting all different types of people before I found my faith again. So thank you once again for your insight...Roni

02/28/2009

inga

    Hey Shannon!
I still read this journal and it made me so hapy to hear from you today. It is a complicated matter: why does one write online journals? It will always be a possibility to get comments you didn't want or not get any comments at all, which can be frustrating as well.
I know that I didn't come here just for Keeghan's story, I come here for yours as well.
It's so easy to say: you should write for yourself, not for others. And: you shouldn't feel obliged to write and update.
Sometimes journals make us feel like we have to. Just do what helps you best to deal with life like it is like now.
For me, knowing that I can reach you through different means (if you decide not to update here anymore) is helpful. I don't want to get out of touch. I know the possibility that I will say something that will truly help you is small, but it still feels good to hear from you and be able to comment!
I send you all my best wishes and I am thinking of you and your family.
Inga

02/25/2009

A Reader

    Shannon - I read to look for hints of healing. I want so badly for all of you to smile, truly smile, again one day. Your loss is beyond my understanding, but the hope that you will find some joy in a day, although never quite perfect, is what I will read for now. I care about all of you and while I can't relate to the pain I read to learn and I hope, always.

A Couple of Eardrums

    Generally, it seems that it is difficult to find that you can say nothing, though our responses to certain circumstances and situations may not necessarily incorporate words [per se]. No doubt our reactions predominantly are in a state something like percolation; issuing out raw and inexpressible, only slowly being filtered until some quick word or phrase or paragraph can be made. It makes a lot of sense that something so foreign and infinite as loss can't be expressed fully, naturally and sensibly all of the time; in fact breaking out of the usual modes might be the only real way to say anything at all. I have always found your writing to be articulate, expressive and filled with some intuitive sense of what it is to be human and what it is to feel separate from that; no less so when it is in "bullet form". My point, I suppose, and my reason for writing, is to say that you don't necessarily need one [a reason, that is]. Write to write. I completely understand the compulsion to do so, and am probably taking some liberties by acting on that compulsion right now. Sometimes you just need to write to be able to hear yourself, or hear something, because occasionally your surrounds just seem too silent. Lastly, naturally, at least some therapeutic value lies in knowing that someone, in some sphere, somewhere, is listening, no?

02/21/2009

A Friend

    Shannon, You are awesome. (In the true sense of the word.) There are no words to explain how your strength is powerful, beautiful, and inspiring. I know that you may not have set out to be all of these things but you are! I continue to think of you & pray for you & your family to find strength. My heart & thoughts are with you.

01/23/2009

Dianne

    Hi Shannon,

I saw your comment on David Welch's page and went to your link. I sat and read your entire website and cried. Our 23 year old daughter was diagnosed with brain cancer (oligoastrocytoma grade 2) almost a year ago. She's had 2 surgeries with the most recent one being 6 weeks ago. Of course, none of us know what the future holds. I can only hope that if we end up in a battle, she fights as hard and as brave as Keeghan and David did! I love your raw, honest words from a mother's perspective!

Thinking of you and your family!
Dianne

inga

    hey guys, it's good to get some updates again! I've been wondering about you. You are in my thoughts and wishes and I hope that moving will be a good step for all of you guys. Will Maxx be going to a regular school again? Big hugs to you guys and all my love! inga

01/22/2009


Tami

    Yes, the housing market is quite the rollercoaster of emotions right now. We've been searching for our next stop, and it is nerve racking to say the least. Good luck in the search. :) Tami

01/08/2009

Leigh Ann Erdman
 
    As always, I pray for your family and think about you often. I hope you don't mind if I brag here about the gorgeous beadwork bracelet that I got from your web site. I hope anyone who reads this takes the time to glance at your beautiful artful expressions. I got one for myself and it was so beautiful I gave it to my mom as a gift. It is wonderful quality and it is lovingly made. I encourage everyone reading this to look at Shannon's work and remember that each piece gets us a little closer to finding a cure.

01/05/2009

Tasha

    All of you are always in my prayers; and as always, I love you and I'm here if you need me.

12/30/2008

Kellie DeMaio

    Hi Shannon, Mike, and Maxx,

I have been thinking so much about you and continue praying for all of you. Last week Michael received Chemo in the Pod where we met. Although Michael quickly corrected me that we actually met in the art room. The pod came later. I think its the first time we had been in that particular pod since we last saw you and it brought back many memories. We talked for quite a while about how much we miss Keeghan and seeing all of you. Knowing we would see you at the hospital always made going a little more bearable. We also laughed at the jokes, comments, movies and games that Michael and Keeghan used to play. They were like two old friends that had known each other forever. It's funny how different things are in that situation. It was nice.

I hadn't been on the website in a while and just spent a long time catching up. I'm glad to hear that you are getting the opportunity to move closer to family. I know that's what you want. I just hope we can get together before you do. If you need anything please contact me. I would love to see you, take you to lunch, march on Washington, anything you want - let me know.

My thoughts and prayer continue to be with all of you.

All my love,

Kellie

12/29/2008

Tami

    Just wanted you to know you all continue to be in my thoughts and prayers daily.

12/28/2008

Roni Curtis-Valle
 
    I just needed to say thank you. I found your blog while googling kids with cancer and it has allowed me not to feel so alone. My oldest daughter Natalia was diagnosed with a stage 3 inoperable anaplastic astrocytoma on 4/10/08. We too are a family unit of 4. My husband Edgar and daughters Natalia(6) and Sophia(4). We are from Fresno,CA but are being treated at UCSF. We currently make the 3 1/2 every two weeks for her chemo and thank god have wonderful drs we love there. When cancer hits all you want to do is scream at the world to %#%^#^ off, but you can't and in all honesty that would be giving in to the beast. I have read many parents blogs trying to help myself wrap my mind around all these emotions that crowd my thoughts. Most just praise god and ask for help, well I praise God to but I think the last thing parents go through is one long church sermon on how their children are choosen ones and that this is his plan. It was insightful and wonderful to read Keeghan's story and your journey through it all. It has helped give me strength to continue this battle with my daugther. Thank you once again, your words truely touched me.

12/25/2008

Jayme

    I am thinking of your family today (and each day).

pam
 
    know that i am thinking of you everyday and you are all in my hearts during this Holiday season. i love you all so very much.--pam

12/21/2008

?
 
    You are a brave soilder!

12/13/2008

Katy
 
    Dear Shannon,
We have not forgotten your saddness and pain; we continue to pray for your family DAILY. It's a long journey, the one you're on. You do what you have to do; what's best for you, Maxx, and Mike. May you find peace, somewhere along the road.
Love, The Wessels

12/07/2008

Leigh Ann Erdman
 
    Shannon, Mike and Maxx,

I continually pray for your hurt and I hope someday you will forgive everyone...me included for things said in true compassion but not fully understanding the impact it might have on you. God is still good and God is still on the throne even though he doesn't always make sense. It is good that you will be near family, to love each other and to get through this difficult time. People don't forget, but it is not the same. He was your son and your life and no one will ever understand like a mother understands the pain that you carry every single day. I read your last post and just cried. I am so sorry. Your book will have all that emotion and love. Pour everything into it. Let it be your dedication to a great young man who you will always cherish. Show the world the Keeghan that you shared with us. Thank you for letting us into your intimate thoughts during the past several years.

inga

    dear shannon, I am happy for your decision to move nearer to your family and that you're finding out that you're doing okay as far as relationships go.
Please know that you and Keeghan and your whole family will never be forgotten. I'm glad that we'll keep in touch. All my love! Inga

sue Gregory
 
    I am very thankful to have met you as you were my connection to kianna w. at least to me it felt that way. Ive learned so much by reading thru these blogs and the importance of family. Thank you for sharing your life with all of us. Best of wishes to you and your family when you move. P.S. I saw maxx's artwork she painted in the pre-teen room at the youth center. Let her know that it was beautiful. She is definitly a talented artist.

12/05/2008

Patty
 
    Shannon-- congratulations on your decision to move home to California to be closer to family. I don't know what I would have done without my parents and siblings here in town near me when I lost my boys. The holiday season sucks, but you and your family are always in my thoughts and prayers. You have my e-mail-- I hope we can keep in touch. Patty

Laura Hurst
 
    Sorry. I sent a card. I hope you can forgive me one day...I clearly did not understand the impact it'd have on you. Very sorry. I wish you the best with the book and the fortitude to make it through the writing of it.

12/02/2008

pam
 
    hey guys. just checking in. was checking out the playlist. i am old or out of the loop, probably out of the loop! a lot of songs i dont recognize and some i do. ill have to check them all out though. i bet they are great. we finally got orders after being here for 12 years. we are going to s.d. I'm glad to be close to my mom and dad. the jewerly you have on your website is gorgeous. so hard to pick from and it is more beautiful in person. can't wait till you put more up. love and miss you sooo much and am really sending good vibes and wishes to you this time of year. hang in and know i think of you all every day. love you, pam

11/29/2008

Laura

    Hey Mrs. Barry--

Thanks for putting up that playlist from Keeghans Celebration... that was definatly a keeghan playlist =]

I'm praying for you guys always... Keep your head up :/

11/26/2008

Sarah DeArmond
 
    Aunt Shannon, thanks so much for putting the playlist on the website. i have been wanting it for a while now. THANKS!!!!!!!

11/24/2008

Tasha

    Miss Shannon,

Oh my gosh. Did my mom tell you about that fry? She is so goofy... Anyway. Thanks for sharing Keeghan's playlist. I've been wanting to ask for it, but keep forgetting. You know me. =]

I love you so much!!!!!!!

I love you guys, too, Mr Mike and Maxx!!!

11/20/2008

Jerrie and Mason Weatherly

    WOW! That list is great! And I do remember hearing some of those songs at the Celebration. I pulled up "Mr. Jaws" on YouTube and Mason and I got a good laugh from something we hadn't heard in a long time. Mike, I've seen the Apache Dance (actually taught it to my neices and nephew), but still haven't seen Cobrastyle. Maybe you can show that to us "real soon".
Can't wait to see you guys,

Love you all - Jerrie and Mason

Nancy Boriack
 
    Shannon,

Many thanks for sharing the Celebration Playlist. I know that it took a lot of time and I appreciate having the names of Keeghan's favorite songs.

We continue to think of you all and pray for you multiple times daily.

Blessings to all the Barrys,
Nancy

11/15/2008

Leigh Ann Erdman
 
    Shannon, I am reading your posts and feel helpless as I read your pain. I also read Kathleen Kennedy Townsend's article in Reader's Digest and when I read the letter I immediately thought of you, Mike and Maxx. I know the words in that letter conveyed what many people wanted to share with you but we were ill-equipped or not eloquent enough to come across in that manner. As much as we try to show the things that we really wanted to share, words never seem to come at the right time. Hopefully sometime in the future you will know in your heart that everyone's written words and thoughts were never designed to hurt an already raw spot but we wanted to share the burden of your pain and wanted so much to let you know how much we hurt for you and were there for your family even if it was just for prayer.

11/12/2008

Patty McGinley
 
    I had some catching up to do on your postings, and just finished. I think the pictures of your jewlery looks nice. I enjoy reading your postings, and feel the pain ( not yours, mine) when I read it. I particularly like the comments by Joe Kennedy to his friend. Hang in there! Love, Patty

11/11/2008

Denise

    Hi,
First off, you are an amazing writer! I laughed; I cried; I definitely cried! Your words are very powerful. I have a daughter who is battling anaplastic astrocytoma; so much of your stories ring true with me. Your jewelry is amazing. Do you do custom orders, ie, make them 7 inches long instead of 8? I would love that.
Anyway, I feel your pain, as much as anyone else could; and fear it more than most.

11/15/2008

A friend

    Have you ever considered writing a book? Your words/thoughts/ etc are so powerful. I am sure that many have found a type of therapy in your blog as I have.

You have an amazing gift & a brilliant story to tell.

10/29/2008

Laura Robinson
 
    Max I think about you alot and hope we can get together at one of the SL Weekends or Brass. Hope you are going to the Christmas party.
Laura

Tami
 
    I haven't posted in quite some, but wanted you to know that I continue to keep your family in prayer. Shannon in your post you said everyone wants to "fix" you. You're right, we all wish we could just say the perfect thing, and your heart would be healed. Unfortunately, there is nothing we can do or say that will make your pain go away. Bringing Keeghan back is the only thing that would take this pain from you, and none of us can do that. What we can do is just be here for you, share God's love and offer our friendship. . .so inadequate in comparison to the pain you are having to go through. But alas, it is the best we have to offer. You are so right though, we (your friends) have to realize this is going to be an ugly, difficult time. There is no quick fix, and I'm so sorry if I've made you feel like you needed to "be better". Know that I'm here, not just to see how great you are doing, but when you need someone to talk to when your heart is breaking. I'm just so sorry that you have to travel this road.
--Tami

10/28/2008

Sarah DeArmond
 
    Oh yeah Aunt Shannon i wanted to send you this poem but my email wont let me so i'll just post it. it is called grief


Grief is the color of a tear drop
It sounds like a bagpipes song
It taste like salty tears
and smells like a pathetic drizzle
Grief looks like my family crying
It makes me feel alone

I wrote this for a school project. i had to write ten poems and all but two of them i wrote about Keeghan. One of those two a wrote about dragons (for Keeghan). I hope you liked it. love Sarah DeArmond

inga

    Hey there,
I love your jewelery and it's nice that you can find some peace by making it.
As always I am sending my love to you all.
Big hugs!

Sarah DeArmond
 
    hey i just wanted to say that the tears still come for me to Aunt Shannon. it seems that anything can bring them up and almost nothing can bring them down. i can't say i know how you feel because i hate it when people say that to me because they don't. but i DO understand how you feel. i love you and Uncle Mike and Maxx.

10/21/2008

Robin Speer
 
    Shannon, Why would you not be in constant pain? You just lost a child. Don't let anyone tell you how you should grieve or how long you should grieve, it's personal and different for all of us. Please know you are still in my prayers. I'm praying that as time goes on the happy memories and happy times will increase and the tears will slowly decrease, in time.
There is a song that I used to listen to right after 911, the chorus stated "only God and Time can heal a broken heart" I believe this to be true, at least it was for me. Still praying for your family. By the way, I'm right with you on the pediatric cancer awareness, I was just talking to the owner of the gym where my daughter competes about doing a big pediatric cancer awareness fundraiser and they didn't even know that pediatric cancer awareness month was last month! I would think anyone with kids would fight the very hardest for awareness on this as this particular cancer is all of our worst nightmare!!!

10/20/2008

Pedro Burton-Taylor
 
    My heart and prayers goes out to you and your family. I had to resist myself from shedding some tears after seeing some of the pics and reading the personal stories. The statistics are great. The son of one my closest freinds (who also was stationed with us at Minot) passed away from Lukemia two years ago.

Patty Mcginley
 
    Hi Shannon,
I keep reading your entries, and you are making a good point with your awareness peice. The statistics you quoted are hard to swallow, but I don't doubt the validity. People who haven't had your pain, don't really understand it. Even loosing both of my sons, I understand my pain, but not even yours. Write what you feel, and the people who want to continue reading, will. Maxx is a pretty awesome kid, and I am sure she makes you and Mike smile!!! I LOVE the picture from American Idol!!! Thanks for putting it in there. Take care, Patty

10/19/2008

Tasha
 
    What to say, what to say...

There's not too much to say but that I love you all. As usual, I was reading some old posts and I want to say that Keeghan had and still has such an impression for good on my life.

As always, I'm here. A text message or 30-second walk away. I love you!!!

10/15/2008

Laura

    I fully agree with first of all- everything you post Mrs. Barry, but asp yesterdays post... it has been the year for Cancer kids passing away :( it needs to stop. Even though its horrible that so many have passed away, its also good- not easy, as weird as that sounds, i mean, im not going to say its easy, definatly not, because its been hard for me and i have no idea what its like to lose someone that close, but they are in a much better place, a place were cancer is no more :) a place where they can finally say, "Hey, guess what, I beat cancer" and laugh in its face. and im sure they are ALL beating Jesus at guitar hero haha. I miss you guys so much, ive been praying for you, remeber... Keeghans not gone, he's just got the superpower of invisiblity- he's always watching out for you, for all of us. I love you guys.

- Laura

P.S. I feel maxx deprived =/ may i steal her/be stolen by her sometime? I miss you all...

P.S. I hope that didnt come out preachy... cause i didnt want it too... =/

Beth Ann Spoon
 
    Shannon, Mike and Maxx

Last night I was digging through my jewelry box and as you can imagine it is quite large. While digging around, I foung the braclet that Keegan gave to me a number of years ago and I put it on and wore it all day today. I had not really realized how much it meant to me and how many places that it has traveled with me as well. I have taken that braclet with me on deployment and when I have PCS'd. It meant a great deal to me when he was kind enough to give it to me and even today I cherish it. I often think about you and Mike, Maxx and Keegan and I just wanted you to know that your are in my thoughts and that even though I am not great at keeping in touch. Please know that you are never very far away. Keegan was a very special little man who had the great ability of making those around him feel important. He did that for me and I am humbled by his memory.

If you ever need anything please do not hesitate to call. If it is in my power to get to you, I will.

Big Hugs

Spoon

Diane Bishop
 
    Thank you, thank you, thank you for sharing the info re: PAC2, ACS, etc. A change will come when we increase AWARENESS of childhood cancer, how little has been done (hello ACS) and what can/needs to be done.

You and your family remain in my thoughts and prayers.

10/14/2008

Andy Nelson
 
    Shannon, Mike, and Maxx,

Looks like I donated to the right organization. I made my annual CFC donation to the Pediatric Brain Tumor Foundation. I just wish I could have made it in Keeghan's name. Anyway, As soon Tyler and I scrape together some more cash, we will be making a donation to Keeghan's fund. Thank you for posting the fundraising information. I hope it opens up some eyes.

10/08/2008

Laura Gorney
 
    Oh dear. Shannon, I stumbled across you on the PAC2 site. We're both on the mid-atlantic group. I am sitting here, sobbing, after reading your posts from the time Keeghan passed until today. We lost our son 6 months ago. I feel your agony. I hope we can stay in touch. Love & blessings, Laura

Laney

    Hello,
I am so saddened to hear of Keeghan.
My prayers are with each of you.
Thank you having shared him with us. I am humbled by the strength of you all, but most of all Keeghan himself.
Sincerely,
Laney

Natalie
 
    Your story about Keeghan's birth made me cry - not because it was so sad, but because it was so beautiful! Maybe you can write a book about your family and Keeghan's special place in it? <3

The world should know about this amazing boy and the amazing people in his short but purposeful life.

10/05/2008

Renee Garcia
 
    I definitely think he can hear your voice now! He's watching over you constantly, and he is telling you that it's ok to breathe. One day you'll be back together, right where you belong! :)

inga

    Shannon, I am grateful that we still get to know your feelings, even if it means you also have to share them with indifferent/stupid people. Never let anyone get you down and keep you from doing what you want to do.
I agree that Keeghan will never be a P.S. to us. Your story touched me and made me rethink some of my priorities. Your amazing son touched so many and taught us about life, about strength and love.
I send you guys my love, keep on being there for each other. Keep on talking with each other. And if you have the strenght to also keep talking to all of us, you know we'll be honoured.
Love, Inga

James and Laura Hurst

    Shannon - We are glad you are going to keep writing. If it does anything to help you at all...then it shouldn't be denied you. Also, keep in mind for those of us out here reading your writing, it in it's own way, keeps Keeghan's influence on this world alive and well. I know that every time I read a new post I learn a little something new about Keeghan, a little more about his strength, a little more about his intelligence, a little more about the love he had to give, a little more about is humor. I take less for granted than I used too. I give more freely of my own love than I used too. I talk to my God more than I used too. And, it is because of what you have shared and the life Keeghan lived. I find you all amazingly strong, amazingly focused on what matters, and amazingly connected, even amidst your hurt, and I sincerely look forward to the days ahead where there will be more smiling pictures of you all to post.

Renee Garcia
 
    Shannon,
I'm so sorry you're hurting. Being part of this stupid cancer world and having so many friends lose their own children, I can tell you the pain does not go away any time soon... it seems like you finally learn to deal, learn to cope, find your new normal, and then a birthday hits or the one year mark hits and you're right back to where you started.
I am not writing this to make you sadder or to make you think it will NEVER be different than it is now, I just am saying that it's 100% ok and expected for you to be sad, to be mad, to be hurting beyond anything anyone will ever understand unless they've been through it. NO ONE has the right to tell you that it's time to move on. NO ONE can tell you that you need to get over it. Keeghan is your son. You will NEVER get over it. Eventually you will find your smile again, eventually there will be more good days than bad. In time, you will be able to focus on all the thousands of happy memories with Keeghan and hopefully the horror of those memories when he was SO sick will fade away. They will never be gone completely, I know.

I'm glad you're continuing to write here, despite others. Keeghan will never be a P.S. to us here. We talk about him often and my kids have decided that he must be our Keeghan's guardian angel now, since you know, they both have totally awesome names! :) I know he's busy being your guardian angel too, so hopefully he can squeeze in some time for my little guy as well.

Keep on keeping on. Cry as hard and as long as you need to, there's no time limit to grief. Just know there are a lot of us here who love you all and we are here to listen to whatever you have to say.

Renee and the Special Ks
Kassidy, Kameron, Kennedy & Keeghan

10/04/2008

Jeff (Piano Man) Persch
 
    I need to first say that I am sorry that I have not written until now. It is only for lack of not knowing what to say. We are all sorry for your loss. I am mostly sorry that I did not have a chance to meet the boy that brought you three so much joy in such trying times.

I would feel honored if you called me so I could make you laugh, or if you wanna tell me stories so you can cry. I am even available right now......

Jeff

10/03/2008

Leigh Ann
 
    It is so good to see of picture with Maxx laughing. I pray that someday you will be able to laugh and play and not feel bad that Keeghan didn't get to do it with you. I am sure he is up in heaven looking lovingly down on his "awesome" family and laughing as you enjoy things together.

10/02/2008

cheryl
 
    Hi Barry Family
I hope CO gave you rest and respite. I have been thinking of you all a lot, especially as we witness the changing of the seasons and ponder all the changes that life brings. Hope you are well.
Praying for healing peace.
cp

10/01/2008

Tami
 
    Barry Family,

Just wanted you all to know you remain in my thoughts and prayers each day.

09/30/2008

Dr Nick Coppola
 
    Mike - I am so sorry and grieve for your loss. No parent should ever have to go through this. I know words cannot assuage your sorry now, and even words of scripture may fall on disheartened ears. But your son was here for a reason. You may never really know of all the lives that he transformed through the people that he touched - but - he did make a difference – and for that you have a lot to be proud and thankful for.

Blessing my friend!

09/26/2008

Tanya Clark
 
    Just wanted to let you know we are thinking about you guys.
Tanya

09/24/2008

Lynda
 
    Hi Guys
it was really good to hear from Mike last evening and to know y'all are doing okay. I remember that spot you are staying at from your wedding as being really beautiful. a perfect place to get some perspective and some space. enjoy (meaning try to find the joyful moments amongst the "breakdown momnets") this time together. I am thinking of all three of you daily. and I am always a phone call away. and a drive away if you need me for anything at all!
Shannon, I know this website is not serving your needs right now but I wanted to post anyway and let you know my dear sister in law that I am here if you need me for anything.
Maxx I know Sarah has been texting some, we both are thinking of you a lot and hope things are going okay. I know you are in love with colorado now that you have been there (your dad shared that bit of news) I remember it as being a great place.
love, huge tummy breath deep hugs and still lots of positive energy into the universe. I know Keeghan is there with y'all enjoying the view from above and around you and that he is giving lots of hugs whenever needed.
Lynda

09/23/2008

Laura

    Love you guys. I don't know what to say other than that. I'm praying for you guys, and i love you so much... have a safe trip, have fun, remeber, keeghans still with ya! :) love you!
- Laura

09/21/2008

Tasha
 
    It surprises me how suddenly the tears can come. Today, I was watching the "Keeghan movie" with my mom and Angie Zitto, and the tears came again. Before that, I was writing in a journal about Keeghan and the tears were very close to overflowing. Even though I'm always texting you guys and am almost always with you, I just feel like I need to write in the guestbook. Thank you for sharing your journey with me and for letting me be with you guys as much as I am. You all are so amazing! Mackenzie, your strength honestly astounds me. I'm so glad that we're friends! Miss Shannon, I love talking to you and I sincerely hope I haven't said or done anything stupid. Mr. Mike, even though I tease you all the time, I really do love you; thanks for being there for me when I should be there for you. I love you all!!!

I was reading older blog entries today and was trying to think of a story to share about Keeghan. Then I realized that most of my times with him were spent with you too, so you know all the stories already. The only story I can recall that you don’t already know of is one bowling night. Keeghan went to the bathroom was gone for maybe 3 minutes but Maxx was starting to worry a little and said, "maybe I should ask someone to go in after him..." Keeghan, of course, came back and was fine. When Maxx got up to bowl, Keeghan told me, "I half-expected her to send someone in after me!" Even though I only knew Keeghan for about a year, I almost felt like he was my brother too. He was the sweetest boy that I have ever ever met.

Enjoy Colorado, and always be expecting a text from your friendly neighborhood Tasha. Again…I love you! =]

09/18/2008

Kellie DeMaio
 
    Hi Mike, Shannon and Maxx,

I just wanted to say Hi and to let you know I am thinking of all of you. I hope you have a fabulous trip to Colorado, and it's everything you want it to be.

All my love,
Kellie

Jim Nold
 
    I just heard and am very sad for your loss. May good grant you comfort and peace to move on.

Isaiah 57:1 The righteous perish, and no one ponders it in his heart; devout men are taken away, and no one understands that the righteous are taken away to be spared from evil.

09/17/2008

Louise Chudley (Rick's sister)
 
    Mike, Shannon, and Maxx

Truly my deepest sympathies and prayers of peace and comfort for each of you. I am sorry for your loss.

I should introduce myself since we have not met and knowing only parts of each others lives - only that which came up in conversation. I am Rick's younger sister.

Rick sent us the link to Keegan's website a couple of weeks ago and I have spent many quiet moments reading about a very brave and beautiful boy. Being a rescuer of animals myself, a horse loving nut, and a mother of an up and coming biologist/veterinarian;reading about him was all very numbing and close to my heart. I admit that I have only read a small portion of the whole. I start to cry out of control and so I stop. I know that this is not an option for you.... how do you stop memories? A gift of strength I wish I could send.

And I need to say that I regret that all I want to say, has taken so long to send to you. I always feel lost for words because there truly are no words for this moment in your lives.

I do however have a saying from a card that a friend gave to me a few years ago. It took me till now to find it. The words brought me comfort.

"We can't know why some things happen...but we can know that love and beautiful memories outlast the pain of grief. And we can know that there's a place inside the heart where love lives always... and where nothing beautiful can ever be forgotten."

I hope that I have not opened wounds that were healing....

From my family our deepest sympathies and our hopes for peace to swiftly find each of you.

Louise, Steve, and Sarah

09/16/2008

Susie Osborn
 
   Shannon and family,
Through our PCS to Japan, you were all on my mind. I have to admit I cried and cried when reading the blogs unaware that Keeghan had left while we were traveling. I also smiled reading about how a family can be such an inspiration for the rest of us. You have touched our lives forever and Keeghan will always be in our hearts.
God Bless all of you.
Susie and family

09/14/2008

patty
 
    Good for you Shannon!!!Take care, Patty

09/13/2008

pam
 
    hello guys. just checking in. shannon, i would love for you sto start making jewelery again as i wrote you before i gave many of my peices away that you had made for friends of mine to wear in keeghan's fight. i would love to get more as each peice is so unique. just like you guys. tell maxx and mike i said hi and i love and miss you all. gonna go check out the new pics now. see ya, pam

Laurie Scott
 
    Shannon,
Your 9/12 entry sounds like a healthy way for you to work through your grief and to LIVE joyously one day at a time. You go girl! We're all cheering for your whole family. Don't forget to let the gals in BAHE see that jewelry. Heard you make some beautiful things (of course you do-you made Keeghan & Maxx).

Praying and cheering for you,
Laurie

Penny (tru2myart)

    I completely understand the need for you to have some private time to write, think and reflect.

I'll be here when you come back and my family and I are still praying for you and yours.

With love as always,

Penny

:hugs you tight:

09/11/2008

Robin Speer
 
    I know there is really nothing anyone can say that will bring you comfort. Just know that those who were with you and praying for you during Keeghan's illness are still with you and praying for you now!
Robin Speer

Patty McGinley
 
    Shannon-- I missed your writings for the last few days. Not only will this be therapeutic to write-- it helps us all to read it as well!!! This certainly does suck. I know that "guilt" feeling!! It will do you good to go to the gym. Grief can cause you be become physically ill. I found that out the hard way. Exercise will do wonders for you. Teaching 9th grade to Maxx will also help, and doing-- those beads??? That will do you good too!!! You , Mike, and Maxx are doing what you can-- going to the bereavement counselor too--awesome!!! Its gonna hurt, and some days will be worse then others. My second year was worst then my first, but you ALL will get through it together!! I LOVED that Celtic picture!! Keep on keeping on my friend. Love and prayers, Patty

Pamela Browning
 
    Shannon,

Everytime I decide to write in this guestbook, I sit and stare at this box and I feel inadequate. Knowing I can't feel what you feel, knowing I don't have the words to help, knowing that there is nothing I can say "to make you feel better." It's not that I think I should have those things, it's just that I want to. You and Mike and Maxx are remarkable. In my heart I feel without a doubt that Keeghan is so proud of you. I could see it in his face when he was here and I feel it in my heart now, he knows how much you love him. He knows that you did everything humanly possible to help him win his fight. He won! In the Bible we are promised "no tears in Heaven." Keeghan is in a place that is unimaginable to us. For us it will seem like forever before we see him again, but for him it will be "a blink of an eye," before he's with you again. So, continue to live and love.

Praying for you always.
Pamela

cheryl
 
    Shannon.
I think sucks sums it up. I think that encompasses overwhelming sadness, physically sick inside, surreal, gut-wrenching and so much more. Yeah, 'sucks' sums it all up.
About feeling guilty? Don't be. Shannon, you and Mike did a fantastic job of advocating for Keeghan's medical treatments and demanding explainations and options from the docs. You were fabulous cheerleaders and encouragers for Keeghan and you still are for Maxx. No parents could have done more. Keeghan loves you guys. He would not ever think you failed him. He is a smart kid who knew, back when he was 5, that cancer is an elusive thing with more questions than answers. Cell by Cell is going to help to find those answers. I feel sure he is looking down and is so proud that rather than let your grief bury you or halt you in your tracks that you are doing your best to step forward by doing or contemplating the gym, a trip etc and wringing as much pleasure as you can right now from life. Even if it is just watching a TV season premiere. That's OK--a step on the journey adn the journey goes on.
There is still joy to be found. Don't feel guilty that you recognize that and want to experience it. God allows joy for pleasure, to help us through the pain, not to invoke guilt. So go for it whatever 'it' may be. Keeghan's got box seats viewing this earthly life and can see, hear and remember everything. I am sure he is cheering you all on in all you do.
BS & C,
xoxox
cp

A Friend

    Shannon - You are right. It sucks. There are no more eloquent words than the words you put to your own feelings/emotions.

I wish there was a phrase, word, touch, or song that could heal your family's hearts but there is none I could think of.

Remember that you are entitled to your own emotions & feelings without judgment from others. Never apologize for how you react. No one can tell you the "right" way. You just do it Shannon's way.

This site, the Cell by Cell, and your carrying on will inspire so many.

I will continue to hold your hand from afar.

09/10/2008

Tasha
 
    I think about what Mr. Mike said, and I agree with him. But you're right: this does suck. And sometimes I feel almost the same way. A little bit at bowling...a little bit when hanging out with Hannah...and even sometimes when I'm playing video games, reading, or listening to music. It seems weird to continue, but I know that Keeghan wants us to. And Mackenzie is so right. Keeghan is with us. He feels what we feel, sees what we see, and hears what we hear. He still is and always will be with us!

Remember, I'm just next door or a text away if you need an extra hug! I love you guys so so much!!!!!

Leigh Ann
 
    It is encouraging to see something so senseless become something so beautiful with the creation of Keeghan's Cell by Cell Fund. I pray that as you move "day by day," you are able to laugh more and find comfort in the wonderful memories that you have of Keeghan's amazing courage and know that his impact on so many people in his short life is his enduring legacy.

09/09/2008

Lisa Hancock
 
    Dear Shannon, Mike and Maxx,
I am not quite sure how to start this, I have a lot to tell you for not knowing you guys very well. First I would like to say that our hearts go out to you and your family at this time. We feel very blessed to have meet Keeghan and your family at clinic that day. That was Alex's first day of clinic at Childrens and meeting you made us all feel at ease (and she was very scared). We are so thankful to you and Keeghan for spending the time talking with us and for Maxx talking with Alex about butterflies! I read through Keeghan's Journey and it sounds like he had a great time at camp. I was extremely touched by the story you told about Keeghan and Mike singing Cat's in the Cradle in the Ugly Kid Joe version. Jeff and I are also big fans of that group and I will always think of Keeghan when I hear that song. After we saw each other in the MRI waiting room I came back down to look for you and give you our phone number and email. You now have my email, if there is ever anything that we can do for your family or if you just need to talk please email me. Our prayers go to your family to fill your hearts with the wonderful memories of your very brave and wise son, Keeghan.

Fondly,
Lisa, Jeff and Alex Hancock



Tracy Cespiva
 
09/09/2008
21:22 h
    Shannon, Mike and Maxx,
I am so sorry. My family sends their love and prayers. Take care of each other. I know Keeghan is looking out for you too. I hope that some day we can get together again. Again, Sorry.



Richard and Jamie Griffith
 
09/09/2008
15:38 h
    It is hard to believe that government service has pulled us apart from you all long enough to not have known.

With our limited understanding of how painful this must be, and our ongoing respect of the strength and dignity for which your family is known, our thoughts are with you.

Richard and Jamie Griffith
"Only the Best Come North"



LORENE POE
 
09/09/2008
15:30 h
    My heart goes out to you in your sorrow. I didn't write often, but always absorbed such a pure feeling of love when I came to read the entries and learn your latest news. Thank you for sharing your life with us. You have been such a fantastic example to all of us. God Bless you.


Olivia Labonte
 
09/08/2008
21:04 h
    Hi there, my name is Olivia and im Donna and Rick's niece. I just wanted to start by saying I am terribly sorry for your loss (i know you mustve heard that about a milion times) and I cannot even imagine the pain of losing a child. Death is one tricky thing. Last year one of my closest friends pasted away in a car accident and it was one of the hardest obstacles in my life. I found comfort in knowing that my friend wants me and everyone else he knew to live a full and happy life. Just as I am sure Keeghan wants his friends and family to. It is not the years in life that matter but the life in your years. Keeghan was a beautiful child and it takes a certain amount of courage to be able to fight cancer like he did. He was one very brave boy. Keeghan's death broke my heart even though i never had the opportunity of meeting him. Stay strong and find comfort in the memories. Because memories are by far the most valuable thing a person has. Keeghan's spirit lives on and he is one great exemple and role model for adults and children alike. I was reminded by him that it so important to dream big and to never give up. And to never take life for granted. He was so young but seemed wise beyond his years. You both should be so proud of your son. You are in my prayers and I hope that with time the sadness turns into happiness :) and that they find a cure to cancer since i'm sure keeghan's spirit is continuing the fight to find a cure.

Much love,
Olivia



Robert Labonte
 
09/08/2008
17:00 h
    Our family would like to express our deepest sympathies for the passing of this very courageous young boy Keeghan. My children Olivia, Anthony and I were with Donna and Rick in San Diego when they received the news. They described a boy who in the face of this insidious disease saw through the challenges it presented him to a cure. God bless his soul.



Renee Garcia
 
09/08/2008
08:44 h
    Ohhh that song is beautiful! I wish I could hear the music with it. Keeghan definitely won his battle. It just sucks that SO many have to win it in heaven.
Thinking about you guys!
Renee & The Special Ks



Mark Triglia
 
09/07/2008
22:08 h
    Hi guys, I'm working with a man
who is 56 years old and has ALS.
The doctors have completely giving up on him and just sent him home......I see him once a week and shared of course my story with him , then recently
told him about Keeghan. Can I tell you right now how much easier it is to visit with this man. Sometimes I still catch myself being in awe of this amazing boy, I mean I'm really used to it by now , but sometimes he still knocks me right on my ass( now I'm sitting here crying as I write the rest of this , see he did it again). My life has become so blessed and changed because
of you son/brother's journey.
I owe him so much , for showing me (I'm now 38) how to fight and how to be strong.
He'll always be a part of me!
All my Love Always Mark



cheryl
 
09/07/2008
19:41 h
    Hi guys
Yes, unbelievably, it has been a week. I laid in bed in the silence of early morning and just ached over that, for you both, for Maxx and for all who loved Keeghan. And of course, I asked Why? again. I don't think we are ever 'told' why but I do know that Tom and I continue to learn how to be better people, parents and friends through the lives and deaths of the amazing children we know who fought and fight cancer with courage, compassion, humor and grace. I pray that someday my life and that of others might reflect the same grace that is so effortless to these bravehearts.

Yes, a week has passed. And even though Keeghan is not with you in person and that hurts beyond what words can express, he will never be far from you as his spirit touches your hearts and your minds. Love never dies and can grow, even with death.

Keeghan and y'all continue to be in the prayers of our girls as they ask for "good adventures for him up there and send his family here lots of hugs and kindness." Pierce is mostly quiet as he hurts wondering why this happened. He said he spoke to S. in his heart and definitely heard S. say that 'yes, Keeghan is here.' That makes me smile, even if it is a sad one.

Loved your analogy of tears to Mother Nature's gentle rain on Friday but yesterday's wild storm was more in line with how I was feeling about all this.

You are all in our hearts. We know you are hurting in a way that most will never know. We have journeyed with the unkind companion over a year. Hang fast to joy. It can still be found. Don't let the unkind companion rob you of that. He will try but you must fight to keep living.

We are here for you anytime. Anytime at all.

Love and tight hugs,
Cheryl (and Tom and kids)



pam
 
09/07/2008
12:36 h
    Mike, Shannon, Max, and family,
My heart is aching right now. Even though i wasnt at his celebration physically i was there in heart. i love you all and am praying for you all everyday. pam



David, Loren, Katrina, and Nicholas Labonte
 
09/06/2008
23:56 h
    Shannon, Mike and Maxx,

We were with Rick and Donna at the end of August and spent quite a bit of time talking about your family and Keeghan in particular. He sounds like a wonderful boy who makes so many people proud! Donna described him as having immense inner strength through out this battle. May his strength and all of your wonderful memories of him be of comfort to you. He will continue to live in your heart and soul.

You are all in our thoughts and prayers.

David, Loren, Katrina and Nicholas Labonte



Renee Garcia
 
09/06/2008
23:44 h
    It sounds like Keeghan's ceremony was just perfect. I so wish we could have been there. You've been on my heart constantly. I'll be back to check in... and always I'll be praying!
Renee and the Special Ks



Tasha
 
09/06/2008
23:03 h
    Just wanted to share a song that especially reminds me of Keeghan. Besides, of course, all his favorite songs...all American Idol songs...especially David Cook...especially his rendition of "Billie Jean"...anyway!

It's David Cook's "Always Be My Baby" with some editing. But it reminds me of Keeghan, from everyone's point of view. Thank you for letting me hang out with you guys all the time. I LOVE YOU!!!!!

"Now you're gonna be free, so I'm letting you fly. Cause I know in my heart, babe, our love will never die. You'll always be a part of me; I'm a part of you indefinitely. Ooh, darling, you'll always be my baby. And we'll linger on; time can't erase a feeling this strong. No way, you're never gonna shake me. Ooh, darling, cause you'll always be my baby. I ain't gonna cry, no, and I won't beg you to stay. But inevitably you'll be back again; cause ya know in your heart, babe, our love will never end, no. You'll always be a part of me I'm part of you indefinitely. Ooh, darling, you'll always be my baby. And we'll linger on; time can't erase a feeling this strong. No way, you're never gonna shake me. Ooh, darling, cause you'll always be my baby. I know that, you'll be right back, babe. Baby, believe me it's only a matter of time. You'll always be a part of me; I'm part of you indefinitely. Ooh, darling, cause you'll always be my baby. And we'll linger on; time can't erase a feeling this strong. No way, you're never gonna shake me. Ooh, darling, cause you'll always be my baby...always be my baby."



Tami
 
09/06/2008
19:41 h
    Shannon, Mike & Maxx,

Thank you all so much for inviting us to share in your celebration of Keeghan's life. It was such a honor to spend the evening with your beautiful family, reflecting on the wonderful boy Keeghan was to so very many people. You all remain on my heart and in my prayers.



Lew Rissmiller
 
09/06/2008
16:22 h
    All choked up...
Thanks for sharing!



Omri
09/06/2008
15:00 h
    Hi Shannon,
you are a great mother.
I hope every child will have a mother like you.

As for Keeghan, he should be now in a place with no fear, no pain, no medications. he can now rest from the long fight.

May god be with you and with him wherever you go.
aman



Leigh Ann Erdman
 
09/06/2008
14:01 h
    Keeghan's celebration sounds so beautiful and as I read through some of your earlier posts where you spoke of his love and concern for everyone else, I can't help but think that he would've been pleased to see love come together and everyone remember what a special kid he was. The light rain at the end reminds me that God shreds tears for our pain and sorrows and that he wants to comfort us in our hurts. I would like to think that Keeghan was looking down from heaven and as you stated, thought the bagpipes, the skull caps and the celebration was "awesome" and was a great celebration for a great, brave warrior.

No cliches but I wonder if you will someday look back at the things that happened and be able to see the profound impact that your young son had on everyone he touched, then you will understand that the comments about God that people made with the best of intentions were never meant to hurt you, but to try to make sense of something so senseless. Some of the guestbook posts to your family that I have read from complete strangers who have found their way to your comments shows that your words have had a worldwide impact.

Shannon, think about it. Someone read your words and you gave them hope. Someone read about your family and it gave them courage. Someone read your words and it helped them grieve. I pray that in time your family heals and you have comfort in the greatness of your little warrior, that your family created through love and tenacity. You had him such a short time, but he was truly your gift. God Bless you.



Robin Speer
 
09/05/2008
23:21 h
    I am praying for your family as you continue to grieve for, love, and celebrate Keeghan. I pray that tomorrows life celebration service will be all that you want and need it to be. God Bless.
Robin Speer



Chad & Laurie Scott
 
09/05/2008
21:13 h
    Our thoughts and prayers are still with you. Thank-you for sharing your family's journey with us through your blog. It reminded us of just how precious our time is with our children and one another.



Kathleen Barron
 
09/05/2008
17:22 h
    Dear Shannon, Mike, and Maxx--

I am so sad not to be unable to attend Keeghan's Celebration of Life. I am thinking of you all, knowing it will absolutely be the most fitting tribute to your wonderful boy.

To Maxx - as you already know, you are very special to me. I am always sending you good thoughts and thinking of how lucky I am to have met such a fantastic, talented, generous person (and art therapist in training). You have a gift! I am sending your parents a picture of the tree you painted. I think it is a beautiful symbol of life and I am proud to have it in the art room. I hope to see you soon. You always have a place here in the art room (heck, you may be my co-worker in a few years!).

Kathleen



Mona/sosoclever/onyxblue1
 
09/05/2008
15:56 h
    My most sincere condolences to you all.



Kat aka celestialsight @ LJ
 
09/05/2008
11:19 h
    Just stopping by to say that your family has been in my thoughts constantly. My heart goes out to each of you, especially as you get through this evening. I never had the pleasure of meeting Keegan, but he has touched my heart in so many ways. Love and hugs, Kat



PeggyKelley Daniel
 
09/05/2008
10:55 h
    My heart is with you and your family. He is now cancer free but it still "SUCKS!. Love to you and your family.



Natalie Herman
 
09/05/2008
08:25 h
    I wish that I was closer and could attend today, but I will be there in thought, and I will be wearing my brightest yellow to celebrate Keeghan's light.

You do not have to apologize or make excuses for your level of grief. You are absolutely correct that no one else has ever been in your shoes and what you are experiencing is totally new. But know that you are simultaneously not alone, and those who have grieved before you can serve as models of how time can heal.

My love to you all.



Katy W.
 
09/05/2008
07:01 h
    You are so right about the feelings thing! I am thankful that we all have different feelings--the happy and the sad. It would be a pretty boring world if we didn't!

Keep chugging along. You are on my heart and mind throughout the day.



Shari
 
09/05/2008
01:45 h
    I just spent two hours reading about your beautiful boy! Know your family is in my prayers in the coming days! I know he has impacted so many people just by what I have read.



Pam Smith
 
09/05/2008
01:33 h
    i am not sure how I came to your site. But once I started reading it, I couldn't stop till the last post. I am so sorry for your pain. My heart hurts for all of you. What a wonderful son you have. What a wonderful daughter you have. You are a blessed family to have shared such love between all of you. My prayers are with you. Pam



Chippy Jenkins
 
09/04/2008
23:21 h
    Mike, Shannon & Maxx,

Keeghan will always hold a special place in my heart. I met him when he was 2 yrs old and here...10 years later, I still feel he was the absolute BEST hugger EVER!!! I always looked forward to seeing him just so that I could cop a hug! Even as a toddler, he was amazingly sweet and radiated a profoundly soothing and loving spirit. Occasionally on life's journey, we're privileged to encounter individuals who despite their age--seem to be "old souls." Keeghan always struck me as one of those special people; you just knew that you were in the presence of someone wonderful and unexplainable. Sorry if I'm rambling. I can't begin to convey how sorry & heartbroken I feel at your loss. I read your entire page and both laughed and cried, then cried some more. You're still the awesome, magnificently bold & fiery Redhead I remember! It was truly my honor to have met you, Mike, Maxx and of course, Keeghan. I'll love your family always. Chippy


Nancy Boriack
 
09/04/2008
20:12 h
    Mike, Shannon, and Maxx,

Thank you for continuing to share your thoughts with all of us on the web site. You are an amazing family and a blessing to know.

My husband and I continue to pray for you as you miss your sweet boy. We read "the beginning" together last weekend. I will say again, Shannon. You are a gifted author and I see a book in your posts.

I look forward to Friday night and to celebrating Keeghan.

Blessings,
Nancy



Sara
 
09/04/2008
19:13 h
    I found your blog through a friend of a friend's blog. I'm so sorry for your loss. I read your entire blog and fell in love with your family. I love how you "act like dorks" often and laugh with & at each other. Your family is in our thoughts. We are thinking about Keeghan & your beautiful family. Again, I am so sorry for your loss.



Andi Vinyard
 
09/04/2008
17:37 h
    Mike, Shannon, and Maxx,

Chuck and I have been thinking about you all quite a bit. You are such a strong family.

I think regardless of the situation the Irish proverb works best..."May the road rise to meet you..." It means something to different to everyone and I'm sure touches all of you differently.

See you on Friday.



Steph
09/04/2008
16:34 h
    I'm so sorry for your loss!!



Jennifer
 
09/04/2008
15:25 h
    I am so sorry for the loss of your beautiful boy! I just want to say. I don't believe God is looking down on us and giving out bad things in doses we can "handle" but I know He is there during our trials to walk with us or carry us when we can't go on alone! You will be in my prayers that He will give you strength when you need it most.



Joe Haggerty
 
09/04/2008
15:22 h
    Shannon, Mike and Maxx,
Words cannot express my sadness at the news that Keeghan is gone; I heard the news when I called to speak with Sally today.
I am trying to take heart in the fact that Keegan is in a happier place right now and feel if I tell you that it might ease your pain, BUT, I know that it won't. LOSS is something that each of us must bear in our own way, own time, and no one can truly know it, no matter who or what they have lost.
Of course, I will make every effort to be there for the "celebration". You can also count on the Haggerty family to be a contributor to Keegan's Memorial for Brain Cancer Research; we'll look for the information in the coming weeks. For now please know that we pray for each of you to feel God's healing presence/love and we know that each of us will be a little better for having Angel Keeghan on our shoulders.

Love,
Joe, Shauna, Meghan, McKenna, Marissa, and Megan Haggerty


carrie woito
 
09/04/2008
15:21 h
    we just wanted to give our loving wishes and our thoughts are with you always. so sorry that we dont just live around the corner from all of you. wish we could have been there on sept.5. hope to see more pics of that very special day. love cousin carrie, tory and bryley



Renee Garcia
 
09/04/2008
13:49 h
    Shannon,
Once again, I've been behind. I have been thinking of you all SO much the last few days and I kept thinking, I need to check in with them.

Then today I got an email from a friend who has been following Keeghan since I posted about him on my blog so many months ago. I was just in shock.

I've been sitting here for the last hour with tears running down my face catching up on all that I've missed. I'm SO sorry I haven't kept in touch better. I wish I could be there tomorrow night. Please know my heart will be.

Keeghan will always always always be remembered. I promise that as I watch my own Keeghan grow, I will think of yours. He will live in our hearts forever.

Love,
Renee
(and Frank, Kassidy, Kameron, Kennedy and Keeghan too)



Dawn McCloy
 
09/04/2008
10:46 h
    Keep writing, Shannon. It is going to be what is going to keep you sanity in check! Keeping those feeling bottled up is never a good thing! As long as you keep writing and keep talking about everything you are feeling, you are doing something. There is no right or wrong answer; there is no right or wrong feeling; there just yours and that is all there is to it! God loves you and God bless you! Still praying!



Omri
09/04/2008
10:13 h
    Hi Shannon , Mike, Maxx.
You should be strong, and united now.
this is the time, where family is the most importent, and the only thing in the world.
A Sister and brother can fight, but if something happen, sudenly they start to talk again, and forget about the fight.

You are right, no one can feel the pain more then you, maxx, and mike.

But i can tell you this, the first year is pretty hard, and every other year / day later is hard too, but you know, time do heal. it may take time, but as long as the family is united , start thinking about tommorw, about what Keeghan wanted you to have or to do.
For example, my father wanted me to stop being self-employed, and go work for corporation. i did it 2 months after he apsses away



Ray Olingerr
 
09/04/2008
03:08 h
    Keeghan's presence at Camp Fantastic was a testament to his indomitable spirit and his family's selfless love. Please allow that the compassion afforded him to attend Camp touched many lives.
Peace,
Ray Olinger
Special Love volunteer



Art & Lori Delage
 
09/04/2008
02:11 h
    Lori & I are praying for your family. Thank you for sharing your incredible son with everyone through this site. I wish I had met him. Heaven has a special place for him where he will be waiting to see you all again.

God bless,
Art & Lori Delage


Danelle Gawlik
 
09/04/2008
00:12 h
    I had the pleasure of being one of the many nurses at Camp Fantastic to get to know Keeghan. I was touched when I heard him sing Cats in the Craddle w/ his dad. I have many pictures of my own w/ him in them..I guess you can say he had a special place in everyone's hearts...Even those of us who just met him for the first time. My heart goes out to you and your family. His memory will forever be fresh in our minds...



Maureen Michelson
 
09/03/2008
20:54 h
    Keeghan's Family,
You probably don't know me. My name is Maureen, I'm 12 years old, and I'm part of the horse barn staff at Camp Fantastic. I just wanted to let you know that he had a lot of fun riding every morning at exactly 8:15AM every morning, every day. He was a great person, and I'm glad I met him.

~Maureen Michelson



Nate Copp
 
09/03/2008
19:59 h
    Barry Family,
I felt crushed to hear that Keeghan had passed away. I truly believe he is residing in a better place now. God be with all of you through this time.
Blessings,
Nate



Stacy La Forest
 
09/03/2008
19:01 h
    I just visited for the first time today, and I really don't know what to say. I'm in tears right now, just in awe of your son, and I wish I could fix it. I really do. I don't really know what else to say...



Laura B
09/03/2008
17:17 h
    Hey guys,

I just wanted to let you know you are loved, and if you ever need anything- im pretty sure that everyone has said this but ill say it too, we're hear for you. I choose not to say any of the 'he's in a better place' junk because I know people have been saying that to me and it hasnt made me feel much better. So i wont tell you the things you already know. What I will say is that I'm pretty sure Keeghan is beating Jesus at Guitar Hero and painting another beautiful sunset for us... =)

I love you guys, so so so much, your like my second family. We're lifting you up in prayer, see you friday, I can't wait to remeber all the times with Keeghan that were so touching to everyone.... I've said enough blah blah =/

see you friday,
keep holdin on,
- Laura



Renee Chen
 
09/03/2008
14:40 h
    To Keeghans' Family,

My name is Renee and I ran the lab at Camp Fantastic this year. I got to spend a brief time with Keeghan alone in the infirmary and wanted to share a touching moment I had with him. He told me that he went to Ireland for his "Make-A-Wish" and I then mentioned I was Irish too. "See my hair and these freckles," I said. "My daughter has freckles too, but she doesn't like them." Keeghan then poignantly replied, "A face without freckles is like a night without stars." I have never looked at freckles, or the stars above, the same way again.

Thank you for bringing this wonderful boy into the world and for giving me the opportunity to be blessed by his wisdom and kindness. Keeghan's memory will stay with me forever.


Matt Boyer
 
09/03/2008
14:39 h
    Dear Barry Family
My name is Matt Boyer I meet Keegan at Camp Fantastic seeing Keegan there going through what he had to but still having that smile helped me become a better person. The Barry family will always be in my prays please stay strong. love n prays Matt Boyer



Maggie
 
09/03/2008
11:15 h
    I came over from LJ, Becky aka dragongoddess there had mentioned you. I shall keep your family in my prayers. Im so very sorry.



Natalie
 
09/03/2008
09:17 h
    You are all constantly in my thoughts. My love to you x 1000.



Michelle Buck
 
09/03/2008
00:47 h
    I just found out about Keeghan and have to say that I am deeply saddened. My cousin that I was very close to died of lymphoma at age 7 so i know how hard it is. It isn't fair when they say they will be okay and then they pass away.
I heard about Keeghan from bravery beads...I wanted you to know that I am very sorry for your loss and it is a very hard time, but the best thing that helped me to get through was the memories of all the good times my cousin and I had together. I was like her older sister...I was at Riley Children's hosppital with her during some of her treatments and I loved being there with her. It was very hard when she passed, but I still remember the good times. I have a picture of her in my bedroom on my jewelry box that I look at often and just wish she were here now! It will all be okay...God needed a GREAT angel to help him out and that is why he has taken Keeghan and my cousin Jessica.
God Bless...
Michelle



Terri Buri
 
09/03/2008
00:18 h
    I already posted our sympathies but just wanted to let you know that the title to your Journal "Mad World" is so appropriate. It's such a mad world when our children or members of our families have to suffer as they do with brain tumors. There are just many things we will never know the reason. May the Lord continue to comfort you and lead you as you plan K's celebration. You deserve a very special day to honor & celebrate his life. blessings, terri (mimi to Gage)



Breanna Curry
 
09/02/2008
23:34 h
    Hi,

I was a first year counselor at Camp Fantastic this year and I just wanted to thank you for letting him come to camp. He taught me more about living and life in a week than in all my 23 years on this earth. I wasn’t his counselor or in any of the classes he took but his presence was felt all around the camp at the campfires, at meals ext. You name it he was there, determined to have a good time. Keeghan taught me about strength and determination. When I got back to work after camp I wrote on a post it note and put it on the bottom of my computer monitor all it says is live like Keeghan. He taught me so much. You will never know how grateful I am to your family for sharing him with us.

Breanna



Laura Robinson
 
09/02/2008
21:39 h
    Maxx,
Everyone is praying for you and your family. Don't forget your brass family. We are all here for you.
Laura



Melissa Cochrane
 
09/02/2008
20:39 h
    Dearest Shannon, Mike Maxx, Aunt Lois and Uncle Dick

My heart broke when Dad told me the news about Keeghan. The world can be so unfair and this is for sure one of those times. You are all in my prayers and I will be with you all in spirit on Friday at 5:00pm. Stay strong and take care of each other. I love you all.

Melissa



Christopher Barry
 
09/02/2008
20:15 h
    Dear Mike, Shannon & Maxx,

My heart and thoughts are with all of you now and always. After reading Shannon’s posting today, I sat and watched the sunset here and reflected on the journey, memories and images that you have shared with me through this site. I just want to reach out and give all of you a great big hug. While I truly wish I could be there… Know that I am with you all in spirit during Keeghan’s celebration of life on Friday.

All my Love to you and the whole family… Chris



Briana Smathers
 
09/02/2008
19:33 h
    I am glad this world has such a spirit in it as Keeghan's...it is a better world because of him.
All my best to your family,
Bri



Della Howell
 
09/02/2008
16:45 h
    Keeghan will always be with you and with many other people in their hearts. Please know that he has touched the lives of many people. I will always remember his wonderful attitude and great spirit when he came to visit us in the clinic.

My office is now where the clinic "check-in" room used to be, and I can see Keeghan's hand tracing every day. He paid a lot of attention to the details - colorful camoflauge, neatly drawn and meticulously colored. He dated it 16 June 2006.

And his bells will be with our patients always.



Tammy Jenkins
 
09/02/2008
16:22 h
    Dear Mike, Shannon and Maxx,

I am so sad to hear of Keeghan's passing, and thinking about all of you. But, I am lifted and inspired by the week I spent with Keeghan at Camp Fantastic. I feel privileged to have had the opportunity to be with Keeghan these past 2 years, but this year was especially poignant. I am honored that you entrusted us with the care of your son during such a difficult time, when all you wanted to do was be with him. Your strength and courage to let him go to camp was a lesson to all about pure love. Please know that he touched so many people at camp this year, and taught so many to understand the desire to live every moment. Seeing him on Eclipse, in the motorcycle, in the police dune buggy at Farm Day, at campfire, and even just hanging out with the other kids eating pizza, was pure joy. To say he will be missed is just not enough. My thoughts and prayers are with you all.
Tammy



Tricia Morin
 
09/02/2008
16:10 h
    Barry Family,
I am praying for you all. Although I didn't interact a lot with Keeghan face to face, I felt like I knew a part of him through your blog and the stories that you, Shannon, would tell. I was always encouraged by the way you viewed beauty in light of a tragic situation. That seems more obvious than ever in your most recent posts. YOu are right that he accomplished so much in his lifetime, more than any of us can know - if even from the inspiring stories that Shannon relayed to all of us. We are all supposed to have at least one angel assigned to us (some of us have more than one). If you feel Kheeghan around you, I will bet that he asked for special assignment to the Barry house and HE IS WITH YOU.

God Bless All of You and Your Special Angel!

Tricia Morin



Lew Rissmiller
 
09/02/2008
13:51 h
    Our thoughts and Prayers are with your family. Although I never had the pleasure of meeting Keeghan, Mike lit up when he spoke of him. Keep the light of this special boy burning bright.



Martha Corrick
 
09/02/2008
11:59 h
    Dear Barry Family,
My husband just recently started work in the gov't office, so I only just learned about Keeghan last week. My heart breaks with yours. He must have been an incredible kid, and I know you must be very proud of him. Please know that I am praying for you to have peace now and in the future.

Sincerely,
Martha Corrick



Darren Enkin
 
09/02/2008
11:32 h
    Dear Shannon, Mike, Maxx and Keeghan, I went away without my computer for the weekend and just signed on to read about Keeghan earning his wings. You introduced me to Keeghan over 2 years ago and I know I have told you this a hundred times but he has been such and inspiration to me and I feel so lucky and honored to have known him. Keeghan, you will always have a special place in my heart and will always be our special Bravery Hearts Ambassador.



Inga
09/02/2008
09:10 h
    It is such a sweet thought of Mike that yesterday Keeghan shared his spirit with all of us.
I don't just believe it, I know it! A part of him is with all of us. And it will forever be.



43d Aeromedical Evacuation Sq
 
09/02/2008
08:55 h
    May the 43 AES' hearts, thoughts, prayers, and love be with you always. Keeghan is a brave warrior. He is one of God's angels watching over his loving family: Mike, Shannon, Maxx, and all of his animal friends.

Love,

One of his military family members, the 43 AES, Pope AFB NC


Jim Kottkamp
 
09/02/2008
06:32 h
    My prayers to the Barry family as you find your way through this part of life's journey. You are correct, Keeghan will never leave you. Having gone through the loss of both Jo Ann's and my parents recently, I can tell you Keeghan will live with you now as never before. Your hearts are open and that will enable you to see for yourself...he is not gone!!



Rob and Ann Bowersox
09/02/2008
01:46 h
    Mike, Shannon, Max,

Ann and I are sad to hear of Keeghan's passing. He lived an amazing life and touched us all, and through your journal will still continue to inspire. Our thoughts and prayers are with the Barry family. Rob and Ann Bowersox



Pamela Browning
 
09/01/2008
21:16 h
    Oh you are so right! Keeghan is in your day, your night, everywhere you go, he is in your heart. You will not only see things through your eyes, but you will see things through his. My heart aches for you, Mike, and Maxx. I will continue to lift you up in prayer.

With much grief and love,
Pamela



cheryl
 
09/01/2008
20:42 h
    Hi Shannon, Mike and Maxx

"We are sorry" is so grossly inadequate. We are brokenhearted, sad, frustrated, bewildered and more words we can't even find for all of you. But for Keeghan? We believe he is definitely cured of cancer--for an eternity! We believe he has and will continue to change this planet, one heart at a time. People like him cannot help but inspire others to greatness in the simplest of actions: kindness, compassion, humor. We learned from him, and from you, dear hearts. We are still learning.
It has been and continues to be a priviledge to know your family and share this journey with you. Thank you for your openness and being...real.
Keeghan will always be here, alive in the hearts of so many who were and will continue to be touched by his courage, wit, sarcasm, kindness and empathy.
I do believe though that he was tubing today with Slater--- again! I can almost see them hysterical in giggles as Yesh drives the boat with his hair flapping wildly from that ponytail. Hard to believe that anyone could love your kid more than you, isn't it? That's my comfort. That heaven's gates were flung open and as we cried here at Keeghan's departing, the gang up there went wild at another of God's chosen ones finally joining them.
Keeghan, I thank you for talking to the Big Guy in charge and requesting awesome sunsets and glittering nights with winking stars (that was you wasn't it?) to let us know you were thinking of us too. Don't worry, we can never forget you. We miss you buddy but will indeed see you again, it will be just a twinkling of an eye.
Shannon, Mike and Maxx,
You have fought the good fight. Keep being strong and courageous. Keeghan would expect no less. Remember, whether it's a gray day or darkest night out, the sun is still shining somewhere. Believe it, it is true! Every ray that shines on you is a gift! Be thankful for those small things. They are God's way of giving you comfort.
We love you and grieve deeply over Keeghan's death but also celebrate his life, so well lived.
With much love,
Cheryl, Tom and family



Tami Lingor
 
09/01/2008
20:27 h
    Barry Family,
Your strength and ability to find the beauty in life, even when the days are dark continues to amaze and inspire me. It is such an important lesson, life has good and bad. You all make the decision each day to celebrate the good.
I started this post several times, and yet I cannot seem to find the exact words. So, forgive me for my fumbling here.
I did not spend a lot of time with Keeghan, as his Momma's friend I feel I know him so much more. Having an 11 year old boy, I'm not a stranger to boy behavior. Keeghan was different though. Keeghan was the wise old man, trapped in a little boy's body. I love the way he always looked out for his family. Even until the end of his life he was so concerned about his family, not his lost hopes and dreams. I admire his selflessness. What I have learned from Keeghan's 12 short years here with us is this: cherish each day and those you love, don't take either for granted. Be a lover of knowledge, and always have a heart filled with compassion. These lessons will stay with me forever, and Keeghan lives in each of us who remember his extraordinary spirit.
In the dark days ahead, when you are struggling to carry on remember this, you--Shannon, Mike & Maxx are the ones who nurtured this awesome boy. Keeghan has touched so many people, but you three have also had an enormous impact on this world. You are still here to share those gifts, and through your lives Keeghan will live on.
May God hold you especially close during this time,
Tami



Emily Cloyd
09/01/2008
19:29 h
    I am so sorry to hear about Keeghan passing. He was a strong fighter and I have admired him greatly for his strength and positive attitude. I wish you guys all the best. May your fond memories help you through your pain.

I love you guys very much, and while I do not stay in touch as often as I'd like, I think about you every day.

You are an amazing family. Thank you for being an important part of my life.

Rest well, dear Keeghan. You fought a good fight. You are my hero. xoxo.



Tanya Clark
 
09/01/2008
18:15 h
    We are so sad to hear about Keeghan passing away. Our thoughts and prayers are with all of you as you deal with this. Please don't hesitate to call on us if you need anything.
Tanya, Jeff, and kids...
(202)561-1276



Mark Triglia
 
09/01/2008
16:13 h
    Shannon Mike Miss Maxx, I'm really unable to say much right
now . I've been staying posted all along and was just really moved when Keeghan passed. He started me on my road to recovery.
He will always be very special to me! I love you all and will be in-touch later , mark



Karen Pletcher
 
09/01/2008
13:30 h
    You're in our thoughts and prayers. Thank you for sharing your journey with us.



Zitto Family
 
09/01/2008
12:54 h
    Our Love and Prayers are with you, today and always.
I remember a month ago I cam home from church to find Bruno and our new puppies in your back yard playing. It was so cute to see Keeghan watching them. And to see Ceili trying to play with them. Just to see Keeghan brought a smile to my face. I am happy that he has won the fight and is now pain free. He will always be with you, and watching over you.
God be with you ALWAYS!!

Love, the Zitto Family



Omri
09/01/2008
12:51 h
    Hi Shannon,
I would like to tell you i belive every single thing from your post, And i also think that Keeghan will be with you , Mike, and Maxx wherever you go.
You can actualy sense ( and that i say from expeirnce) that the person is still with you, you cant see him, but you know he is there.

God will be with you, and Keeghan too,
aman.



Natalie
 
09/01/2008
11:00 h
    I definitely feel Keeghan in my heart.



Omri
09/01/2008
06:07 h
    Shannon, i didnt belvie it will happen so fast, so quick. i didnt read for 1 day!!

God be with you, Mike, Maxx - and keeghan where ever you go.

Keeghan has defently put mark in my life, the power, the pain, everything.

I will keep reading here, even now. I want to tell you you guys are AMAZING EVERY SINGLE TIME.

Be strong Barry family. I think of you every day!

A Tehelim chapter, for Keeghan life in a better world, world with no PAIN and NO CANCER

Psalms Chapter 27

1. A Psalm of David. The Lord is my light and my salvation. Whom shall I fear? The Lord is the strength of my life. Of whom shall I be afraid?
2. When the wicked, my enemies and my adversaries, came upon me to eat up my flesh, they stumbled and fell.
3. Though a host should encamp against me, my heart shall not fear; though war should rise against me, even then I will be confident.
4. One thing have I desired of the Lord, that I will seek after; that I may dwell in the house of the Lord all the days of my life, to behold the beauty of the Lord, and to inquire in his temple.
5. For in the time of trouble he shall hide me in his pavilion; under the cover of his tent shall he hide me; he shall set me up upon a rock.
6. And now shall my head be lifted up above my enemies around me; therefore I will offer in his tent sacrifices of joy; I will sing, I will make music to the Lord.
7. Hear, O Lord, when I cry with my voice; be gracious to me, and answer me.
8. Of you my heart said, Seek my face; Your face, O Lord, will I seek!
9. Hide not your face from me; put not your servant away in anger; you have been my help; do not abandon me, nor forsake me, O God of my salvation.
10. For my father and my mother have forsaken me, but the Lord will take me up.
11. Teach me your way, O Lord, and lead me on a level path, because of my enemies.
12. Do not give me up to the will of my enemies; for false witnesses have risen up against me, and they breathe out violence.
13. Were it not that I believe I should see the goodness of the Lord in the land of the living.
14. Wait on the Lord; be of good courage, and he shall strengthen your heart; and wait on the Lord.



James and Laura Hurst
 
09/01/2008
00:46 h
    Guys - We are thinking of you today and will continue too. We didn't know Keeghan as long as we would have liked, as you escaped the heat to DC a little too soon. We know, however, that he was without a doubt an amazing kid and his dad never let you forget that fact. Not a day went by that Mike didn't have some wonderful story to tell about one of you - Keeghan, Maxx, or Shannon. And when he wasn't talking about you all he was searching the internet for what to cook for the family that night, which is further testament of his service and admiration for his family. I know you all will make it, you're a tight family and we admire that. Our last experience with Keeghan was in San Antonio on the 4th of July when he served as the "fireman" to put out the fireworks flames, which we had a few too many of. It was a great night and we'll keep that image of him strong forever.



Terri Buri
 
09/01/2008
00:36 h
    Dear Ones, our hearts grieve with you in your loss of a super son and brother! May God comfort you all as only He can at this time! Will be praying for you in the coming weeks. ~Psalm 46~ prayerfully, terri buri (mimi to Gage) www.caringbridge.org/visit/gageburi



Pamela Browning
 
09/01/2008
00:10 h
    Dear Shannon, Mike, and Maxx,

We are so sorry. Keeghan was truly a light. His grace and strength in fighting his cancer was astounding. "I have fought the good fight, I have finished the race, I have kept the faith..."Timothy4:7 We read those words in the Bible and immediately thought of Keeghan. What a blessing he is and will continue to be for so many. Thank you for sharing him.

With much sympathy and love,
The Brownings



The Vice family
 
08/31/2008
23:44 h
    Dear Barry family,
We just wanted to tell you how sorry we are to learn of your loss. Your family is in our prayers.
Your website is such a testimony of love and determination. Thank you for sharing your life with us.
Sincerely,
The Vice Family (Roy, Rhonda, Samuel, Kayla, and Jacob)



Malcolm Mosiah Brewster
 
08/31/2008
23:33 h
    I really enjoyed the K Master at camp this year and my heart goes out to you the family members. We all enjoyed his presence and his wonderful debut as the talent show.

Hold strong to love and may blessings fall upon you.

Malcolm B.
The Drummer Man from Camp Fantastic


Julia Jones
 
08/31/2008
23:18 h
    Hi,
I am a counselor at Camp Fantastic. I wanted to tell you that Keeghan had one of the most profound impacts on camp that I have ever seen. It meant a lot to us that he chose to spend his time at camp. I will be praying for everyone who knew and loved this amazing boy.



Joe, Stephanie, Ty, and Avery Van Hoose
 
08/31/2008
22:43 h
    Mike, Shannon, Maxx,
We are deeply sorry for your loss. Shannon I met you once two years ago at James Brown's house - while looking through boxes of books- After I walked away I remember feeling this sense of amazement at the chance of our encounter-- You were working tirelessly for the families on the hospital ward-- and I since then I have been following your website on and off and although I never met your son personally I knew with you as his mom he must be one amazing kid! Thank you Keeghan- your journey has touched our family in so many ways ---- may you rest with the angels



Nichole McFadden
 
08/31/2008
22:33 h
    Mike, Shannon and Maxx
words cannot express the sorrow that I feel for your family today. I have been following Keeghan's page for awhile now and it just breaks my heart to lose such a wonderful young man. My thoughs and prayers are with you all.

Nichole McFadden
carepage: ashlynnichole



Brad, Susan, Tayler, Nolan, Kruse Kelley
 
08/31/2008
22:27 h
    Our visit this summer will be one of wonderful thoughts and memories. Mike, Shannon, and Maxx, we love you all very much and if you need anything...don't hesitate to call. Keeghan touched our lives. Love, Uncle Brad, Aunt Susan, Tayler, Nolan, and Kruse Kelley



Kim MacDonald
08/31/2008
22:07 h
    Just another thought... I am sure Keeghan and Kiana and his other friends are reuniting now.

<3



Kim MacDonald
 
08/31/2008
22:04 h
    I'm a counselor at Camp Fantastic and have been at camp for the past two years. Unfortunately, I did not get to know Keeghan, but I was touched by simply being around him. Every morning when my horses class arrived at the ring, Keeghan would be finishing up with Eclipse, and it made me so happy to see him ride. I hope he got to do everything he wanted at camp, and I think he did. He was definitely the star of the talent show, first making everyone crack up with his joke about puberty, and then bringing everyone to tears by singing with his dad. How amazing that he wanted his dad to sing with him... and I heard he didn't tell him until that day!
I know your hearts are hurting. Keeghan will be missed by so many. Thank you so much for letting us into your journey through your writing, and for letting Keeghan spend one of his last weeks with us at Camp. I will be thinking of you.



Bryce Jones
 
08/31/2008
21:10 h
    Dearest Maxx
My heart and prayers go out to you and your family. Im so sorry to hear of Keeghans passing. Although I only met him a few times at swim team, he was an extraordinary and courageous person.
The rest of my family sends their prayers too.

Your Friend
Bryce



Robin Speer
 
08/31/2008
21:09 h
    I once heard a saying "the memories we have of a loved one are the treasures we get to keep and open after they are gone." I know Keeghan left you many "treasures" to open. What a special guy!!! I will be praying for your family this week. Thank you for sharing Keeghan's journey with us, we can all learn many lessons from him. God Bless!

Robin Speer



Andy Nelson
 
08/31/2008
20:35 h
    Mike, Shannon & Maxx.

I am so so sorry to here about Keeghan's passing. My thoughts and prayers are with you. I'll be hugging Tyler a little tighter tonight. If there is anything at all that I can do for you, please don't hesitate to ask. I love you all.

Andy



Kellie DeMaio
 
08/31/2008
20:22 h
    Dear Mike, Shannon and Maxx,

We are so very sorry to hear of Keeghan's passing but you are so right-he is cancer free today. Our hearts go out to you and are thoughts and prayers are with you. Michael and I are better people for having known Keeghan. A little piece of him will always be with us.

All our love,

Kellie



Zandy
 
08/31/2008
20:20 h
    I just want to say that i am truly very sorry to hear about your loss. I know i only knew Keeghan for one week but that week was one of the most special weeks of my life because him. Even though he was in a wheelchair, he still wanted to do all the things the other healthier kids could do. It was a life changing experience being with Keeghan. He really was a great great great kid.



Zandy
 
08/31/2008
20:20 h
    I just want to say that i am truly very sorry to hear about your loss. I know i only knew Keeghan for one week but that week was one of the most special weeks of my life because him. Even though he was in a wheelchair, he still wanted to do all the things the other healthier kids could do. It was a life changing experience being with Keeghan. He really was a great great great kid.


Holly Senn
 
08/31/2008
19:46 h
    My name is Holly and I have been a counselor at Camp Fantastic since 2005 and had the wonderful privilege of knowing Keeghan while he was at camp in 2007 & 2008. My heart aches for your family but also rejoices in the fact that we were able to know such a wonderful young man. I couldn't contain my emotions at the talent show this year, but my favorite memory was dancing with him at the dance on Friday night of camp with some of the other counselors to "Umbrella" by Rhianna. I held his hand, he swayed it back and forth, and smiled the entire time. It will be one of my most cherised memories for the rest of my life. Thank you for allowing your son to spend some of his last days with us at camp.
Sincerely,
Holly Senn



Myleen Lankford
 
08/31/2008
19:02 h
    Shannon, Mike and Maxx,
I am so sorry to hear about Keeghan's passing. I have never met any of you or Keeghan. But, I was able to get to know a piece of him through the stories you have shared and I feel very blessed to have been able to learn just a little bit about your amazing son and brother. Please know that you are all in my prayers and will continue to think of you often.
God's Peace,
Myleen Lankford



Penny
 
08/31/2008
19:01 h
    Shannon, Mike and Maxx,

My family is sending love, prayers and light to yours.

Keeghan will live in our hearts always.

With all the love in our hearts,

Penny (tru2myart), Bill, Mary, Lacy, Melody and Andy



Jayme Hines
 
08/31/2008
18:35 h
    Shannon, Mike, & Maxx,
My thoughts & prayers are with you all. ~ Jayme



Kris
 
08/31/2008
18:26 h
    My heart is aching for you all right now. Please know that we love you guys! Keeghan was an inspiration to me personally.



The Borelli Family
 
08/31/2008
18:25 h
    Dearest Mike, Shannon and Maxx,

We want you to know that our thoughts and prayers are with you today as they have been every day, and that Keeghan will be remembered in the most kindest and thoughtful ways for ever and ever!

Love always, The Borelli's


Dave Kennedy
 
08/31/2008
17:40 h
    Shannon, Mike and Max:
I am so sorry for the loss of your wonderful son and brother. Our thoughts and prayers continue to be with all of you. My only story that I can share is that we can only hope that we can all be as brave as your young man has been these many months in what ever we face in life. Keeghan has been a real example to me and I thank you Shannon for sharing him with us.
Dave



Leilani Corbin
 
08/31/2008
17:31 h
    Shannon,

My heart goes out to your and your family today. Words are not enough to express the sympathy I feel for you now. You are all in my thoughts and prayers.

~Leilani Corbin



Dorothy Leary
 
08/31/2008
17:17 h
    Shannon, Mike and Maxx, Our thoughts, prayers, & tears are with you today. Love, Dorothy, Crystal & Megan



eclipse
 
08/31/2008
15:57 h
    i am actually a pretty goofy horse (comparable to a 1200 pound lab!!!) but certainly enjoyed my special rides with Keeghan. on the last day of classes at camp, Keeghan and I went on a "trail ride" and although others were with us ... it was really our time. When Keeghan said bye to me on that day he told me he loved me and I just want you to know (because I already told Keeghan) that I loved him too. My family is praying for your family and we all think of keeghan often. Eclipse



Tricia
 
08/31/2008
15:44 h
    I'm a friend of Laura's and I know from her how incredible Keeghan was. She told me this morning that he passed away and I wanted to let you know that my thoughts and prayers are with you...
With a sorrowful heart,
Tricia



Sarah DeArmond
 
08/31/2008
15:37 h
    hey Aunt Shannon,
i just wanted to share a funny story about a few christmases ago. Keeghan and i were watching the waves in Corpus Christi and we saw something. We then conviced ourselves and our other cousins that it was a shark fin. We then told Chandler, Jensen, and Maxx that we had seen a shark attack and that two surfers got eaten. When we went to the beach the next day Keeghan and i were to scared of our own imagination that we couldn't go in the water! Keeghan was such a sweet boy and i know that he is with us always. My friends Carley, Amber, Elissa, and Anna want me to tell you that they are praying for you and that they love you all. In their opinion, my family is their family too. I will be seeing you soon. Until then,
Your niece,
Sarah


sue
08/31/2008
14:13 h
    Mike, Shannon & Maxx - Please know that you all are in thoughts and prayers. When i woke this morning for church keeghan was on my heart. Now i know why. Keeghan has touched so many and will continue to do so thru all the stories. I may have never met him but i knew what kind of young man he was thru this blog. Thank you for sharing him with us here. I am blessed to have known him. A hero is somebody who is shown remarkable bravery or who has shown an admirable quality such as great courage or strength of character(keeghan),somebody who is admired for outstanding qualities or achievements(Keeghan) He was a hero to many of us at his young age. Be strong and now that you are in prayers from all over the country. God BLess



The Malcom family
 
08/31/2008
13:57 h
    We are very sorry that Keeghan did not have a chance to do everything that he wanted to do. He was always bright and cheerful. We will all miss him.

The Malcom Family


We are very sorry for your loss from past experiences Keeghan was the nicest kid on the block. we read what your webpage had to say. We are sad Keeghan did not make it.

Mark


Eb
 
08/31/2008
13:16 h
    Mike, Shannon, Maxx & family -Many thoughts & prayers go out for you on this very difficult day. We cry with you. As Shannon noted, we find some solace in knowing the amazing life that Keeghan lived-- we were blessed to know him. We'll be here for you in the coming days. Deepest sympathy, Linda Ebling



Inga
08/31/2008
12:41 h
    Hey guys,
my heart is heavy for you all.
I have never met any of you personally, but I cry bitter tears nonetheless. I feel like I know your family very well and I am heartbroken for the loss you are going through.
Accept my dear wishes that you will go through this okay.
My heart is with you, Shannon, Mike and Maxx.
All my love!
Inga



Julie
08/31/2008
12:34 h



Leigh Ann Erdman
 
08/31/2008
10:52 h
    Words can not express what I am feeling now. May God comfort you and hold you tight. I am praying for your entire family now.



Omri
08/30/2008
17:51 h
    Shannon ,
Im glad to hear that Keeghan is more alerted now and initiating conversations.
its fantastic to hear (Read).
P.S - i Loved the pictures :)
God Bless you and Keeghan, AMAN.
I think about you guys every day.



Annie Baratto
 
08/30/2008
14:11 h
    Hi Shannon,
Just wanted to let you know that I am thinking and praying for you and your family. Please let me know if there is anything I can do to help.

Annie



Tami
 
08/30/2008
14:09 h
    Shannon, Mike, Maxx & Keeghan,

Know that you are all on our hearts. May today bring you some joy to sustain you.



dawn brown
 
08/30/2008
08:02 h
    Precious Precious keeghan,

My heart hurts that you feel you are not good because you have cancer. You are so dear!!!! God made you in His image. He loves you deeply. I don't understand why you have cancer, but it is not because you did anything wrong. It is not a punishment. MOre importantly than our love for you is the love of your creator. he gave you the gifts you have, he gave you the sweet spirit & deep compassion you have for others. He hears your heart even when you may not be able to express it in words. he is with you. I don't know the whys but I do know Him. He is faithful & His ways are so much higher than our own understanding. It is so hard to comprehend as I watch you & your sweet family suffer. Dear keeghan, draw near to Him. Trust Him. I know it is hard. But He alone can give you comfort & a real living hope. And please know that you are so valuable to Him. You are so precious to Him. He sees, He hears. He feels far away at times & even like a stranger. But He is close to you. All you have to do is ask & believe.

We love you with all of our hearts Precious one!!!

Dawn. Rick, Hannah, Joseph



Omri
08/30/2008
05:28 h
    Shannon,
everyday we can read \ hear \see Keeghan is a superb day.
i love this picture you posted :)
Continue to be strong and supportive as you are always.
I am still praying for you, and reading here everyday ,even twice a day.

what you wrote about the " good man" thing, was overwhelming.
I can't seems to process this.
I wish i could do something to help you .



RObin Speer
 
08/29/2008
21:47 h
    Keeghan,
I wasen't going to share this with you but I think you need to know. I have actually been reading your journals for a few months now and have used you as an example several times with my eight year old son. You're sense of humor, endurance, love, bravery, and perseverance are great examples for everyone. I have also used your relationship with Max as my son has an older sister. I love how much the two of you love, support, and encourage each other. It is not your sickness that I have focused on when using you as am example it is your character and traits. You are a fine young man who loves and cares for his family and others around him, that is a trait that many parents want for their kids to possess, but not all kids do. You keep fighting and loving we are all very proud of who you are!!!

Robin Speer
St. Louis Mo



Kris
 
08/29/2008
21:40 h
    Your whole family is just amazing! You all love each other so much! Please know that you all are in my family's thoughts and prayers every single day. Please let us know if there's anything we can do for you.



Leigh Ann Erdman
 
08/29/2008
11:05 h
    To the Barry's-from Grandpa all the way to your great dog!

Words can't express what I feel about the things you have struggled through these past years. I pray frequently for a miracle for your family. The courage of children is awe inspiring and your children are the greatest inspiration I have seen. Your family has been my heroes and I continue to see strength every day as you move ahead through every obstacle. Blessings to you.



Pamela Browning
 
08/29/2008
09:19 h
    Good morning! My mom and I have been reading your blog together. She used to volunteer for Hospice in the DC area. She was ready to hop on a plane and show you how Hospice is suppose to work. We're so glad they redeemed themselves. I pray they continue to be a blessing to all of you. Mike, Shannon, Maxx, and Keeghan, we pray for you each, every day. Continue loving and living. Blessings always!


Coralia
 
08/29/2008
08:25 h
    I am so glad that Hospice redeemed itself. Way to go Carlitos!!!!.....

Thinking of you all.
~Coralia :0)



Jason and Carol Darby
 
08/28/2008
22:49 h
    Keeghan, God loves you and your family. Sometimes he shows his love in different ways, but one thing is for sure - GOD'S LOVE ENDURES FOREVER. You will always be in his graces.

My family will pray for your strength, encouragement, and the most expeditious recovery.

All the best my friend.

JBD Crew



Tami
 
08/28/2008
22:06 h
    Shannon, Mike, Maxx & Keeghan,

Just wanted to drop a quick note and let you know we are all thinking of you and praying for your family today. May your days be filled with love and peace.


dawn brown
 
08/28/2008
19:26 h
    Shannon, Mike, Maxx & keeghan,

I just wanted to drop you a little note to let you know that we check in every day a lot want you to know we are thinking about you all so much. We love you & are continually praying for you.

Joseph & Hannah pray for Keeghan lots every day & Joseph asked me to ask you to give Keeghan hugs from him. Joseph, being 10, said he wants to be sure that Keeghan knows his friends love him & he worries that Keeghan will feel lonely or afraid. I told him that you all are such an awesome family & are with Keeghan every minute so that he won't feel lonely. Then Joseph asked me if Keeghan knows Jesus. I said I didn't know & he wanted me to be sure to tell you to tell Keeghan that he is very special to Jesus & that Jesus is holding his hand & will be with him so that he doesn't need to be afraid. My little boy really loves your little boy. He has a tender heart like Keeghan & is always thinking of others. He has had a heavy heart for Keeghan & being 10, he sees things the way they are in such a wonderfully simple way where we grown ups sometimes make things so complicated & confusing. Joseph really loves Jesus & wanted to be sure that Keeghan knows that Jesus loves him.

I am so thankful for Carlos, I think that is his name. What a blessing to have someone spend time with Keeghan that will be so tender with him & uplifting. I am so glad they will be able to talk.

Please give hugs to Keeghan for us & hug one another. May you all feel God's amazing grace & His awesome Presence. He loves you more than any of us can & He alone can reach into those hurts in your hearts that are so deep. True hope & peace can only be found in Him.

All our love,
Dawn, Rick, Hannah, Joseph & Annie



Dana Venenga
08/28/2008
19:03 h



Patty McGinley
 
08/28/2008
15:02 h
    Glad to read your entry from yesterday!! It sounds like you have the right combination of hospice help right now, and I hope the experience stays positive from here on out!! Keep those precious moments coming!!! Thinking about you all!! Patty



Jonathan L. Haun
 
08/28/2008
14:26 h
    I am a Navy Officer and I work with Mike at the Carlisle conferences. More importantly, I am the father of two boys and can only try to imagine the emotional challenges your family is undergoing. My family's thoughts and prayers are with you and your family. God Bless You All, Jonathan.



Laura Hurst
 
08/28/2008
13:32 h
    I don't have anything to say...I don't know what to say. Just wanted you to know that we are tracking via the site. - Laura



Kellie DeMaio
 
08/28/2008
11:47 h
    Hi Everyone,

I just finished reading every entry since the last time Michael and I saw you at Children's. So much has happened in these last five weeks, I can't believe it. My heart is breaking. I am so sorry. I don't know what to say except that we miss you, we're thinking of you and praying for you all the time. May God give you all plenty of strength and courage to deal with all of this. You are all very inspiring and Shannon, I love your writing. There are so many times I can't put what I'm thinking or the frustration I'm feeling into words, and you just seem to have the knack. I really admire that and the strength you all have.

I know we haven't known each other very long, but the way in which we were brought together makes me feel much closer to you than anybody else I many have known for the same amount of time. Michael and I truly miss the conversations, games, movies and art sessions while the boys were all "hooked up". Having a friend there, made being at the hospital so much easier to bear. We are very blessed to have you in our lives.

So, I just want you to know that we will continue praying for all of you. Stay strong and make the most out of every minute of every day. Love to you all and give Keeghan a big hug and kiss for us. God bless all of you.

Love, Kellie


Omri
08/28/2008
05:13 h
    Hi Shannon, its good to hear you are happy with Doctor Carlos.

I was very happy to hear about the hat too.




Barbara Riggs
 
08/27/2008
22:45 h
    

We are praying for Keeghan in Wisconsin and will put him on our church prayer list. God is holding his hand throughout all of this. May you look to the Lord for strength, comfort and peace.



cheryl
 
08/27/2008
11:35 h
    Hi Shannon + Mike

Hope today's meeting with hospice folks went better than Mondays. That sounded so frustrating. And I agree with your assessment of the hospice job. Crappy job for someone to have and how exactly does one go 'there' to address issues that need addressing? I am glad she was nice--if not, I would have had to sic' my possee on her. And those 3 kids of ours can put the hurt on anyone with their constant questions and kid arguments (he touched me, she looked at me crosseyed, etc)

How's Keeghan doing with everything? Is there anything that his fans (all of us)can do for him? Send him? Get him? Bring him?

My heart is so full--words are not sufficient to express all I am feeling for Keeghan and all your family. I sat in my car at the metro garage this AM and let my groans and tears convey to God what my heart is carrying. He hears it all. He is really there. I KNOW He will send all of you who you need as you need them. It is always surprising who He chooses to send to do His work here on earth. (Like you for us during our challenge--thank you again for yoru kindnesses and a special thanks to Keeghan for the fun, companionship and model of courage he gave to Slater)
We love you guys. We haven't stopped praying, haven't given up hope, haven't stopped believing that God still can provide a miracle. We are here for you.
Be strong and courageous! God is with you always, even when it doesn't seem that way.
xoxoxoxxo
cp + family



Mary Heybrock
 
08/26/2008
21:45 h
    I enjoyed visiting your site and seeing all the love of a family together, enjoying life as it comes. I send you love and good postulates to hold you through these times. Most sincerely, Mary Heybrock



Teri
08/26/2008
17:06 h
    
Maj, Shannon, Maxx and the one and Only KEEHGAN...
May the stars carry your sadness away,
May the flowers fill your heart with beauty,
May hope forever wipe away your tears,
And, above all, may silence make you strong.
Sometimes, other people just say it better than I can. This was written by Chief Dan George, a great Native American Chief who belived in all things.

You are all in my thoughts
Teri

Chief Dan George



Billie Bowen
 
08/26/2008
14:55 h
    Barry Family, my thoughts are always with you. I am so glad Keeghan had a great time at camp. I really have a tough time expressing my feelings. but please know that I have come to care very deeply about you all, (along with a whole lot of people.) Sending you all a big hug and lots of positive engery. luv Billie and family



Omri
08/26/2008
14:36 h
    i have no words.
i logged in again, to read again. i read everything from the start, but still cant get this.

I will keep thinking about you Keeghan and your family. every day.
Shannon, im admiring you.

To the chief Musician for stringed instruments, according to the Sheminith, a psalm of David.

O Lord, do not rebuke me in your anger, nor chasten me in your hot displeasure.
Have mercy upon me, O Lord; for I am weak; O Lord, heal me; for my bones shudder.
My soul is also much troubled. And you, O Lord, how long?
Return, O Lord, deliver my soul. Oh save me for the sake of your loving kindness!
For in death there is no remembrance of you. In Sheol who shall give you thanks?
I am weary with my moaning; all night I make my bed swim; I drench my couch with my tears.

My eye wastes away because of grief; it grows weak because of all my enemies
Depart from me, all you evil doers; for the Lord has heard the voice of my weeping.
The Lord has heard my supplication; the Lord will receive my prayer.

Let all my enemies be ashamed and much troubled; let them return and be ashamed in a moment.

Pslam, chapter 6



Omri
08/26/2008
12:52 h
    Shannon, Maxx , Mike and Keeghan - I Only know you from this website, but you are an amazing pepole, to be honest, there is no single day i am not reading on your site and wants to know how keeghan is doing. even at work, i find myself going to this site, maybe to hear good news..
I am parying for you and your Family , And i hope keeghan can live as good as he can and as long as he can, despite his cancer.

Again, you guys are amazing. i have no other words for it.



dawn brown
 
08/26/2008
11:37 h
    Shannon,

You all are so heavy on our hearts. There are no words. I know there are no easy days, just lots of sweet moments together. My heart aches for you as I look at these sweet pictures of you guys & your sweet Keeghan.

We are sending lots of love & hugs today. Enjoy each special touch & moment you guys have today. What a blessed family you are to have one another.

Still praying, still hoping...

please give Keeghan & Maxx great BIG hugs from us & you & Mike hug each other for us too!!!! We love you so much!

Dawn, Rick, Hannah, Joseph & Annie

P.S. Thanks for sharing those precious precious pictures with us!!!!



patty mcginley
 
08/25/2008
21:05 h
    Hope you like the camp pictures I sent. I didn't know how to separate Keeghans out from the rest. Like I said earlier. Your family is incredible for sharing your beautiful child with us at camp. Our lives will be forever richer because he was there. Keep in touch, and know you are in my prayers.



Robin Speer
 
08/25/2008
19:49 h
    Shannon, I know that you don't even know me but I have read Keeghan's story and your family has just really been on my heart. I know, as a parent, that you probably want a gazillion prayers going up to heaven even if you don't "know" the people sending them. I want to commit to pray daily for your family. I wish I could do something more but praying is the best something I know to do. I have read that Kheegan (I love that name by the way) is a fighter, I'm praying that he will keep that fighting and very sweet spirit. I will also pray for peace and joyful moments for your family. God Bless!
Robin Speer



Coralia
 
08/25/2008
19:35 h
    I said too much...there goes that filter again....sorry.

Coralia :0)



Coralia
 
08/25/2008
19:34 h
    Fun at camp!!! how awesome!
I'm glad you had your rock star moment keeghan!....everyone should. What a funny Dog! He loves his boy!...there's nothing like a loyal, loving dog....that licks your face after licking his butt....(not that yours does, I'm just saying)
Coralia :0)



Nancy Boriack
 
08/25/2008
17:17 h
    Dear Barry Family,

There is nothing sweeter than having a good dog greet and love and welcome you home. The photo is priceless! Thanks for sharing!

Nancy



cheryl
 
08/25/2008
10:52 h
    Hi Barry Family

Have I told you lately how sweet your son is? I do love that boy!
I laughed aloud when I saw goofy dog with him! Only a boy and his dog can understand such antics!
Looking forward to seeing the camp pictures. I loved the pic of Keeghan and the horse but hope we see others that are closer up. Am just thrilled to hear he had such a wonderful time. And I think you should share Keeghan's remembrance of Kiara with her Mom. She would no doubt love to know that her precious child is still loved and remembered by more than just her.
Am glad you are all back together. I am praying for a good day today--I know it will be a challenging day meeting with hospice. I pray for strength and courage for you in that meeting and kindness, wisdom & tenderness for them to give you.
We love you guys. We are with you in spirit, in prayer, in hope, and in love.
BS & C
xoxoxoxxox
cp

Hey Keeghan,
Glad you had fun at camp!!
More groaners for you!

Q: Which dinosaur slept all day?
A: The dino-snore!

Q: How did the dinosaur feel after he ate a pillow?
A: Down in the mouth!

Q: What do you get if you cross a pig with a dinosaur ?
A: Jurassic Pork!

Q. What kind of dinosaur can you ride in a rodeo?
A: A Bronco-saurus



dawn brown
 
08/25/2008
07:11 h
    Welcome back Buddy!!!!! You & your dog look so cute...or should I say cool! Ü YOu are such a HUGE hearted boy!!! I think that is one of the gifts that God has given to you...a heart filled with so much love & compassion for others. I thought it was awesome that you were thinking about your friends while you were at camp & also about the walk. You are sure special keeghan!!!

Shannon, Mike & Maxx-so glad you are back together with your sweet son/brother. Now how about a family shot with all of you? I would love to see that!!! Ü

Praying for you & thinking about you all lots!!! We love you guys!!!! sending lots of hugs!!!!

Dawn, Rick, Hannah, Joseph & Annie



Natalie
 
08/24/2008
16:58 h
    The picture of Keeghan and the dog is priceless! Oh, to have someone so happy to see you come home! <3



omri
08/24/2008
14:01 h
    cant wait to see more pictures from the camp!! Keeghan you are an amazing kid!!!



Tami
 
08/24/2008
08:17 h
    WELCOME HOME! I'm so glad the camp week went well for Keeghan. Can't wait to see more photos, especially of the rock stars.
:) Tami



dawn brown
 
08/24/2008
06:49 h
    Good morning guys!!! Ü

God is soooo good!!! I am so excited to see these pictures of Keeghan on Eclipse. What a wonderful blessing that he was able to ride!!! Please do share the other pictures when you get them. My family is gone today but when they get home tonight they will be so excited to see them also. Hannah & Joseph keep asking me how Keeghan is. So sorry he had that episode at camp.

How is he feeling now? How are you all doing? I know we may not here from you for awhile as you will just be enjoying one another Ü Have fun together. Give Keeghan big hugs from us & let him know he is continually in our thoughts & prayers. And give one another hugs from us. We love all of you very much!!!

PLease let us know if you need ANYTHING!

All our love,
Dawn, Rick, Hannah, Joseph & Annie



Nate Copp
 
08/22/2008
22:59 h
    Hello it's Nate - just wanted to stop by and let you know that I am in constant prayer for Keeghan and continue to pray daily for him. You have not only my prayers, but the prayers of my family and my closest friends. My heart goes to Keeghan as I plead with my Savior for his recovery. "Hear O Israel! Yahweh is God! Yawheh Alone!"



dawn brown
 
08/22/2008
05:51 h
    Good morning guys!!!!

YEAH!!!!!! We are so thrilled that you got to see Keeghan last night. I laughed so hard at the comment he made. I can just see he & his daddy singing up there. The sweet way those 2 look when they are together is really special. All of you!!! Your family is special!!!

Can't wait til the kids wake up so I can tell them all about Keeghan & Eclipse. They will be so happy. We have prayed each day that he would be able to ride every day. Can't wait to see the pictures. There is something so wonderful about horses & when a horse & a person make a special connection-it is so heartwarming. We almost sent appleas along so Keeghan would have extra treats to give his horse Ü

Shannon-thank you so much for sharing your heart & thoughts with us here. You put things so beautifully. YOu have such a HUGE heart!!!! PLease give your sweet family hugs from all of us. We love you all & can't wait to see you when you get back. We would love to hear all about Keeghan's Big Camp Adventure once you get back & rest.

Praying continually for you all,
Dawn, Rick, Hannah, Joseph & Annie Ü



Kellie DeMaio
 
08/21/2008
14:47 h
    Hi everyone!
Our love, thoughts and prayers are ALWAYS with you. Please let us know if there is anything we can do. Michael and I would love to visit before school begins next Thursday. Let us know. We miss seeing you every week. Take care and stay strong. You are all amazing. All our love,
Kellie



Robin Speer
 
08/20/2008
17:56 h
    True love is selfless! Your letting Keeghan have his camp experiance, even with the heartache and pain it is causing you, is a true act of pure love. I am still praying for Keeghan and your family. I'm praying that God will strengthen you all and bless you with many happy moments. I am also still praying for a miracle, they do still happen, why not Keeghan?
Robin Speer


pam
 
08/20/2008
17:51 h
    hey guys. just me again. sorry so long since i've checked in. just been real busy. sounds like keeg is having a pretty good time at camp. great for him. hope you can get some pics to post. we have a new addition to our household. he is a turtle and his name is speedy. he actually moves pretty quick. he is about 2 inches long. derious found him when him and his aunt windy went for a walk in the woods in west virginia. not much else going on here. just want ya to know. i'm praying for ya evryday and sending good vibes your way. love and miss you all much. hold your heads high. love you, pam



Dawn Brown
 
08/20/2008
14:05 h
    Hey there sweetie!!!!

I have had little sleep & have been a praying maniac. Whenever I would see you I try to make you smile & be encouraging & not let you see the tears, but Saturday was too much. And ever since....I just want you to know that we are all praying so much for Keeghan & for each one of you.

We were praying about the horse for Keeghan & of course super excited for him & we hope he gets a few more rides in. We have been praying for you guys as well. I can only imagine how much you guys miss him. You are an amazing family!!! What a sacrifice you made to allow him to go to camp. I have been praying for you all concerning this -since saturday.

I can see his sweet face filled with joy as he is riding his horse & yet see your faces so longing to be close to him. YOu are awesome Shannon.

I wish we could all make this whole thing so away. But there are some things we can do...we can pray, we can HOPE & we can BELIEVE. We have not given up. We won't.

I know it is so hard to laugh & smile & have fun...but I am so glad you are...in the midst of your pain...you still find joy. Maxx is amazing! She is such a cutie! Keep laughing with her & when Keeghan gets back from camp...keep laughing with him. Keep seizing the days...each & every one.

We love you all & cry for you & with you. When you feel you can't lift your arms anymore & have no strength, we will lift those arms high & be strength for you. When you need an ear, we will listen. YOu are not alone. Please know that.

Love each one of you!!!! So so much!!!

Dawn



Pamela Browning
 
08/20/2008
09:40 h
    Good Morning,

Maxx is soooooo right! We too are praying for Keeghan to fight and win this battle. Always pray BIG!.....So glad to here that Keeghan is having a blast at camp. Sarah agrees, riding horses is so much fun. Sarah says that horses understand us better than we understand each other. They can sense when we need them, when we are scared, excited, happy, and sad. Very intuitive animals.....I bet it does feel good to get away from here for a little bit. Enjoy your time.........Praying, praying, praying, always!

Love,
The Brownings



Leigh Ann
 
08/19/2008
23:26 h
    I think it is pretty amazing that Mike's name means God's warrior and in one of my first messages I called Keeghan a "mighty little warrior." A neat coincidence. Maxx you are sooooo right. Giving up is not an option...for that matter I don't see any of the Barry's giving up! Still my heroes!



Sarah DeArmond
 
08/19/2008
19:10 h
    Ok this post is for Maxx,
you are so totally right. Giving up is not an option. Keeghan is to strong and to much of a fighter for us to give up. All of you stay strong and dont give up.



aunt Lynda
 
08/19/2008
18:09 h
    I went back to a post I made a long time ago because what Maxx says really hit me and so I wanted to bring it forward (actually i really want to be the 1000th post but I had to say something now)

"I also keep thinking about the "little fierce one" fighting with his whole spirit and body "cell by cell even as we speak""

Keeghan is still a little fierce one and he has the Keeghan factor working for him (as Grandad so aptly describes what the doctors dont have a really good understanding of about Keeghan - but which is so clear to those of us that know him and to the rest of the world that has been following the story). we havent talked about that much in posts of late. I think, I hope and I pray that taking him off the chemicals now will give his body a chance to do the fighting.

"Shannon, (Wise Woman) people say stupid things! Keeghan is not a statistic."

I am so-o here if you need to talk. and I am so-o there if you need an extra pair of hands for absolutely anything.

"You guys are a huge inspiration to the world community that watch this site. With your indominatable (sp?) spirits and strength as you role with every punch that has come your way so far. (there is some latin saying which I cannot remember the latin but the loose translation is "dont let the turkeys (some other not for public broadcast word actually) get you down"

I agree that God has given too much for one to bear, but I also know that the fabulous four are an immeasurably strong team.

"Maxx, (daughter of a wise woman) I am so proud of you. You are being truly amazing in the face of all this. You are holding up your mom and dad and Keeghan and that must be really hard sometimes. Dont, forget we (your extended family) are here for you whenever you need us."

Maxx your words really struck me and you are absolutely right giving up is not an option. But, stopping the meds that were hurting more than helping is not a bad thing. your brother is amazing too "cell by cell" It even sounds like some strength has already come back since stopping it.

"Mike (God's Warrior) ever since Shannon posted what your names mean I have had this image of you dressed like a medieval warrior or some futuristic knight fighting this battle and protecting and holding your family safe and together."

I still see that warrior, even now as the fight has gotten harder and harder. The rock solid wall holding the fabulous four together. I am here for you whenever, whatever, always. Big sister to the warrior angel.

much love and many huge big tummy breath hugs mixed with sobs
aunt lynda



dawn brown
 
08/19/2008
15:40 h
    hey you guys@!!

So excited to hear Keeghan got to ride his horse. Yeah!!! Go Keeghan!!! We love you guys! I LOVE what you said. We are NOT giving on that dear sweet fighter of yours!!! We are praying with you & right here cheering him "GO GO GO!!!" Can't wait to hear all about his BIG adventures when y'all get back! Shannon & Mike-YOU both are super amazing!!!!! MAXX-you are such a cool girl!!!! Have fun & enjoy one another! Thanks so much for keeping us posted to how Keeghan is doing at camp & how you all are. I have been glued to this blog in a big way! LOve you all & see you soon! Sending lots of hugs!!!!

Dawn & the Brown gang Ü



cheryl
 
08/19/2008
09:23 h
    Shannon

First--want you to know I am mentally sending you a tight, arms around and squeezing type of hug that refuses to give in or give up.

Now...Mad is OK. Sad is OK. No matter what you feel, it is OK. Normal. Expected. Allowed. Understandable. What normal person living through this would not be angry at...everything and everyone from time to time? Who would not want to scream "Shut the heck up! You have no idea". And NONE of us do. Not even if we have lost a child. Because this is YOUR (collective) child and YOUR life.

I hate that we do not have answers or explainations that can make any sense out of this. Cancer SUCKS. Every bit of it. It hurts everyone--even those who don't have it but have to watch it destroy the one who does.

There is a time to be angry, sad, melancholy, etc. Try to spend every moment you have now pursuing joy, no matter how small or fleeting. There is ALWAYS something to bring you joy--Mike, Maxx's smile, Keeghan's laughter, sunrises, birds singing, clear skies, summer rains....Each of these joys is a gift sent just for you! Not a coincidence--just for you, to encourage you! Cherish them, remember them, engrave them on your heart.

I pray for a peace for you all. I pray for strength and courage for you and Mike as you walk the hardest road any parent can know. I pray for MacKenzie and Keeghan that they have fun and silliness and tight, personal bor/sis time together. I pray for Keeghan that the fear of the unknown is transcended by a calm, a peace, that is beyond understanding. I pray he has an absolute blast at camp.
I pray that everyone that you encounter will lift your hearts and encourage you i some small way, whether they know it or not.
SS & C (Stay strong and courageous)
xoxoxxoxoxxoxo
cp



Beth Ann Spoon
 
08/19/2008
07:51 h
    Just wanted you all to know that you are in my thoughts and that I would still be stalking Keegan if I did not live so darn far away. Kiss him for me and Maxx too, you two can kiss each other but I am sending hugs for all.

Spoon



Leigh Ann
 
08/18/2008
23:14 h
    Its okay to be mad. Sometimes I get mad at God and sometimes I holler and yell. I read your latest posts and kept asking why God? Why isn't there a miracle for the Barry family. Why are the prayers of thousands of people not working. Why isn't God answering the cries of your family. I feel helpless knowing that no matter what is said, no matter what is done, it isn't enough to make it right for you. I am so sorry.



Marcy
 
08/18/2008
21:53 h
    Hey Shannon, Mike, Keeghan & Maxx, I am the "Marcy" that Brenda Atterberry told you about. You know what??? CANCER SUCKS!!!!! It was horrible to watch my husband go through this aweful, aweful disease and I can't even imagine living this with a child. BE ANGRY BECAUSE YOU'RE ALLOWED!!!!! (just don't let the anger rob you of your precious moments). For what it's worth (right now), I'll be praying for your entire family. Through our journey, I took on a life view of "Today is a gift and I'm blessed for it". I hate that so many of us wait until we have a "fatal" diagnosis to really live as we should. I hope that today was a gift and I will pray for your tomorrow.



Pamela Browning
 
08/18/2008
10:30 h
    Hi Guys,

I was catching up on your blog. I'm just crying with you and angry for you. Cancer does suck. There is no way around it. I love your honesty. I probably say that a lot. Anyway, no words, just lots of prayer, lots of tears. I love you guys.

I hope Keeghan is enjoying camp. See you when you get back.

Blessings,
Pamela



Brenda Atterberry
 
08/18/2008
09:23 h
    Shannon,
I have not lost a child but I have lost a sister to cancer. I did not get angry I felt empty as if a vital part of my life was missing. I had always been afraid of death and of dying. I never in my life thought I could watch someone die. I was there by my sister's side until the end. One of my girlfriends had recently lost a sister to cancer and I relied upon her to help me deal with the facts of watching my sister die. She answered all of my questions and fully prepared me with the expectations. I was no longer afraid and faced those expectations head on. There is a former AESers named Marcy Cornell who lost her husband to brain cancer last year. She has two young boys and is doing well. Please feel free to contact her at lilmyrt@cox.net.
Love,Ms. Brenda



mark triglia
 
08/17/2008
18:55 h
    hi guys , I'm not even going to start any of that " god won't give you more than you can ..."
stuff . As you may recall I just went through all that,and yes he does! However I will say this, I'm still here . For better or worse I'm still here.I really don't know what all this means. Shannon, I'm so so so sorry for what your going through, that I would trade places with Keeghan if he could stay here happy and healthy with you. I would.
Look it's like this , a year ago I was between a rock and a hard place. The doctor's sent
me home with no hope , they were done. I was so lost ...
I'm 38,I stumble and make mistakes everyday. Keeghan is so young and has what seems like decades of wisdom,love, and calm about himself. I wasn't kidding when I wrote on here that he's my rock. I even adopted " cell by cell " for myself. Don't get me wrong, I'm not giving up on my buddie
I'm just saying if I could save you ,Mike , Maxx, and
Keeghan from having to even go down this road, I would. It's
just so crazy unfair to have gone this far. I don't understand.

O.K. now Camp.....FFFUUUUNNNN!!
Tell Keeghan Uncle Markie is going "Resume Boot Camp" not so fun .....

all my love , mark



Tasha
 
08/16/2008
22:49 h
    I love you all SO much!!! Just wanted to say that again. =)

I know you're angry, and that's okay! But please remember that God will stand by you all no matter how hard it gets or how angry we all may be...and I'll stand by you too. I'm so grateful that I was able to know you guys, you're all such a blessing to me and to everyone around you. God bless! As always, you're in my thoughts and prayers. Enjoy camp, Keeghan!!!

Much love, Tash



Sarah DeArmond
 
08/16/2008
18:38 h
    Hey Keeghan,
Its me Sarah again. Just saying that i miss you so much right now and wish i can talk to you in person. I read your moms post for today and its ok to be scared. We all are. And Aunt Shannon you are right, god did give you more than you can handle and i dont understand why this is happening to Keeghan. He is the sweetest kid I know. Uncle Mike i hope you are doing ok right now. I know it must be really hard. Maxx, stay strong for everyone. I love all of you.
Your cousin and niece,
Sarah



Leigh Ann Erdman
 
08/16/2008
15:59 h
    I have been out of touch for several weeks and this morning I felt a incredible push (call it God) to catch up on your blog. I read it and read it again in stunned silence and then I cried and then I prayed. Shannon and Mike, my heroes. Maxx, a young lady of such maturity and grace and Keeghan, a mighty warrior, I pray for God's hand upon your entire family now and that God blesses your family with a miracle. I know that God is still in the healing business and I also know that there are miracles everyday. It is never over until God says it is over and he promises to walk through every battle with us. I wish that I had some profound words of wisdom and some words that could encourage you. I don't know why God allows some things to happen and I don't pretend to have any answers but I do know that He hears every prayer and He knows every tear as He collects them in the palm of His hand. May God speak to you in the night and comfort you in your struggles. May you feel His presense like you have never experienced it before and He covers you in peace that comes from knowing that He is God, the great I AM.



Robin Speer
 
08/16/2008
13:27 h
    "Why do bad things happen to good people?" My husband is a pastor and this is one sermon that never really has a satisfying conclusion. I do know that God was also very angry when his Son died, hence, the darkness and earthquake. I know your world is shaken right now and, your right, it's not fair!!! I am so sorry. It sounds like you have been blessed with a sweet little boy and I am praying that whatever time you have left with him days, months, or years, that God will give you quality days and happy memories. Still hoping and praying for Keeghan.

Robin Speer


Dawn McCloy
 
08/16/2008
11:02 h
    Shannon - Be angry! It is an emotion that God gave you and you should be angry - absolutely. I would be angry too. I know that this is absolutely no comparision to what you are going through, but my father died of lung cancer 4years ago and I was his primary care source. My mother refused to be involved. It was awful!!! I asked all of those same questions and I didn't understand why God had to take this great man when there were so many other men out there doing terrible things that would "clean up" our world. You know, Shannon, there is no answer that our "wordly" minds can understand at this moment. We can only pray that one day we will get it. God gave us everyone of those emotions and you are very much entitled to be angry and, you know, I am going to tell you that it is O.K. to be angry at God. BUT, you need to tell Him that and pray through it with Him. Only He can help you with that anger. He wants our whole heart - even the angry parts! I am still standing in prayer for your family! Blessings to you, Dawn McCloy



Tasha
 
08/15/2008
00:55 h
    Wow, what a night!!! I am so glad that Keeghan got to meet David Cook. David is such an amazing amazing guy! He should run for president, and have people text or call in their votes! =)

I read what Mr. Mike wrote and I think "wow". How blessed you guys are to have such a patriarch! As always, you are in my thoughts and prayers. Keep hoping for the best; as one of my friends said, "life could be better than it leads on." Stay strong, Keeghan! I'm always beside you if you need me...and even if you don't.

God bless and I love you guys!!!

~David Archuleta's future wife a.k.a. Tasha



Myleen Lankford
 
08/14/2008
18:53 h
    Hi! My prayers continue to be with Keeghan and the rest of the family. I am so happy to hear that he has a camp that he is looking forward to going to and to hear about the generous hearts of others out there. As my grandmother used to say, "keep fighting the good fight".



cheryl
 
08/14/2008
16:24 h
    Hi Barry Family

I am sitting cryig at my desk here at work crying over what Mike read. Remids me of "My Son" that Tom played on his guitar last year at the Victory Celebration. We are indeed blessed to be married to amazing men who have a strength beyond words.
You my friend have that strength too. Your post is so true, so heartfelt. I admire that you can find the strength to put in words what so burdens your heart. Thank-you for allowing us to pray for you all and to know your heart ache and to know what we can do for you.
Camp sounds fabulous. Keeghan will have a great time. Count on it.
We continue to lift you all, especially Keeghan in prayer.
Stay strong and courageous.
Much love,
Cheryl



amber
 
08/14/2008
14:35 h
    Hey, I am one of Sarah's friends and wanted to say that i am thinking about you and praying for you every single day, and so is the rest of my family. Stay strong Keeghan!



Sarah DeArmond
 
08/14/2008
14:29 h
    Hey Keeghan,
Me again. Just want you to know that all of my friends are praying for you and that I told my youth director about you and he told our church so most of my community is praying for you!
love you,
your cuz,
Sarah
p.s. Maxx, stay strong for your whole family and remeber that god is with you and so are we.


Sarah DeArmond
 
08/14/2008
11:49 h
    Hi Keeghan,
Stay strong and remember that we all love you.
love,
your cousin,
Sarah



W. Lotus
 
08/14/2008
08:24 h
    I came here from tru2myart.livejournal.com. My thoughts are with you and yours.



Angie Zitto
 
08/14/2008
07:47 h
    You are in our thoughts and prayers daily. I know our Loving Father in Heaven is watching over you. I pray that you feel his love and tender mercies daily.

Love, Angie and the Zitto Family



Omri
08/14/2008
01:56 h
    Hi Shannon! Be strong, don't let Keeghan to feel down, if this drugs doesn't do anything but to make him feel weak, and all the Sid effect problem, I think you should let Keeghan decide if he wants them or not, so he can be stronger and only use pain relief pills and or anti seizure pills.

Keep up with the wonderful caring for him.



Dawn McCloy
 
08/13/2008
20:17 h
    Oh Lord - If you can save this boy, please do. We know as Christians, that you have many reasons to call friends home to heaven. Lord, Keeghan suffers so much right now. Please let these medicines help him enjoy his life and be able to hear the words of love that so many want to share with him. You are the God of miracles, the God of Truth, the God of Wisdom and the God of mercy. I ask that you provide Mercy on this family and that you give them a shield of protection that only You can provide! Give them super human strength right now Lord! I also ask that You bring so many people into their lives that are You in skin! I pray for healing and your will, dear Lord! Amen! Hosea 6:6 "I'd rather for you to be faithful and to know me than to offer sacrifices." Bible, Contemporary English Version

WE JUST PRAY!!!



Coralia
 
08/13/2008
20:02 h
    Barry Family,
My thoughts and prayers are always with you. I'm so sorry to hear about this very difficult time. My heart hurts for you all. please let me know if there is anything we can do for you.
keep strong. we will keep praying.
~Coralia



Katy
 
08/13/2008
16:56 h
    There are no words, Shannon. Only prayers, and tears.

I remember that 14 year old perspective on this sort of pain. Please let me know if I can do anything more than continue praying for you and your family.



Michelle Present
 
08/13/2008
16:05 h
    My name is Michelle and I am friend of Tom, Cheryl and Slater Phillips. Slater and my daughter were in the daycare together as toddlers. I received an email from Cheryl today and I wanted to let you know that I am keeping you and your family in my prayers! I don't understand why things happen, but I do know that God promises to walk right beside us. I am praying that you will feel His peace and the prayers of the many people that are storming heaven on Keeghan's behalf. May God bless you!



MARK TRIGLIA
 
08/13/2008
14:54 h
    BARRY FAMILY , I'm praying for all of you right now on the hour.
I can tell a lot of people are.
Prayer helps so much , trust me I know. Plus I have more love for your family right now than any other. I'll always be here.
love mark



Renee Matos (de la Torre)
 
08/13/2008
14:41 h
    Keeghan and family... you have always been in my thoughts and prayers and I'm so sad to hear the news (Dr. Howell e-mailed me yesterday). I think about you often and wonder about how you and your family are doing in DC. I will continue to pray for you and hope for the best. I know there is an angel keeping watch over you.



Saterfield Family
08/13/2008
13:55 h
    Keeghan and Family,
We know you through BAHE, and we want you to know that you are in our daily prayers.



Robin Speer
 
08/13/2008
12:53 h
    I have been checking on Keeghan for awhile now but have never signed his web page. We had a tumor scare with my son about a year ago and in surfing the web and reading about childhood cancers I came across cancer kids website and read Keeghan's story. Anyway, I just wanted to sign his guestbook today to let you know that I am really praying for Keeghan and your family. I am, of course, praying for healing but I am also praying for the strength, peace, and grace to get through whatever lies ahead. I have read many of the cancer kids webpages and I have seen through those that miracles do happen and you can never give up. Your in my prayers!
Robin Speer



David Harford
 
08/13/2008
10:40 h
    I learned from Dr Howell of your ongoing fight to keep this cancer in check. Your family and friends support group is the best there has been. Our support from San Antonio has never wavered and is still in full force. My best and prayers to you Keeghan, and your family.
Sincerely
David Harford



Krista Magras
08/13/2008
10:23 h
    Shannon, you and Keeghan are in my prayers!



Della Howell
 
08/12/2008
15:47 h
    I'm ashamed to say that I had no idea that you all were dealing with this whole terrible journey once again. A patient's mother told me in clinic today that Keeghan had a recurrence of his tumor and that he was receiving care at CNMC. I know that he is in great hands there and that Keeghan will get the best possible care.

I've actually brought up Keeghan's name in conversation here in San Antonio a few times in the past couple of weeks, talking about his wonderful attitude and great spirit. I always tell people that he was the one that sent us the "bells" as part of our bead program here. It pains me to know that the tumor is back and that he is having to deal with the tumor and chemo side effects all over again.

I will pass along the news to the rest of the clinic and inpatient unit here at Wilford Hall.

We will be praying for Keeghan and your family and thinking of you often.



Anonymous
08/11/2008
23:59 h
    You don't know me. I came across Keeghan's page and it touched my heart so I felt the need to write this. I wish him the best. He's in my thoughts and prayers.

Stay strong.



Tami
 
08/11/2008
21:25 h
    Praying for strength and peace. This cross is just so heavy to carry. I agree with Keeghan's hat: CANCER SUCKS!



Nancy Boriack
 
08/11/2008
20:25 h
    Thanks, again, Shannon for updating us with the posts. We continue to pray for all the Barrys. You are an amazing family and we give thanks for your close relationship and the way that you continually support one another. You are amazing.

It was sad reading about the physical issues that Keeghan is facing. Your mother's heart description, Shannon, touched our hearts. We pray that these issues are temporary setbacks on the way to wellness.

I loved your description of Keeghan's "Geek basket." That is precious. When our now 26 year old Air Force 1Lt son was growing up with two Geeks/Nerds for parents we heard the "Geek" description frequently. We smiled when we read Keeghan's basket description. That is too precious.

We love you all and give thanks for you. I'm glad that you are working at home this week, Mike. Home is where you should be. Nothing is more important than being with your family.

With love and blessings,
Nancy



Dawn McCloy
 
08/11/2008
19:03 h
    I had the opportunity to meet Keeghan this past week at your local pool. Our family was visiting the Wessel family for the week and Mike and Keeghan came for a quick swim at the pool. It was wonderful to be able to see the kid they were actually praying for every single night. Every time I read your website, I cry for you! I just can't imagine your pain. We pray so diligently for a miracle and will be praying on Wednesday for the MRI! Please know that the Wessel family is an enormous spiritual resource right now. They are the ones that originally led us to pray for your sweet Keeghan. God is with your family - every step of that way! I pray that you all will be able to feel His presence! You are so strong - Shannon. You are an amazing mother, perfectly chosen for Keeghan and Maxx. God love you!

Blessings on your family - Dawn McCloy



pam
 
08/08/2008
07:55 h
    i havent checked in a long time. so many things going on. just know i am PRAYING for you all everyday. and know that i love you all very much. i will be in touch again really soon. love and miss you all, pam



Tami
 
08/07/2008
10:48 h
    Just wanted to drop a note and let you know I'm praying for a smooth chemo day. (Are Thursdays are still chemo days?) I hope and pray all goes well. :)



Andy Nelson
 
08/05/2008
11:06 h
    Keeghan,

Keep your chin up buddy. Tyler and I are pulling for you and your mom, dad and sister.



Becky Frank
 
08/04/2008
20:09 h
    Shannon and Family -

I have been following your story via this site, and my prayers and well wishes are with you all. Please know that your extended family out in California is here for you and praying for the best possible care and outcome for Keeghan.

Becky (one of your long-lost Kelley cousins ;)



Omri
 
08/04/2008
16:03 h
    Hello Shannon and Keeghan!!
I dont know you pepole in the real world, but you pepole are strong! I admire you and hope that the new drug will bring improvement.
I will be pray for you Keeghan


Cathy
 
08/04/2008
12:41 h
    Hey Keeghan!

YAY, the platelets were high enough to start the new drug! I was so excited to hear the good news on your website. I hope we can have lunch sometime soon. I tried the regular Scene It and definitely couldn't get one answer right. My husband wants to take the Disney one on since he knows he'll get all the Lion King and Finding Nemo questions right! Have a good week.
Cathy



Laura
08/03/2008
00:26 h
    You can do it keeghan! We're praying for you. Stay strong buddy, you're an inspiration to me. I know it sucks now, I've been there, but in the end it's worth it- it's gonna be fine... it's killin me not getting to see you... :(
Always liftin you up in prayer!
- Laura



Kris Lawson
 
08/02/2008
21:35 h
    You all have been on my mind a lot lately. You are in my thoughts and prayers.



Nancy Boriack
 
08/01/2008
21:15 h
    Great news that Keeghan's platelet count is up and that he can begin treatment. Many thanks for updating us.

We continue to pray for all of you as you walk through another course of chemo.

Love and blessings,
Nancy



Darlene McCoy
 
07/30/2008
10:39 h
    Mike, Shannon, Maxx and Keeghan,
We are neighbors of Tom & Cheryl Phillips and are praying for you guys. God promises to provide us with everything we need. Will pray for healing and a good report on Thursday so you can start that new medication. Know that we will constantly lift you up in prayer for strength and encouragement.



Mark
 
07/29/2008
11:21 h
    Hi i was just looking on google for my shop, Gone Fishin in carrickfergus and came across this great site..what a fantastic way to log your fun filled adventures..Good luck to you all and hope all keeps going great and getting better for keeghan..
smalls steps lead to great leaps of success



Omri
 
07/29/2008
06:56 h
    Hello from Israel,
I Wish you to be healthy as quickly as possible, You have a great family, and you are a FANTASTIC KID.
Be strong!



Rebecca.
07/28/2008
23:51 h
    I'd just like to say that Keeghan is very brave and an inspiration!
keep up with the updates, I like to read and see whats going on. Send lots of love from me!
You're all in my prayers.
Best wishes from England!
Rebecca.



Laurene Ness
 
07/28/2008
17:17 h
    Shannon, Mike, Max and Keeghan,
What a brave family you are!You have been through so much, and yet you remain so strong.As I read the part about Keeghan not asking questions anymore, and letting you parents handle everything, just shows he has total Faith in you, and knows you will make the right decisons for him, and he can concentrate on getting well.
I continue to pray for your family and thank God for giving you strength to see you through this.

Thinking of you in Minot, ND,
Laurene



Ms. Brenda
 
07/28/2008
10:37 h
    Shannon,
Keeghan is depressed. That's why he is not doing much talking. I would like to suggest that you and Mike talk to a minister, priest, reverend, etc., and then allow Keeghan to talk to that person also. Spiritual guidance can be a great dose of medicine. He may need spriritual assurance about tomorrows. It certainly helped me when my family was going through similar storms.

We will continue our prayers on this end and in all of our deployed locations. Please accept these words with love.

Brenda



mark triglia
 
07/27/2008
10:12 h
    hi guys,

I'm so glad everyone is safe now.
and that Keeghan is HOME!

I'm praying all the time for all of you.
all my love mark



Cathy Dugan
 
07/25/2008
12:37 h
    Hey Keeghan!

Thank you so much for stopping by the hospital yesterday, it totally made my day. I never get visitors! I will pray for those platelets to climb over the weekend. Have fun getting Max today and I hope to see you soon for lunch over here or wherever to hear about your Ireland trip!

Cathy


Sally Beckwith
07/25/2008
10:07 h
    I'm so sorry about all of the trials your family has been going through. It tears me apart thinking about all that Keeghan has had to deal with. He is such a great kid. (I'd say "young man", but that would make me sound ancient...) I'll keep you all in my prayers.



Peggy Kelley Daniel
 
07/24/2008
15:13 h
    Thank you so much for the great web page. My prayers are with you Keeghan. I am sorry we were not able to meet you when you came to California. But know this you are a Kelley and as a family even if we are not close or have even met you are in our prayers.



Tammy
 
07/24/2008
14:14 h
    Shannon,
I went to the other site and saw to read the website. I'm so sorry all of this has happened. The first time I saw a client seize it scared me so much. Now I deal with it daily because we have so many more people with seizures. I can not imagine what it is like to witness or find one of your family members seizing especially when it is not normal. You and the whole family are in my thoughts and prayers. ~Tam~



cheryl
 
07/24/2008
12:01 h
    Hi you guys,

I have 3 things to say:
1) whew and glad you are home
2) Thank-you God, thank-you , thank-you, thank-you
3) Please God, please, we beg of you, NO more.

Shannon,
Your blog hit me like a sucker punch. I do indeed know the sickening lurch of your heart when you are so clcse yet so helpless to change what you see/know going on. All you can do and you DID it and you DO it all the time is to BE STRONG. One minute, one hour, one day at a time. Be encouraged and stay of good heart. There are so many you know but even more that you will never know who are praying for Keeghan: families and friends and parishes of families and friends and parishes. Keeghan's strength is inspiring many to get on their knees and send prayers to God, thanking Him for their health and at the same time, asking for a complete restoration of Keeghan's health.
Be strong and courageous. DO not be terrified. Do not be discouraged. God will be with you all, wherever, whatever, through it all.
Love you,
Cheryl



Ben Borelli
 
07/23/2008
21:33 h
    We've been following your story pertaining to getting medical help. I hope we can learn all that happened and didn't happen. We are so happy to hear that Keeghan is back home. I hope your images have subsided.
Ben and Family



Nancy Boriack
 
07/23/2008
19:49 h
    Barry Family,

In addition to your very informative, heartfelt posts, Pam has been updating me and Mike's fellow co-workers. We are all praying for you.

We are thankful that you are getting much needed rest at home and that Keeghan had a good, extended rest. You are kind to keep us all informed, Shannon. You express your mother's love for your children beautifully. Thank you for your continued sharing.


Blessings and prayers to all of you, dear Shannon, MIke, Keeghan and Max.
Nancy



Myleen Lankford
 
07/23/2008
11:25 h
    Dear Keeghan and family,
We are neighbors of the Phillips family and they have been sharing your journey with us and asking for our prayers. We just want to let you know that you are in our family's prayers. We will continue to pray and hope the new treatment plan will work for Keeghan.
Myleen Lankford and family



Kirsti Garlock
 
07/23/2008
07:36 h
    Dear Keeghan and family,
We are friends and neighbors of Tom and Cheryl Phillips and their family. When times seem the toughest, know that there are many out here (even whom have never met you) who are keeping you in our thoughts and even more importantly, in our prayers. Please let us know if we can do something, anything, to help you. Kirsti and Vince Garlock



Karen Smith
 
07/23/2008
06:16 h
    My heart goes out to Keeghan and his family. I will pray for all of you.



cheryl phillips
 
07/22/2008
16:12 h
    Oh my Gosh,
This is so horrifyig to read. I was shaking with frustration over the gross incompetence you had to deal with. I am also wondering what it takes to get a 'new' neighborhood on the grid? Poor Max--this is so scary to deal with as a parent--it can only be all that and then some for a sibling. And for Keeghan to remember it all--yikes, that gave me sigificant pause as I considered events we have dealt with and me always wondering how much was remembered...
It doesn't make it less sucky for any of you but Shannon, know that I am praying mightily for Keeghan and for your entire family. And regardless of how it sometimes seems, GOD DOES HEAR AND ANSWER every single one of our prayers--sometimes he answers "wait" and that is tha hardest!
Stay strong and courageous! Keep fighting the good fight always. Every day is worth it.
I love you guys!
cp



Tasha
 
07/21/2008
10:24 h
    Barrys,

I just wanted to let you know that you're in my thoughts and prayers, as always. If there's anything that I and my family can do to help, please let me know. I feel so blessed that I've met you guys, and I can't wait to see you all when I get back. Hugs and love to everyone, especially Keeghan. May God bless you!

~Tasha



Susie Osborn
 
07/20/2008
20:50 h
    We are praying for your family and will continue to do so during these difficult days. If there is anything we can assist with, please let us know.
The Osborns (BAHE family)



Susan McIntosh
 
07/20/2008
13:09 h
    Shannon, Keeghan & family, I just heard about Keeghan going into the hospital. I have been praying for you this morning. May God hold you close.
Susan



Hannah Copp
 
07/20/2008
10:47 h
    Hi Keeghan! (and Maxx!) I just wanted to let you know that I'm praying for you and thinking about you a lot! Hannah



Laura
07/19/2008
21:33 h
    Hey, we're praying for you guys! I am so sorry about the results, keep looking up... we're praying. I'm praying like crazy... Miss you guys,

Love,
Laura (and Family)



Leigh Ann Erdman
 
07/19/2008
09:22 h
    I haven't checked your blog in several weeks and I was stunned to read about the MRI results...that just stinks (for lack of a not so politically correct word). Well, we are just going to have to pray harder. I truly believe in the healing power of God and can tell from some other posts here that others do too. Continued prayers for the entire family and I pray for "strength like eagles" (from Isaiah) to overcome the burdens that feel so heavy. The Bible says that "NOTHING is impossible for God". I capitalize nothing because sometimes we forget to take the lid off the box so God can do great things and when the lid comes off he can do amazing things. God is the same yesterday, today and tomorrow, he never changes and he is still in the miracle business. Blessings to your entire family!



cheryl phillips
 
07/18/2008
11:16 h
    Hi Shannon
Thank you for keeping us updated on what's going on with Keeghan and the family. Keep believing that Keeghan can and Keeghan WILL beat this. We are storming heaven with prayers for wisdom for the Docs and total healing for Keeghan. No brain tumor. No chemo. A long life inspiring others to be brave--which he has already done for so many.
Glad you had a fun time with you family in CA--everyone needed that I bet.
Love you guys, stay strong and courageous,
xoxox
cheryl
******************
For Keeghan and Maxx

Q. What do seamonsters eat?
A. Fish and ships

Q. Why didn't the mummy cross the road?
A. He didn't have the guts!

Q. Why did the mummy go to jail?
A. He got a bum wrap!



Dawn McCloy
 
07/17/2008
23:52 h
    Please know that you are lifted up in our families prayes daily!We were notified of your website and to pray for you by Katy and Tim Wessel. We have been friends with them for years! We will always be praying! God be with you and continue to bless your family!


Cathy
 
07/17/2008
22:49 h
    Hey Keeghan and Barry family,

I keep updated looking at the website from time to time, and keep you in my prayers nightly Keeghan. I know you can do this, it might just take time getting to the right treatment. I hope your summer is going well, and look forward to the chance of catching up. Glad to hear all is going smoothly at Children's...that new kinesiotape does sometimes work wonders!

Cathy
Cathy



Cousin Dave
 
07/17/2008
12:05 h
    Hi everyone, I have not emailed in a while but I wanted to remind you that our prayers and thoughts are with you guys. You guys are amazing, stay strong. Love, Dave,Janet,Ashley,Blake and Alyssa



Cousin Dave
 
07/17/2008
12:05 h
    Hi everyone, I have not emailed in a while but I wanted to remind you that our prayers and thoughts are with you guys. You guys are amazing, stay strong. Love, Dave,Janet,Ashley,Blake and Alyssa



Tami
 
07/16/2008
22:17 h
    Thanks for the update. Still sending up lots of prayers for all of you. I can only imagine your angst in awaiting the MRI results.
Big hugs,
Tami



LORENE POE
 
07/15/2008
16:23 h
    Hi Keegan Havent been by for quite a while, and just thought I would drop in to say Hello.I think of you quite often.
I thought of you when my editor called and wanted me to write an article about SNAKES along the coast here. I remembered writing to you about finding a snake here in the house last year. Im writing the article about the snakes because its hurricane season again, and two years ago when we had to evacuate, thousands of snakes fled high water and came into homes and stores. They found a whopper in Safeway. Some people refused to evacuate and found themselves sharing quarters with the slimy creatures, some are venomous and quite deadly.
Keep up the great job you are doing Keegan. You and your family are a wonderful example to everyone. Best wishes to all of you. What's that saying?

Be well and prosper....Best wishes to all. Lorene



Tami
 
07/14/2008
22:06 h
    Just wanted you to know I'm saying extra prayers tonight and tomorrow for a good MRI result. Go get 'em Keeghan, cell by cell!

Tami


nick schwedock
07/14/2008
19:44 h
    When I look at this website and look at y'alls life, I see a FAMILY, LIFE, DETERlMINATION & HOPE. I will continue to PRAY & HOPE. You all continue to Give more than you Receive.
Nick from Waco (Work with Aunt Lynda)
Rom 5:1-5 (hope does not disappoint)
Darren Enkine
 
07/07/2008
11:47 h
    Hi Keeghan and the Barry family! Just wanted you to know we are still thinking about you and checking in from time to time to make sure you are okay. Keep up the fight and know that we are thinking about you.
Best, Darren and Corinne
Nancy Boriack
 
07/06/2008
23:17 h
    Many thanks for keeping us informed, Shannon. Mike caught me up on Barry family events and Keeghan's current health status which I really appreciated. Thank you.
May the Lord continue to bless and keep you all-
Nancy
pam
 
07/05/2008
01:28 h
    hey guys. havent checked in on ya'll in a while. i just wanted to see how my favorite bunch is doing. sounds like youv've hit hit a few bumps, but you know you've got a lot of people praying and sending out good vibes--including me. keep up the good fight. i love you guys. miss you. love ALWAYS, pam
Tami
 
07/03/2008
21:39 h
    Have a wonderful time in California. I'll be praying the flights go well, and that you have a great visit with your family.
:) Tami
cheryl phillips
 
07/01/2008
15:05 h
    Hi Barry Family,
Sounds like the CA trip will work out well for everyone--your Mom needs you now and you wanted to visit so go, enjoy, and take lots of pics.
I appreciate your observations on the questions to ask ourselves--especially about hurting another intentionally. Which can mean not just what you DO, but what you choose NOT to do that you know you should. One's personal comfort should not be first and foremost in a decision to do the 'right' thing--but so often, folks think about themselves first and do not step out to help/comfort/bring joy to their fellow man. Good on you for calling us all out on that. Cancer has indeed changed our perspective on what matters and how we live our lives. I can only hope that those who have not walked this difficult and often heartbreaking path are learning vicariously from you what you choose to share. Every minute, every opportunity to show love to another, every human life, it all matters. I hope your honesty inspires everyone to share a kindess--regardless of the cost or discomfort (maybe physical, ususally emotional)!
I love you guys and continue to ask all prayer warriors I know to lift Keeghan and y'all. You are changing people's lives--Keeghan with his bravery and joyous spirit, the family with their overwhelming love and positive attitude. Keep your chin up and stay strong...and courageous.
xoxoxxo
Cheryl Phillips
*****************
PS
Jokes for Keeghan & Maxx:
Q. What do you call an illegally parked frog?
A. Towed (toad!)
********************************
Two molecules are walking down the street and run in to each other.
"Are you alright?" says the first to the other.
"No, I lost an electron".
"Are you sure?" says the first.
"Yes, I am positive." (+)
****************************
Q. How do you make a tissue dance?
A. Put a little boogie in it!
****************************



Coralia
 
06/29/2008
13:36 h
    Fantastic!!! I hope you have a wonderful visit. well, besides the fact that your Mom broke her hip, of course....sorry about that. I really hope you can enjoy your time there....how could you not, it's Cali.....:0) I'll be praying for you from all the way over here....and I'll be green with envy!....hehehe...:0)
Have a wonderful time!
~Coralia :0)
Tasha
 
06/29/2008
02:16 h
    Hey, Barrys! I just wanted to say "hi" from San Antonio and remind Keeghan how I'm behind him all the way. My friend here, Amanda, says "what's up". =) Keeghan and y'all are always in my prayers and thoughts.
God bless!
coralia
 
06/27/2008
14:27 h
    You are so tremendously sweet. I love how you look at life. what a wonderful blessing. I am one of those worry-warts that just can't get it together. Your words inspire me and actually relax me into just chillin intead of stressing.(for now,... tomorrow is another day....hee hee ) Thanks for taking the time to thank everyone, you are so sweet!...But really, we do love you guys and it comes easy to think of you guys, there's so much more we wished we could do.
for now, we'll keep you and yours in our thoughts and prayers! ~Coralia :0)
Pamela Browning
 
06/27/2008
00:40 h
    Shannon,

You bring me joy through the way you and your family live your lives. It would bring my sister great joy to know that her cancer story has touched your life. Thank you for sharing your trials, tears, and joy. You are a blessing to so many.
Jeff Cochrane
 
06/25/2008
21:03 h
    Mike, Shannon and Family,
Hello everyone! I'm writing to you today to let you know that our thoughts and prayers have been with you since the beginning. I want you all to know that even though we have not met Keegan, he is a very special child from what we have been reading in the guestbook. I commend you both for your strength and courage because what you are going through should never happen to any human being. Stay strong, keep believing and never give up. We love you and are fighting with you in our hearts, thoughts and prayers.
Love Jeff, Lesha and Chase.
Billie Bowen
 
06/23/2008
14:58 h
    my thoughts and prayers are always with you. Your entire family is such a inspiration to me. The way you handle everything that has come at you is truely amazing. You have made such a impact on so many people. sending a huge cyber hug to all of you!!
Billie Bowen


Ms. Brenda
 
06/23/2008
12:41 h
    Shannon,
With God, all things are possible. Trust, believe, and have faith. God will see you through this storm. He works miracles all the time. I was always told that if you told someone your dream, your dream would not come true. Stay positive, Shannon. Keep the devil and any negative folks away from you and your family. Find a quiet place so that you can talk to God. He will give you peace, understanding, and love. God blessed you with this beautiful baby boy for a reason. You have to believe that God can do all things. I pray that God remove the cancer from Keeghan's body and let him remain cancer free forever.

Love,

Ms. Brenda
Tami
 
06/22/2008
22:08 h
    Hey guys. Just checking in to see how you are all doing. How was the swim meet? Hopefully it went well.
Take care and know we are lifting you up in prayer. May God hold you close during this time.
Tami on behalf of the Lingor clan
coralia
 
06/21/2008
11:11 h
    Shannon,
My heart hurts for you guys right now......I want to be here for you. I want to tell you that everything is going to be alright, I want to take this from you and not have you worry.....But I just can't even imagine what you are going through right now........this really sucks. We will pray that this medicine will kick butt and that the Doctors will have all the right knowledge so they can Help you guys beat this faster. I'm so glad they have a plan, and that you all still have a fight....there is nothing worse than stupid doctors, (as you know).
If you ever need someone to just listen, I'm here for you. There are a lot of people that love you guys and are willing to do what ever it takes to help. I'm sure your dream was just a nightmare and a fear and nothing more. God loves life, that just CAN'T happen! Keep strong with hope and faith. We'll keep praying.
Love you guys!
The Walters....:0)
Renee Garcia
 
06/20/2008
23:03 h
    Shannon,

I am a horrible, horrible friend. Over the last month or so I have thought of you all at least once a day and I kept thinking, I HAVE to go check on Keeghan. And then the day got away from me. And I suck. I apologize.

Last night I had a dream about Keeghan and I woke up in a panic. I almost came down to read at 3am, but I prayed for you all and waited until tonight when I could catch up without the million "mommy" requests I get every day.

I was so far behind that I went back to your Ireland trip and read how it finished up. How absolutely wonderful it all sounded!!!

Then I kicked myself because I'm an idiot. Kennedy and I were in DC on May 7th and 8th. I won a Military Motherhood Award and they flew me out for a ceremony there... and DANGIT I should have contacted you! The whole experience was such a whirlwind. Again, I suck. My loss, totally.

Then I read today's post last, and now I know why I was praying. Tears are streaming down my face as I think about the fear you are living with right now. I am praying SO hard that this new drug will work... that your dream about Keeghan's funeral will be just a horrible nightmare and never a reality. Cancer sucks. So bad. I hate it. *sigh*

Anyway, I promise to keep up better. We leave in one week to fly to Philadelphia for Kennedy's surgery and we'll be there the whole month of July. Frank will be flying in from Afghanistan to be with us, thank God. But I'll be around and I'll be reading and praying. I promise!

Love you guys,
Renee & Kassidy, Kameron, Kennedy & Keeghan
cheryl Phillips
 
06/20/2008
12:36 h
    Oh Shannon,

I am aching for you all. And I won't be so naiive as to say don't worry, God has it all under control. I know that you know that but I also know you love your boy more than life itself, as does every good parent. It is understandable that you worry. But keep fighting the good fight; don't give up and don't let listen to words of discouragement from satan or anyone that he would employ to bring you down. He would have you focus on what you don't have and rob you of all the riches you do have: family, health, friends, opportunities.

You CAN do this, one minute, one second at a time. You will do it for Keeghan, and for Maxx, and for Mike, and for you--because we don't ever, ever, ever give up hope where our kids are concerned. God has pulled off the big ones before and He is capable of doing it this time, too. Keep the faith, sister. And love those babies as much as you can every minute you can. Every drop of life is precious and to be cherished.

Be encouraged, the darkest hour is always just before the dawn! I am praying that Tarceva completely blocks the growth and that even if the other drugs are not yet approved, Keeghan's docs will find a way to get them for him. I am praying God will send you a peace that comes with a confident assurance of a positive outcome, with Keeghan alive here for many, many years to come--with a healing that excedes all expectations.

Much love to you and prayers for all, especially Keeghan. Am sending this on to all my fellow prayer warriors, many whom already know about Keeghan and ask them to triple their efforts.
WE LOVE YOU GUYS,
xoxoxxoxox
The Phillips family
Joy
 
06/20/2008
07:47 h
    You don't know me, but please know that I am praying for you and your family!


Coralia
 
06/14/2008
14:55 h
    Oh, yeah. How did the surgery go? can you breathe now?...woo hoo!.....hoping for a speedy recovery and we'll keep up the prayers.....always thinking of you! Coralia :0)
coralia
 
06/14/2008
14:49 h
    OH! what a bummer!!!.....will he be able to take it again? I am so sorry, that really does suck! This year they are being overly cautious, I don't get it, they are way too strict. Did someone get hurt last year? or what? I don't get the change. Anyway, if he gets another chance I'm sure it will be different. Hope to see you soon.
......have a great day! Coralia :0)
Sam Murphy
 
06/13/2008
13:25 h
    Hi Skeleigh, I'm an old guy but my daughter jacqueline is a guide in Carrickfergus Castle and she asked me to tell you how much she enjoyed meeting you and tell you thanks for the armband.She told me and her mom all about it.
Good Luck,
Sam
Tami
 
06/12/2008
21:52 h
    I agree cancer does SUCK! Watching your boy being strong all the time has got to be so hard.

How did the surgery go?

Sending up some extra prayers for both the surgery and the MRI next week. No tumor, no tumor, no tumor.

Hope to see you soon,
Tami
Leigh Ann
 
06/07/2008
07:58 h
    I just noticed as I was typing my info into this block that I probably have three or four different e-mail accounts that I post from these days including one from Pope AFB in 2006. Definitely time to clean my electronic house! Congrats to Maxx who someday is going to impact the world with her art, you mark my words. (call it a faith thing) I would love to meet her now that she has become a young lady since the last time I saw your kids was back at Pope in 2003-2004 time frame (I think) Any way it would have been amazing to see her tile before it got sold. After following your posts for the past year or two, I am always awed by your courage, your strength and your "bulldog tenacity." (Its a good thing) The whole Barry family is amazing!
pam
 
06/07/2008
04:40 h
    hey guys just checking in. hope you had a good girl scout weekend. it was probably a really good thing for the whole family--you to spend alone time--(well, i guess not really "alone" time with a whole group of troups) with maxx and keeg getting to have his guy weekend. i know my boys love having their guy weekends. of course i don't have a daughter, so i guess i don't know what that would be like--but i bet its great. its good you all had a weekend to do absolutely nothing too. ican't remember when we had a weekend like that. are they gonna give keeg some platelets, or how low do they let them get? i'm sure you have prob. said many times my i still have "crs" syndrome. gets worse as you get older i'm sure you've heard. hope this finds you all doing great. how long is mike gone for? thinking about you all as always, and sending good vibes your way. love and miss ya, pam


pam
 
05/25/2008
02:23 h
    hey guys. sounds like ya'll have been on the go as usual. great job on your artwork maxx. you should be so proud of yourself. i am. you have put such a beautiful talent to work to do such a wonderful thing. keeg, i was unable to access your speech from work here, but i'm sure it was awesome as you are a young man of very great words. hope this finds you all doing well and having no more of the pukes. shan leaves out for across the pond today--will be back around end of sept. no more news for now. take care. love and miss you all much. love, pam
Grama Barry
 
05/23/2008
10:10 h
    How great that someone not only made a great contribution for the kids with cancer but also inspired a talented young lady to a career goal. Thank you whoever you are.
Coralia
 
05/18/2008
14:53 h
    I love those drawings. How cute. I really enjoyed the little boy sketch, so mischevious....and curious. It was so wonderful to see you. I love having coffee with you, you are a blast. I really enjoy listening to you tell your stories in person. Although your writing is very animated, watching and listening to you talk is quite a treat. ....later!
~Coralia :0)
Leigh Ann
05/18/2008
06:20 h
    BTW, I had that nose surgery about 10 years ago and it was the best thing I ever did. No more snoring, no more half congested head colds, no more sinus infections and I rarely get sick anymore. Best thing yet, the slightly crooked place in my nose is straight. I spent 15 years with consistent problems. (I swam into the side of a pool during a swim meet and busted my nose). It is well worth the down time (minimal)
Leigh Ann
05/18/2008
06:15 h
    You know what I love about your posts? You make everything so visual. As for me I usually have the cat hacking at 3 am and two dogs going after it while I try to get a towel. It never happens at a good time. There is even a Biblical about a dog to vomit but that is a whole different topic. Glad it was just a fluke and all is well. Maxx considered yourself hugged from all over the world. What an amazing young lady you are? Mike and Shannon, you have raised two great kids. It is very apparent! They were so young when you were at AE but now you can see the wonderful character and values that they have inherited. Continued prayers and blessings to the entire family.
Grandad
05/15/2008
21:30 h
    Hey guys,
We had a really great time, even if I got my butt kicked playing pool. Generous thought about the 8 ball call, but Keeghan still won. And I am pretty good at this game. Notice that Mike didn't risk taking me on! Love the story about the vomit episode (Docs get caught up in the, I wonder what that could be?) Grandads get caught up in the danger signals, so I a m happy it was ok. Now the telling of the story is artistry at its best. Shannon brings everyone into the scene. We are all there to experience the sense of danger and the humor, espescially the humor. I love it! Don't you all? 'fess up. Love,
Grandad.



Leigh Ann
 
05/13/2008
08:26 h
    Glad to see everyone is doing so well. I was TDY the last few weeks and would've loved to see the competition in VA Bch but I was in San Antonio. The comment about the teenage girl...I am tracking, the older I get the less tolerant I get of plain ole rudeness. Doesn't anyone raise polite kids anymore? (present company excluded) As always, continued prayers!
Coralia
 
05/10/2008
09:57 h
    Wow!! those cheerleaders are awful!!!....I'm sorry to hear you might have to go under the knife........and I definately agree with Maxx, you don't need a nose job!.......:0).....breathing is good....
I'm glad Keeghan is excited about his presentation with make-a-wish....that's so great.
It must be so rewarding for him.
I loved his comment about sharing a moment with you, that's halarious!!!....:0)
pam
 
05/10/2008
02:07 h
    by the way shan--Happy Mother's Day
pam
 
05/10/2008
02:05 h
    it just amazes how much stuff you always have going on in your life!! it seems that there are not enough hours in the day to accomplish everything you do! you guys are truly amazing and defineately know how to manage your time. glad keeg is doing well. hope your sinus stuff comes out good. i snore everynight and don't have a sinus prob. yours might be fixable:) tell max congrats on a season well done. i'm not sure how they came out in the end but i'm sure they did a wonderful job. cheering is a very competitive sport. a lot different from when i grew up. well, will close for now. you all take care, and don't forget to slow down for a least just 1 minute to smell the roses. love and miss you all, pam
pam
 
04/27/2008
01:47 h
    hey guys. hang in there shannon. maxx is a very intelligent girl. and you are a very great mom. it will all work out. it does sound a bit confusing about keeg's brain tumor/no tumor. keep us updated. who needs a book about ireland your pics and posts are awesome. and mike photography is great. i'm glad you all enjoyed your trip together. i think its what you really needed. will close for now. love and miss you all. praying everyday for you--pam
mark triglia
 
04/25/2008
04:24 h
    Shannon, please let me tell you that when I was in the hospital, sick at home , and when the doctors told me I'd never walk again because of the disease, the one thing that always kept me on tract, and NEVER let me down was my GUT!
And I know you....You have a great one. Stick to it, love mark

Tami
 
04/21/2008
11:12 h
    Glad to hear the pool shark is back. Go Keeghan!

:) Tami
Tasha
 
04/20/2008
01:01 h
    Sounds like you guys had a great time in Ireland! I'm glad you guys got to go. It is so great being with you guys, y'all are amazing!!! And you are all always in my prayers. God bless!

~Tasha
James, Laura and Luke
 
04/16/2008
16:17 h
    Hey guys! Just reading through the latest greatest and don't envy your Heathrow experience, although it is arguable that any extra time in London is a bonus! Sounds like you all are staying strong and your are right about the prayers that never cease -- you've got a lot of them going up with your names attached. Anyway, just wanted to say thanks for the page and keeping us all up to date...next time how about taking us all with you on your family outings...think about how many more pictures you'd have to pick from!
Jim
 
04/16/2008
10:23 h
    Looks like you had a great trip and glad to here you're still fighting strong. Best wishes and God's blessings to you and your family.
Leigh Ann Erdman
 
04/15/2008
21:45 h
    As usual, I am living vicariously through your posts. Sounds like everyone had an amazing time and on top of it, Keeghan's counts remained good. What a great end to your trip...yeah the chemo stinks.
Jack & Maxine Kelley
 
04/13/2008
14:24 h
    Thanks for sharing your experience in Ireland you have an amazing family good luck to you...Will be checking your web often as it is very interesting.Love to you, U.Jack and A.Mac

Patty
 
04/12/2008
23:09 h
    Wow, I just got a chance to catch up on everything that has been going on with you all. Sounds like your trip was lovely. Um as for the blank stares in London, thats pretty much a standard for anyone that works in customer "service" at Heathrow. Thinking and praying for you all.
Grama Barry
 
04/10/2008
11:56 h
    The pictures came through fast and clear. They are great! Felt like I was in Ireland and could almost feel the mist and the wind on my face. I will have some hard decisions for next year's calendar. Love Grama
Tami
 
04/08/2008
19:18 h
    Welcome Back! Sorry to hear about your LONG day at the airport. I loved Mike's comeback of, "which of my family members are supposed to go hungry?!!" GO MIKE!!
Call when you are rested,
Tami
Grandad
04/07/2008
21:23 h
    Shannon: Glad you guys got home safely. Gramma told me some of your story already (from a converstion with her son). I can hardly wait for the seven chapters about your return adventure. True literature in the making! Really prize winning stuff. Don't ever stop!
Love, Grandad.
John
04/07/2008
19:23 h
    Well you really did it!
I'm glad the weather was reasonable without too many of what the Irish call 'soft' days. Champ is delicious isn't it. I'm not so sure about that other irish favourite cabbage and boiled bacon. You'll have to come back and see the south of Ireland.
Tami
 
04/06/2008
20:24 h
    Glad to hear the trip is going so wonderfully. I can't wait to see all the pictures and hear more about the journey. Enjoy!
Tami


Steph, Asher's Mom
 
04/05/2008
20:54 h
    Stopping in to check on you all, and pray. Ireland looks amazing.

God Bless
Leigh Ann Erdman
 
04/05/2008
17:29 h
    Wow, you all look so relaxed and happy! Enjoy every minute of your trip while the rest of us live vicariously through your pictures and blogs.
Sandra
04/05/2008
11:58 h
    Hi There Keeghan,

Wow – it looks like you are having a wonderful time in Ireland – terrific.

I’ve never been there myself. The only place I’ve traveled to out of the country (except for a few short cruises) is Mexico. But, since green is my favorite color, maybe I should think about crossing the pond for a visit to that fair country.

My backyard has been quiet – for the most part deserted actually. Momma and Poppa cranes have made only three visits in March and that was in the third week of the month. I suspect they have an eggs or eggs in a nest. The times they did show up it was warmer than most days and they were very hungry, practically attacking the corn in my hand.

I will be patiently waiting the months it will take for a baby crane to get large enough for the parents to bring him out of ‘hiding’ and around for his first visit with us. Their last youngster was not ‘introduced’ to us until he was about two-third the size of his parents and with a strange shade of brown/tan feathers.

Spring is an amazing time of year. Our banana plant froze out in the one light freeze we experienced this past winter and our neighbor used his power saw to cut off the dead wood (down to about a foot off the ground). In the past month it has sprouted up again and the new growth is already about 5 feet tall. They will grow so fast during the warmest days, if there is enough rain, you can almost see them grow.

There are thunder boomers coming in from the west so I will have to pull the plug. I hope you continue to have a super time in Ireland. By the way – green is the color of healing!

Thinking Green all around you - Sandra
Grandad
04/04/2008
19:55 h
    Only one word immediately comes to mind; "AWESOME"
See you all next month. Don't get too tired out. We have some plans too!
Love Grandad and Grama
Beverley
 
04/01/2008
23:59 h
    "I have to say that everyone here is beyond nice. "
Didn't I tell you? :)
I'm so enjoying reading your posts and I'm glad you are having fun. Forget to tell you about the gale force winds in NI - oops. Wait 'til you get to the Giant's Causeway - talk about windy!
If you're near Queen's Uni you're pretty close to J'ames's old stomping grounds. Yum! Champ is one of my favorite dishes.
Will look forward to more posts - and the pics!.
P.S. Try to find an internet cafe - much cheaper than the hotel wifi.
nick schwedock
 
04/01/2008
19:15 h
    Ireland, wow.
have fun and our prayers are with you.
O'nick (my irish name)


Darren Fowler
 
04/01/2008
09:16 h
    What can I say, I am proud to be officially a part of this fantastic story!! Glad to hear you guys are having a good time and Ill give you all a call tomorrow to see how your doing!!

Darren
Sharon Kelley-Moss
 
03/31/2008
20:06 h
    It has been too many years...it seems i only see your mom and dad at weddings....i always ask about you. Sorry to hear about your son....but i will have you in my prayers and will say a special one at church on sunday. I know you are having so much fun and happy to see you are doing so much....i will keep checking your web site for more great news and i know there will be! Lots of love to you. Your cousin Sharon
Uncle Jack &Aunt Maxine
 
03/31/2008
19:24 h
    Just wanted to let you know we are sorry about son hope things are going great for your vacation our prayers are with you at all times. We don't hear from your Dad and Mom only at holidays. Peggy give me your web site take care and keep i n touch with us.. Love to all
Tami
 
03/31/2008
18:50 h
    Oh, how wonderful!! Enjoy, we can't wait to see the pictures. . .all 10,000 or so of them :)

Tami
Peggy Kelly Daniel
 
03/30/2008
15:51 h
    It sounds like Keeghan is having an adventure! I hope we get to see some pictures. We think of you often. I love this web page. I forwarded it over to my Aunt Mac and Uncle Jack. They did not know. Tell your dad when you talk to him he should keep in touch with family. There is nothing more important. My prayers are with you Keeghan and your family. Enjoy Ireland. I always want to go there.
I really always wanted to find that pot of gold!!!!!!!

Enjoy!
Renee Garcia
 
03/30/2008
01:23 h
    OHHHHHH I hope you guys are having a fabulous time RIGHT this second! I am praying this will be the best trip EVER for all of you! Can't WAIT for pictures! :)


Ashleigh Telman
 
03/29/2008
12:00 h
    Have a wonderful time in Ireland! I'm glad that Keeghan's wish could come true and Ireland is a beautiful place to go. Enjoy!
Leigh Ann Erdman
03/27/2008
19:43 h
    Have a great time in Ireland. Can't wait to hear the stories and see the pictures. Until your safe return.
Billie Bowen
 
03/25/2008
14:11 h
    happy belated birthday guys!!!. we had a new addition to our family on 3/13/08, Baby Faith Elizabeth was born 10 weeks early, but is doing great. Although I am dealing with the red tape Madigan army hosp. they soooo do not value grandparents like children's hospitals do. Shannon, I think of you and try to hold my temper, but when that precious baby was lying in her own puke, while the nurse was just sitting around talking, I went a little nuts, as did my daughter.
Have a great time in Ireland.
god bless. Billie and family

John
03/25/2008
13:40 h
    Well we had a little snow this week and we are just on the opposite side of the Irish Sea to where you are going so I hope the weather is better for you there than it is on this side.

All the best
Renee Garcia
 
03/24/2008
18:05 h
    Keeghan and Maxx,
I am so sorry to hear about your friend Kiana. It's so hard to be surrounded by cancer... not only your own, but the friends you meet along the way. We will be praying for Kiana's family.

Have a wonderful time in Ireland! I can't wait to see pictures and hear all about it!

Renee & The Special Ks
Kassidy, Kameron, Kennedy & Keeghan
cheryl
 
03/24/2008
11:08 h
    WOW--not sure what I did there but here's the joke:
Connie, the beautiful blonde sister, gets a radio. She only uses it in the morning. Why not listen in the afternoon or at night? asks Pierce. Because silly, it's an AM radio!

OK, so we know he may not get offered a job o SNL anytime soon but I did think it was pretty clever!
Love you guys. Am so so so so so so so so so so so so so so GLAD you are NOT at WR anymore. It is great to hear all the good feedback on CNMC. Everyone concentrate on the upcoming Ireland trip and do whatever you need to do to make sure that you have a FABULOUS time.
Stay strong and courageous,
xoxoxo
cheryl


cheryl
 
03/24/2008
10:59 h
    Hi you guys!
Just got back from spring break--our van broke down in SC (nothing is open in SC on a Sunday except churches and restaurants!) Had to spend the night before we got fixed and on our way. Finally got to FL Monday night and hit the Eglin ER on Tuesday cuz I had the same gunk as your Mom--the whole nasty sinus-head about to blow off your shoulders-aching body, 103 degree fever, wheezig chest pleasantires! Almost good to be back at work now as at least I am healthy again thanks to antibiotics.
Of course, it goes without saying that I am so, so sorry about the death of your friend Kiana. There are no words that can explain it or make the hurt more tolerable. I am happy for her that her journey of pain and suffering is over. I believe with all my heart that God reserves special favor for those He burdens so heavily on earth. It is obvious that your family was a blessing to her, as she was to you. That is our gift in life--to be able to share and bless others in any way we can. That makes God smile.
Pierce turned 14 yesterday. He hid all the eggs for Connie and jacqui. We had some bittersweet moments as we remembered Slater and Connie diving for the same egg last year and both of them upsetting their baskets!
Here's Pierce's joke he made u about his sister:
Pam Lucas
 
03/24/2008
05:51 h
    Hi Guys. Happy Easter a day late. Hope you had a good day. My thoughts were with you all day long Friday. Maxx doesn't surprise me, she is one strong young lady, Yeah Maxx. Keeghan I hope Ireland is all you want it to be. Mike enjoy your time away from the office. Shannon, I'll e-mail you soon. Thanks for looking after my kids while I'm gone, even with everything you guys have going on. I miss you guys a lot. Who could ask for better friends! Pam
Dahlia Graham
 
03/23/2008
14:22 h
    I am crying. I am lost for words. Keeghan and your family are in our prayers.

Dahlia, Samuel, Sameika and Syeirra Graham.
Tami
 
03/21/2008
07:50 h
    You are all always in my prayers, but today I say ask for extra strength and grace. May God hold each of you closely today. May His peace and love comfort Kiana's family as well.
Tami
Cindy Terawaki
 
03/21/2008
07:31 h
    Hi Shannon,
Thanks for the updates, it's so nice to hear that you all are finally taking that well deserved trip to Ireland. I know Keeghan has been looking forward to this trip. Glad that the surgery went well with the port. It has been a blessing for Troy. We fight harder everyday too and try to give Troy some normalcy as much as we possibly can. Hi to the rest of the family. Keeping you in our thoughts and prayers today.
Leigh Ann Erdman
 
03/17/2008
19:47 h
    Great news about the trip to Ireland and congrats to Maxx on the cheerleading competition. Let us know where and when it will be held in Virginia Beach and your Hampton Roads (Langley) cheering squad will show up provided I am not TDY.


pam
 
03/15/2008
02:15 h
    it has been wonderful to have such great news in recent weeks. i look forward to hearing about your trip to ireland. and maxx, you did a BEAUTIFUL job on your cake. a lot better than some adults could do. you are a very talented young lady. i will continue to send good vibes your way and look forward to your future postings shannon. love and miss you all so much. --and by the way tell mike age is catching up with him!! love, pam
cheryl
 
03/12/2008
20:03 h
    Happy Birthday Maxx and Keeghan

Hope you get amost everything you want (I have to say almost becasue 1) I am a parent so I have to provide that parent escape clause. 2) If you got everything, what would you ask for next time?
Sending losts of love and hugs but no germy kisses--just that movie star buss thing on each cheek!
Be strong and courageous and give your Mom and Dad huge hugs and lots of germy kisses for being so kind as to have you, raise you and love you beyond what words can express.
xoxoxxoxoxoxoxxoxoxoxxobuss-buss
cheryl
Tami
 
03/12/2008
09:41 h
    Happy 14th Birthday Maxx!! Only two more until you can drive. (Sorry Shannon, I don't mean to completely freak you out. I just remember that being my thought on my 14th Birthday!) Good luck at the cheer competion this weekend.

:) Tami
Renee Garcia
 
03/11/2008
19:52 h
    Mmmmm The Melting Pot is FABULOUS! I actually just went there last night for a mom's night out! Yum!

I completely agree that while you're battling cancer, everything else should just freeze in time... including bills! haha They wouldn't be able to accumulate though, it would all just have to disappear because otherwise, once the cancer is beat we'd be socked with all the other stuff just waiting to rain down... that's no good! Yes, it should all fall into a black hole... or better yet, send the cancer into the black hole. I'd much rather deal with puberty, gout, bills and acne all at the same time if we could just get rid of the cancer! Only in a perfect world, right?! I got your email! I will get you written back... I'm waiting for a moment of silence... someday! haha
Keep on keeping on!!
Renee & The Special Ks
mark triglia
 
03/11/2008
19:14 h
    hi guys , sorry to miss all the fun. I'm trying to go back to work these last 2 weeks. but I;m here now with the best belated BRITHDASY WISHES
ever!!!!!!!

I'll send some really special brithday energy
both your ways....

mr.K , great call on the birthday dinner request
my fav!

miss maxx I wanna picture!

wish me luck , working
all my love mark
Bill Hinson
 
03/11/2008
08:06 h
    Wat up peoples...it's great to see/hear how he's doing these days! Nice pics - all the smiles & good times. Take care & shoot me a line sometime.
Bill


Leigh Ann Erdman
 
03/10/2008
19:29 h
    Hurray for the awesome news! God really answers prayer and everyone is seeing a miracle cell by cell. What a great birthday gift for both Keeghan and Max. Happy Birthday to both of you! Mike must be freakin' about the possibility of boyfriends coming to the house as Max becomes quite the lady! What tremendous news, I think I will go say a prayer of thanks for your family.
Renee Garcia
 
03/08/2008
15:34 h
    Hey guys!
Long time no "talk". We have been thrown for another loop, medically, with Kennedy, so I haven't taken the time to check in here and see how Keeghan is doing! I apologize for that! Please know you've been on my mind and my heart often!!
SO here I am, catching up!!

First, and MOST importantly, HAPPY BIRTHDAY KEEGHAN!!!!!!!!!! We hope you had a great birthday week!!! We celebrate all week long here too!

WOOOOOHOOOOO about the tumor... shrinking, gone, it's ALL great! I am SO excited!!

Shannon, I agree with "picking your battles". However, we encountered the same attitude when we pulled Kennedy (and the other kids) out of our military hospital. They almost killed her twice and then couldn't understand why we didn't want to stay there anymore... gee I wonder! @@ We're actually in the same situation right now as we are going to fly to Philadelphia for Kennedy's next surgery to see the top specialist in the country. I DO almost feel guilty for not staying with Vanderbilt, which is a fabulous hospital and heck, they helped her beat cancer... BUT when the top doc in the country is willing to see your child, you do it and hope that everyone understands you HAVE to do what's best for your child. No apologies or forgiveness needed!

Moving on... I think it's GREAT that you express yourself and what you're feeling in this blog. Cancer SUCKS. Seeing your child's body pumped full of chemo SUCKS. Hearing your child's cancer is back after you thought he was in the clear... SUCKS. Watching the "healthy" kids deal with seeing their siblings sick and deal with not having the same attention they are used to from their parents and dealing with all the feelings that comes with that, SUCKS. Trying to balance yourself and give 100% to both kids, even though their needs are completely different... SUCKS. Keeghan not being able to go play with his friends, not being able to go to the mall without punks staring, SUCKS SUCKS SUCKS. It's not about sunshine and roses, if it were, then cancer would be no big deal. People need to know how to pray, and yes they will worry, but that's ok! It would be worse if they didn't know what you were REALLY feeling. Parents who have never been through this first hand will never fully understand, but they can still pray and they can still learn SO much from you. They can learn to cherish their children a little more and learn to hug them a little tighter, but they need to know the TRUTH to do that... so you keep doing what you're doing! Being a family of dorks definitely helps! haha The fact that you can always find your smile is what will keep you all going... and pity the doctors who don't find it amuzing!

Don't you love getting those bills from the hospital??? Kennedy has had HUNDREDS of THOUSANDS of dollars of medical treatment in her almost 4 years of life. I keep praying Tri-Care doesn't say, "Sorry, she's putting us out of business!" haha

Thanks for the link to "sew much comfort". I'm going to have to check it out for Kennedy... we are going to have to get REALLY creative with her clothing!

OK I'm caught up now and I've rambled way too much! I'm so glad everything is going well and I promise it won't be so long before I check in again!!
Renee & Kennedy
www.myspecialks.blogspot.com
www.carepages.com site name: KennedyGarcia
Tami
 
03/07/2008
20:47 h
    Happy, Happy Birthday Keeghan! I'm so glad to hear the good news. How wonderful to celebrate good MRI results, and your 12th Birthday!
Enjoy Birthday Week,
:) Tami
Lynn Downs
03/07/2008
16:20 h
    Happy Birthday to two great kids---Maxx & Keeghan. Have a great birthday you two.
pam
 
03/07/2008
15:50 h
    some awesome to hear about the latest developments guys. and if i remember correctly it is a week long celebration of the birthdays too, right. you keep smiling and i'll keep sending good vibes. love and miss you all. love, pam
Pastor Fredericksen
 
03/05/2008
10:29 h
    Just loading you up with more prayers--praying for the good news to be really good and the bad news to be not too bad--wearing my wristband everyday!


cheryl
 
03/03/2008
17:20 h
    Keeghan

I just had to share this with you for the next time that you have a chance to pull a joke ont he CNMC staff. Slater did it to his docs and they nearly choked!

Slater knew he had to give some urine for them for one thing or another. Him and his dad had already set the stage by using some of the items on Slater's lunch tray before the docs came in.

When the doc came in, Slater's "sample" was in the collection container on his tray. His Dad said "Slater I am thirsty. Do you have anything to drink?" Slater said "Sure Dad, you can drink this" and passed him the sample cup with the yellow fluid inside. His dad uncapped it, sniffed and said "whew, strong today" and then proceeded to drink it. The doc looked just horrified! What she didn't know is that Slater had dumped his apple juice in there before she even got in the room and since the collection cup is sterile, it was probably cleaner than the glass that come on the tray.
Hima dn his dad had a good long laugh about that one!

You were a good friend to Slater and we are very thankful you and him met. I feel the same way about your Mom for me.
Love you and praying for you always.
Stay strong and courageous.
xoxoxxoxo
Cheryl
pam
 
03/02/2008
03:00 h
    hey guys. hadn't posted in a while so thought i'd write and say hey and that i am still here and reading faithfully. think about you all and pray for you each and every day. love and miss you all. pam
John
03/01/2008
20:32 h
    Hi Keeghan

Well you're not likely to meet any Gaelic speakers in the North of Ireland but just in case you do here are a few useful phrases.

If you are somewhere with your dad then say:
'Iocfaidh an fhear seo don gach rud'

That means this gentleman will pay for everything.

If you're with your mom then say 'Iocfaidh an bhean seo don gach rud' That means the lady will pay for everything.

I am trying to think of any other usefull phrases and bearing in mind your interest in oceonography the only one I could think of is
'Tá m'árthach foluaineach lán d'eascainn'

That one means 'My hovercraft is full of eels'

Slainte
John
MARK
 
02/29/2008
21:55 h
    HI ALL, Shannon this is your oldest friend talking(and talking and talking and.....)you be sure to express yourself in the most honest way you can on this board at all times. I must tell you again how much the real deal and the real truth coming from you and all the other people (like rene garcia ect...)has helped me with my disease.

I TRULY DON'T KNOW WHERE I'D BE WITHOUT IT !!!!!!!!

Crying is o.k.... more than o.k., and of course I'm always here, love mark
Leigh Ann Erdman
02/28/2008
21:29 h
    Shannon, it is okay to poor your heart out in the blog on the good and the bad days. As for me, each time I read your posts, I know exactly how to pray that day. There are lots of folks who care a great deal for your family and we continue to laugh, cry, and especially pray. Your words show strength and courage and you have my utmost respect and admiration. Prayfully...
Tami
 
02/28/2008
15:05 h
    Shannon,

We aren't just here to laugh with you during the good times. Friends are here through the good and the bad, so please don't feel a need to censor your posts. You do a great job at sharing all sides of the cancer fight, so when it is hard sometimes that is just reality.

Yes, we worry, but only because we love you all and it is hard to see those you love hurting. It is human nature to want to "fix" it, just make it better so you can all be back to the simpler times. Each and every day I pray that God will give you what you need to make it through another day.

Stay real. That is what we all love so much about you!

Tami

Keeghan: Here's a bad joke for you. What do you get when you cross a hummingbird with a doorbell?



A real HUMM-DINGER!!

That is my father-in-laws favorite joke for the kiddos.


terri buri
 
02/26/2008
03:01 h
    Hi Shannon, Keeghan & family, Just read most of your blog, so many things are similar to our little Gage's diagnosis time. So glad you are under the best care now w/Dr.Packer & his group. Gage is thriving on the Avastin and hope that K. is also now! I will keep in touch more now, had a busy first of the year and lots of trips. When we come to DC again will get in touch. We come periodically to have a checkup there plus family is in the Md suburbs. Blessings, terri (mimi to Gage) Job 37:5
Tasha Henderson
 
02/25/2008
23:59 h
    Hi! I just wanted to comment that I'm so glad that Keeghan is doing well! Reading the posts and looking at the pictures is so amazing to me, how you all can be so strong even when everything is not perfect. Both my grandmother (in her eighties) and friend (12) had leukemia; and thankfully my friend, Jon, is living a wonderful life. To Keeghan and Maxx: you're really great, brave, kind,strong, and fun! Maxx showed me some pictures of y’all at the National Mall and you look fantastic! To Mrs. Barry: you're always so graceful, confident, and awesome...I'm so grateful I met you all. I have my own struggles with insanely bad migraines, and endured Walter Reed when I fractured my femur—though small battles compared to Keeghan’s—he inspires me to keep going. You all encourage me to be strong, even when the going gets rough. I hope I can spend more time with you guys, with all of our busy schedules. I'll bring over my Guitar Hero controller sometime. I love that game too. =) You will definitely have fun in Ireland! In short, you are always in my prayers, and I know that the Lord is watching out for you guys. Please let me know if there’s anything that I can do. God bless!
my cell number (301) 875-5854

A joke for Keeghan: it's a little corny, but all the best ones are!
Q: How do you get cool music?

A: Put your CDs in the fridge!
mark
 
02/24/2008
15:38 h
    how cute are these pictures?
just stop it , o.k.
too darn cute !!!!!
I'm moving back to walnut creek
this coming weekend. Then after
about a month of a little more rest and recovery , back to work in good ole' San Francisco
My it has been a long year and a half .Do I hear Connnie Francis singing V-A-C-A-T-I-O-N in the backround over there, Ihope I do . love mark
Leigh Ann Erdman
02/23/2008
08:28 h
    Hello Gang,
I have been swamped with work and haven't checked your blog for about two weeks. Bad me! So much happens in that short of time and by the time I caught up with the news, I was in tears. Not because the posts are bad, its because of what your family is dealing with on daily basis that a large part of the population will never understand. I cry with your triumphs and I cry with the hurts and pain. Shannon, your words sometimes pierce my heart with your emotion. I can't even imagine...but I continue to pray for Keeghan, you, Mike and Maxx. Maxx has shown amazing grace and maturity and I am sure you are so proud of her. What an amazing family you have Mike and Shannon and Keeghan is so blessed to have Maxx as his sister. Keeghan, you are amazing....brave and an inspiration.
Dr. W
02/21/2008
08:47 h
    Howdy y'all! How does that sound coming from a transplanted NYer to Texas? Just checking in to see how things are going. Great pictures! Keeghan, we are all thinking about you and hoping you are doing well with this incredible battle you are waging so courageously! Hang in there. I'm looking forward to the next MRI and hoping/expecting good news!

Best,

J. Weinberg
Tami
 
02/20/2008
10:09 h
    Shannon,

AGH! That is so hard. I know I work with my kiddos all the time to not STARE, and just look people in the eye and say hello. Sometimes not always so successful. There was this phenominal young man on Extreme Home Makeover Sunday night. He was born without eyes. He said he felt he was the one who was not disabled, but rather people with sight are the disabled ones. He went on to say that because he isn't burdened with sight, all he sees is what is on the inside of a person. While the sighted people are disabled by their visual perceptions. He is so right.
Here's sending a big hug,
Tami

PS I love your hair!


Katy Wessel
 
02/20/2008
07:44 h
    Dear Shannon,
As I've told you before, I'm one of those people who check your blog frequently, and pray for you daily. Your last post struck a nerve though. I was younger than Maxx (11-14) when I watched my mom battle(and lose, unfortunately, 25 years ago)breast cancer. I would like to give my own perspective, as a teenage "watcher" of someone close with cancer. Did I feel put out by my mom's disease? YES! Did I feel embarrassed about my mom's swollen arm and bald head? YES! Do I still have flashbacks to my mom retching at night? YES! Did I hate it when people stared at us? YES! I wanted a normal family, too. Did I say anything? NO!! But it did change who I was, and am. It made me a stronger person, and a person more sensitive to others fighting the battle. So from my perspective, both Keeghan and Maxx are different people from BC, but that's not necessarily a bad thing. In the end, I don't think you're "failing" Maxx. I never felt that anyone "failed" me (well, until my dad remarried, but that's a whole 'nother thing...) while my mom was ill. On the contrary, I watched the people I loved most rally around the mom I loved. People who were sensitive to our family's situation showed acts of kindness that weren't blatant or embarrassing, but helpful, just when we needed them. Screw those strangers! My sister always says, with a regretful tone, sentiments similar to what you've just blogged about Maxx. I feel sad that SHE feels that way about me, because really, I DON'T!! It is a terrible thing for a teenager to deal with, but I dealt!! Bad stuff happens, but I emerged, maybe not unscathed, but I'm OK! I think as long as you make sure that Maxx comes through the battle along with Keeghan, she will probably feel like she's a stronger and better person for it! These are my 2 cents (maybe 1.5 cents...). Hang tough. I'll keep the prayers going!!
Tami
 
02/17/2008
14:24 h
    Happy Birthday Ceili! Shannon just a year or so to go and she will be the perfect dog.

:) Tami
mark
 
02/15/2008
22:11 h
    hi guys , Keeghan.... man just remember cell by cell.
Shannon , you be nice to that dog , do you HEAR me !
Miss Maxx , pumpkin where ever you go is going to be even better cause your there! ( that being said I'll start praying for the latin ....)
hey Mike ( big smile ))))
Patty
 
02/12/2008
22:02 h
    It sounds like you have had a great week so far with the concert and all. I will cross all of my crossables that the make a wish trip all works out to include both kids birthdays. :)
Leigh Ann Erdman
 
02/12/2008
21:33 h
    Ireland....Ireland, ahhh, I am so jealous. I was supposed to go several years ago with REI for a bicycle trip and I ended up spending 142 days in the desert instead. What a blast you will have!! On top of it you will be there for Saint Patrick's Day. How perfect is that? Okay, gotta ask, who is keeping the dog?
MARK
 
02/12/2008
15:55 h
    WHAT A NITE!!!!!

T H A T R O C K S !!!


cheryl
 
02/09/2008
09:38 h
    "If you say it loud enough you're sure to sound precocious" (Now Mike is supposed to say "um-diddle-diddle diddle, um diddle i"!)Wow, I am having a great time seeing you and Mike as Julie Andrews and Dick van Dyke and the kids in costume too!
OK, I'm back from my giggles! I am glad to see that things are OK, that Keeghan is tolerating the chemo, that Maxx's cheerleading is on track and the Ireland trip, though sooner than expected, sounds fabulous! It would be totally cool to celebrate their birthdays there--I hope that works out.
You are all doing a great job of facing every day with grace, strength, confidence and I often read, a sense of humor. Don't sell yourself short, all that is to be commended becasue there are folks who just stop living--who see the glass half empty, who are gloom and doom, who are PO'd at the world and none of that is y'all. You do inspire us with your behavior and your words and those are a testimony to your faith, in God and in each other.
Be strong and courageous!
xo
cp
Here's our joke for Keeghan:
knock knock
who's there?
Dwayne.
Dwayne who?
Dwayne the bathtub, I'm dwoning!
Nicki McFadden
 
02/08/2008
12:03 h
    I found your blog through Renee (Kennedy's mom) and I love hearing about Keeghan and your family. I admire how strong your family is and it is very inspiring reading ALL of your updates!

We are keeping Keeghan and the rest of your family in our daily prayers.

Nicki McFadden
cp: ashlynnichole
Leah
02/07/2008
02:49 h
    Hello [i hope this isn't a buzzkill for you, i guess it's not your usual post]
i just decided to let you know that i am here. i have been reading your story for some time without quite knowing why. just recently i finally realized.
i was in hospital once, for reasons very different to those you are undoubtedly familiar with, i suffered what has been called a "brief psychotic episode". a very strange thing which i don't know the reasons for, and which i'll probably never understand. i was lying in bed watching a very small tv [which maybe you are familiar with] and a show came on about a boy with medulloblastoma, he was about six and throughout everything he had an amazing attitude and a great personality. i had never really seen the personal side to an illness before, what it means to everyone involved, and how it can end up being the least important part of their journey. i was moved and i needed to hear more stories like his. i got on the internet [of course] and i found them, hundreds of them, a side to life i had never before given a second thought but which ended up changing all my priorities. i quit the fine arts degree i was midway through [mere stimulation to curb my boredom] and decided to become a nurse. recently i got accepted into a course to become a trainee enrolled nurse.
i know that what i did and the choices i made, i made on my own, but i never would have considered them were it not for the beauty i found in stories like yours, you inspired me. keeghan sounds like a wonderful kid. through some of the twisted times i still have fighting this weird disease i think of him and kids like him and take a little bit of their strength, just a smidgeon of their fearlessness, their willpower and their sense of humour, which ends up being more than enough for me. so for all that i thank you. may you know great joy and may keeghan know great healing [as i am sure he will]
i couldn't let you go on without knowing what effect you had on me and most definitly countless others.
yours sincerely, leah

p.s. i'm from australia, ain't that crazy?
cheryl
 
02/05/2008
10:59 h
    For Keeghan from Pierce:

A native American indian went into an outhouse. He was unfamiliar with an outhouse as he had always answered the call of nature in the woods. Consequently, he met an unfortunate fate and fell in. A long time went by and a cowboy went in the outhouse and helped the indian out.
"Big Chief, how long were you down there?' asked the cowboy.
The indian answered "Big Chief know it was a long, long time cuz Big Chief saw many, many moons."

Love ya man. Stay strong and courageous. Always praying for you and your family.
xo
cheryl
cheryl
 
02/04/2008
08:35 h
    Joke for Keeghan from Connie:

Q: What are the strongest days?







A: Saturday and Sunday--the rest are week (weak) days!

Keeghan, Connie said to tell you hi and she is praying for you and asked her school class to pray for you too!
xo
Cheryl




Leigh Ann Erdman
 
02/03/2008
20:45 h
    Just got back from a TDY and got a chance to check the guestbook. After eight hour days of sitting through briefings I could have used one of those Homedics Mp3 pillows myself my numb bottom. Keeghan is styling and he looks great. Extra prayers today for you Mike and Shannon...just because!


pam
 
02/03/2008
07:16 h
    hey there gang. its good to hear your visit on the 31st went very smoothly. i hope your home health nurse has been working out great too. the pics you posted of the kids look great. i just can't believe how big they have gotten. they are so beautiful. i know you are proud of them both in soo many ways. nothing much here to say. they are about finished with our house so that will be good. now if we can just keep the cars away we'll be doing even better. hope you continue to do well with your chemo buddy. i think of you all everyday. love and miss you all very much. love, pam
Nancy Boriack
 
02/01/2008
15:21 h
    Mike, Shannon, Maxx and Keeghan,
it was great spending time on your web page today catching up. Thanks for sharing all the details and news of your journey.
I am so glad that your experience at Children's has been positive. What a blessing!
And, I know you're having fun with Guitar Hero. Mr. Joe is one of my "heros" also. He is such a good friend and a very kind, and thoughtful person.

Many, many of my prayer warrior friends are praying for all the Barrys as you walk this second journey.
May the Lord bless and keep you,
Nancy
Patty
 
01/29/2008
20:14 h
    I hope that you get the visiting nurse a permanent pass!!! The pictures of the kids from this weekend are precious!
mark
 
01/28/2008
21:46 h
    hi guys , been reading your posts everyday, and been doing some major smilin ! I just know
that all these prayers and wonderful energy sent your way is going to make it easier for you to do the job at hand. Been a little busy out here on the west coast , but your always in my heart, take care , mark

p.s. miss maxx ....great cheerleading pic!
Tanya Clark
 
01/27/2008
04:39 h
    OH, I bet you guys are loving Guitar Hero, we have it for our Wii and we LOVE it.
Remember, don't hesitate to call or come over if you need anything.
Tanya
Patty
 
01/26/2008
18:20 h
    Just stopped by to see how you all are doing this weekend. Hope everything is well. Praying for you all.



Kelly Wheeler
 
01/26/2008
12:51 h
    Keeghan, you are an inspiration to me and I'm 30 years older. Anyway, I've ordered "cancer sucks" socks to wear during my charity bike rides. This is in your honor man. Rock on! you guitar hero!!!!
Kelly
Jerrie Weatherly
 
01/26/2008
08:26 h
    Hey Guys!
Just wanted to check in and let you know I'm thinking of you, every day. Keeghan, you never cease to amaze me. You have grown up so much from that little man that used to dance in my kitchen to "Mr. Brown". And since you have turned out to be quite the pool-shark, you'll have to challenge Mr. Mason, because he thinks he is pretty good himself. Maxx, keep doing what you are doing; Keeghan is so lucky to have your strength as his big sister. You are still my "baby girl" though.
Mike and Shannon, we miss you guys so much. I hope we get to see you all soon.
Love ya,

Jerrie
Rhonda Vice
 
01/26/2008
00:37 h
    I just wanted to let your family know that we are praying for you!

Many prayers and blessings
Vice Family,
Roy, Rhonda, Samuel, Kayla, and Jacob
cheryl phillips
 
01/25/2008
11:57 h
    This is for Keeghan:

What do you call a blind dinosaur?









Answer: Doyouthinkhesaurus?

What do you call a blind dinosaur's dog?









Answer: DoyouthinkhesaurusRex?

Love you man, lots of prayers still and always coming your way!
Be strong and courageous!
xoxox
Cheryl, Tom and kids

cheryl phillips
 
01/24/2008
16:10 h
    Hi Keeghan
Here is a riddle from Pierce for you!

Where does spiderman buy his clothes?
(Answer below!)








On the web, of course!

We are praying for you and confident are prayers will be answered.
xo
Cheryl Phillips
PS--Give your Mom a big, big hug for me.
Leigh Ann Erdman
 
01/24/2008
04:51 h
    Shannon, your words touched me because no one should have to walk through what your family has, yet some families do. If your words provoke someone to love their family more, hug their children tighter or forgive their friends for some foolishness in the past then it has been HUGE. Even if your words just provoke someone to pray then your message has a big impact. No matter what you say or how you feel, your words have power and you are impacting someone every day with your heartfelt message and your words of courage. You have no idea the impact of your story. Every day friends, family and strangers check on your messages that you write looking for updates and you are giving them hope. God bless you, your family, and today I am saying a special prayer for Maxx, because she is one special kid.


Patty
 
01/23/2008
20:16 h
    I am glad that you all had a better day! I am keeping you all in my thoughts and prayers.
Phillips family
 
01/23/2008
16:30 h
    Barry family

The Phillips family loves you! We do know how challenging this journey is and are so very proud of you all for the outstanding attitude you show every day. You are in our prayers, all of you, every single night and I log on to your site a couple times of day to see what's going on at the Barry house.
Keep the faith. be strong and courageous. God is with you all through this--and we're here, too!
xoxox
cheryl (& Tom, Pierce, Connie and jacqui)
pam
 
01/23/2008
13:43 h
    hey there guys. hear you are hanging in ther pretty good there buddy. you sure are a fighter. shannon it is almost refreshing to know that you do have your "moments" because i have my "moments" when i think about my little keeg. he has gotten so big and hansome. and he is so brave and strong. you guys are such an amazing family. and i know you hear it over and over, but you genuinely are. i loved the beautiful pics of keeg and max. she has grown so much too. iam continueing to pray everyday, and i'm so glad keeg has not been having to many side effects from his chemo so far. hope that continues. sure do love and miss you guys. pam
Steph
 
01/23/2008
12:59 h
    You know, when I hug someone now, I "really" hug them. At Asher's birthday party this past weekend, the ladies would give me a hug, or I would give them one, and the way I would embrace is so different and I 'feel' it every time, now. Life is different.... Better.... Even through pain....

I hear you on the "if this is strength I would hate to see weakness"....

I found this on Henry's parents' blog (helphenry.info) last night:

Courage is not the absence of fear, but rather the judgment that something else is more important than fear.
- Ambrose Redmoon

I liked the quote.

Anyway....use the blog to 'get it all out'....

Hugs!!!

Steph
Asher's mom
Peggy Kelley-Daniel
 
01/23/2008
11:39 h
    Shannon, It has been some time since I saw you. It was Dad's Birthday when he turned 62 some 16 years ago. We received word through Brad to Cindy about Keeghan. I am so sorry the little guy had to go through this at such a young age. We may not see each other but know this your family will be in our prayers everyday!! Tell Keeghan i love his beads!!!
aunt lynda
 
01/22/2008
13:24 h
    Shannon
this note is to you. one foot in front of the other every-single-day. that is how you do it and you keep on doing it. you are the mother tiger and you are allowed the tears and then you just put one foot right down in front of the other again and you take this one moment in time because that is what we have. we Barry women (by birth and marriage) are a very strong lot and this is a hug just for you a big tummy breath hug, full of support, positive energy and prayer. let me know when i can help and how and i am there.
lynda


Kristin Cooper (Feola)
 
01/22/2008
11:16 h
    I just wanted to let you know that you are in my thoughts and prayers. I worked with Mike at Pope and had a long conversation with Miss Brenda about your family a few weeks ago. Since you started the website I have followed your journey of the good, the ugly and the bad. You are a special family, and with that bond of strength you will all get through this bump in the road. May God bless you and your family always.

Big Hugs,
Kristin
Patty
 
01/21/2008
18:45 h
    Glad to hear that Keeghan was handling the chemo ok last week. I hope he is continuing to to well. Beautiful pictures of both of the kids.
Leigh Ann Erdman
 
01/20/2008
15:14 h
    Hi Gang,
Flooding you with prayers today. After our brief bit of a snow storm that I hope you got to have fun in, I am praying for an easy time with the chemo. As always, your tremendous grace seems to keep the whole family rolling. Great pictures from November too! Following the progress with prayers and hope for the future.
Renee Garcia
 
01/20/2008
10:57 h
    Whew! I'm so glad everything is going well so far! The fact that Keeghan is feeling well HAS to help everyone's spirits! That's too funny about the PICC line and Keeghan's rambling! At our hospital we used to be able to stay in for the spinal taps and bone marrow biopsies the whole time Kennedy was out, but right before she finished treatment they started doing them on the surgery floor instead of clinic so we had to leave right after she was asleep. I can't imagine leaving while she was awake begging us not to! That would be heartbreaking! We'll be praying that picc line stays in, with no infections, and causes no problems!
I LOVEEEEE the kids pictures!! They are both so Beautiful... and Handsome!
Renee & the Special Ks
Tami
 
01/19/2008
15:37 h
    Glad to hear things went well at the hospital. I'm saying prayers that Keehgan isn't feeling too punky from the chemo.

:) Tami
MARK
 
01/19/2008
13:19 h
    HI Everyone, just wanted you to know I was thinking about all of you. Keeghan I hope your able to squeez in a little
crazy fun, some way.......
your mom & I were always very good at that ......and a special shout out to the worlds best BIG SISTER, "hey Maxx"

Mike and Shannon , you guys are
AMAZING !! SUPER BIG HUGE HUGS
to all, mark


Denise Wilson
 
01/19/2008
12:20 h
    Dear Keeghan, Mom and Dad
My name is Denise- I am a friend of George Andersons. I am overwhelmed with so much love and adoration for you and your family. What you all have endured and are still enduring is amazing. What a wonderful spirit little Keeghan has. What a fighter!!! Just by reading what I have read I tell where he gets his stamina, zest for life and willingness to persevere against all odds. My prayers are with you. If this will bring you any comfort at all, my husband and I attend prayer every morning @ 5am and this mama will be talking to Jesus about Keeghan daily.
God's Peace, Strength, Comfort, and Love be with you all.
With Love and Prayers
Denise Wilson
John
01/18/2008
20:30 h
    Hi Keeghan

Your fight is our fight. We are all pulling for you.

The old jokes are the best jokes-

There are two goldfish in a tank.
One says to the other:
Can you drive this thing?
MARK TRIGLIA
 
01/16/2008
20:38 h
    hey yall ....(I was watching paula deen ! ) I was sooo Happy to read todays posting !!!

RIGHT ON !! SO COOL !! May the BLESSINGS just keep coming. That really made my moms, dads , and my day. YES....

I'm praying for ya'll all the time. BIG HUGS, mark
Susan McIntosh
 
01/16/2008
13:32 h
    I just wanted you to know that you all are in our prayers. I have been reading about Keeghan's journey. What a brave young man he is!
Susan McIntosh
Robin
 
01/16/2008
04:25 h
    I found your site from Kennedy Garcia's and just wanted to say that you have an amazing family, and that I will be praying for you!

Sincerely, Robin Troxell
Renee Garcia
 
01/15/2008
22:58 h
    Tricare... *sigh* I have a love/hate relationship with them... and a hate/hate relationship with military hospitals. OK so here's how tricare works here... I know it can be different everywhere. Basically, our military hospital has the "right of first refusal". If they can't accomodate someone either because they are too busy or too dumb (did I say that out loud?) or don't have the right equipment or whatever they can refuse and THEN a tricare prime member can go off post.
However, they can most definitely be buttheads and say NO you HAVE to come here or tricare won't cover you. UGH!
That being said, our post hospital almost killed Kennedy. Twice. This was WAY before cancer entered the picture. The second time they blew off her 107.8 fevers... for 12 days in a row... what started as a simple UTI ended up in her kidneys and causing lifelong problems. She also became septic in the process. Very scary. The first time, well... it's a long story.
Anyway, after this second time I decided I was done with this hospital. The tricare service center told me the same thing... we'd have to go to tricare standard and pay. Nope. Not happening. SO I went to the command sergeant major of the hospital with all my documentation including every name of ever idiot (fellow) we dealt with and told them I wanted her, and the rest of my kids to be seen off post. He made it happen, and we're still prime. The only thing we pay for is co-pays at pharmacies. It's worth a shot... Hope that helps some! I'm sorry they're being so difficult. Have you had to fill out the 3rd party liability form yet? The one asking you who or what CAUSED Keeghan's cancer? Yeah, that's fun. AND have you gotten a liason yet? They're fun too... very condescending. I could go on forever, but I won't! LOL

Just know we're praying! :)

Renee & the K kids


mark triglia
 
01/15/2008
21:39 h
    HI Guys....

I think about all of you thru out the day.I pray and send energy your way knowing that
as a family anything is possible. I'm here if theres anyway I can help. love and
REALLY BIG HUGS to all, mark
Matthew Copp
 
01/15/2008
18:29 h
    First, know that we are praying for your family and especially Keeghan. Second, I recently put my son, Nathan, on TRICARE Standard in December to avoid having to go back to Walter Reed. Nathan has Crohn's Disease and I wanted flexibility to go to any hospital or doctor without a referral. As it turns out we admitted Nathan to Children's Hospital in DC for 9 days ending right before Christmas. So far, all has been smooth with TRICARE. I do expect to pay about $1150 ($150 ded and $1000 cap) by the end of the FY but the money is well worth it considering the flexiblity I've had--no referrals needed, etc. I also took out a MOAA TRICARE Supplement. Unfortunately, it doesn't apply for preexisting conditions for 6 months but is still money well-spent. Please let me know if you have any questions on these TRICARE issues--I am not an expert but am blazing a new trail somewhat out of the PRIME system. Meanwhile, blessings to you and your family. Matthew Copp 202-373-5178
Leigh Ann
 
01/15/2008
04:21 h
    Oh yes, you have to love the military health care system...home of the cheapest bidder. How very maddening for you!
Tami
 
01/14/2008
22:30 h
    AGH!!! How incredibly frustrating to deal with all the red tape, when you really just want to put your energy into getting rid of the cancer. Thank goodness Mike is so knowledgeable about the TriCare system. I'm so proud of you for sticking to your guns and being such an awesome advocate for Keeghan, it can be easy to be intimidated by the medical personnel. Keeghan isn't some cost comparative study, he is your boy!
Sending you lots of love and keeping you in my prayers,
Tami

PS How did you like the Howlin' Tornado??
Patty
 
01/14/2008
19:05 h
    Oh wow oh wow,gotta love Tricare! NOT! I am glad that you sorted out, too bad about having to pay any of it out of pocket.
Jerry Dowdy
 
01/14/2008
15:46 h
    Mike, Shannan,and Keeghan

You are in my thoughts and prayers.

Jerry L. Dowdy
HQ AMC/SGXP


Pamela Browning
 
01/14/2008
15:25 h
    Hi Barry Family,

I was just checking in on you. Your attitudes are inspiring. Thank you for always honestly sharing your joys and struggles. We are lifting you up in prayer.

The Browning Family
pam
 
01/14/2008
13:35 h
    hey there. hadn't checked in for a while. all i can say is EVERYONE is pulling for ya and you know if you need ANYTHING--and i really mean that--you know how to find us. i'll keep checking for updates and continue to send many many good vibes your way. love you all--pam
Steph, Asher's Mom
 
01/13/2008
23:07 h
    I found your blog after reading 3 other blogs. This happens to me a lot. The 4th blog is the blog God brought me to. I'm praying!! I'll check in often!

Love,
Steph
Asher's mom
http://www.asherbenjamin.net
Leigh Ann Erdman
 
01/13/2008
17:58 h
    Hi Gang,
Hope your trip went well and you are relaxed, and at peace. I have prayer partners all over the world praying for you. God is awesome and nothing is impossible for him. Blessings to you
Aunt Heather, Uncle Joe, Chandler & Jensen
01/12/2008
23:29 h
    Keeghan, you are so awesome.

We have been checking in here, so you don't get bombarded. You guys all know where we are when you need us. (Open invite to call anytime.)

We love you and are here.

Aunt Heather, Uncle Joe, Chandler & Jensen
Nancy Boriack
 
01/11/2008
21:43 h
    Dearest Barry Family,

I just learned from Rob Bowersox what you all had been going through the last few weeks. Blessings to you as you make a plethora of decisions and care for one another.
I enjoyed catching up with your family and loved the photos. You are an awesome group.

May the Lord bless and keep you and keep you in His tender care-
Nancy


Jen T
01/11/2008
20:13 h
    Hi Keeghan and family,

I found my way over here from Renee's blog...here's wishing you a great trip and the wisdom to make the decisions you need to make.

Blessings from NJ!
Patty
 
01/11/2008
16:15 h
    I found my way over here from Renee at Life With My Special K's blog. I just wanted you to know that I am praying for you all and especially Keeghan.
A fellow military wife and a mom, Patty
Sean Holloway
 
01/11/2008
15:49 h
    I'm an old TAC EVACer and just recently heard about Keeghan's ordeal. After reading his story I was angry that he has to endure so much. But, as many others have already written, I was also inspired by his courage, determination, and the way the entire family has battled this terrible disease. My family will be praying for y'all.
Mark Evans
 
01/11/2008
12:12 h
    I work with your dad and think the world of him. Just want you to know that you are in my family's prayers! I have four girls ages 19, 17, 13 and 11 and they are all praying for you and your family.

Mark Evans
Maj Leigh Ann Erdman
 
01/11/2008
11:42 h
    Shannon, Mike and gang,
I am praying daily for you, but I am praying especially hard as you make decisions the next few days. My prayer is that God gives you wisdom and courage as you make the hard decisions and that you have peace over your final decision. That the next few days are days of restoration and rest as you prepare for the next stage of the battle. Finally that you know that Keeghan is in really good hands and that his courage encourages you. (AMEN)
Renee Garcia
 
01/10/2008
23:22 h
    Just checking in to let you know we've been praying for Keeghan every day. We hope you have a nice, relaxing vacation. God bless!
Renee & The Special Ks
Kassidy, Kameron, Kennedy & Keeghan


Laurene Ness
 
01/10/2008
17:33 h
    Shannon
Jerrie sent me this and I want you to know we are praying for you and your family and hope that will God will take care of Keegan and guide the DRs hands and mind. I will put him on the prayer chain at my Church this Sunday.
mark triglia
 
01/10/2008
17:00 h
    Mr. keeghan , this is your moms friend in california, Mark.I wanted to write and tell you how much more I'm completely in awe of you . I mean to say , I've thought of you as pretty amazing to begin with......
but honestly the strength, courage , and tenacity that your displaying is humbling to me .
I'm 38(stop it Shannon)and a survivor of Inclusion Body Myositis.And to tell you the truth , I ride myself from time to time for not being as brave as you are . YOU truly are MY HERO. I don't know you personaly but, I love you. THANK YOU
All My Best , Mark
Carol Vermillion
 
01/09/2008
18:56 h
    Just wanted you all to know that you have been in my thoughts and prayers since the beginning. I will continue to pray for Keeghan and you all.

Carol Vermillion
Jim Sterling
 
01/09/2008
17:02 h
    You guys are true heros...I can't imagine how I'd react/respond if I were in your shoes, but I'm inspired by your courage. God Bless you. vr, Jim Sterling
Bill Hinson
 
01/09/2008
16:25 h
    Hey guys - wat up

I just heard today from Leigh Ann Erdman that Keeghan's tumor came back. I am so sorry to hear that - my prayer's will be with you. From all the pics I looked at, he seems to have a very positive attitude & definitely a strong will to fight this damn thing. I would be willing to bet that his courage rubs off on a lot of other people leaving a lasting positive effect.
I hope all you guys are doing well & look forward to crossing paths with you again someday.
I just returned from a 6mth stint in Afghanistan & am trying to get settled back in here. I walked into my new job as the Readiness Flt CC upon my return, and am looking forward to that opportunity.
Anywayzzzz guys, take care, and stay in touch...
Bill
Maj Leigh Ann Erdman
 
01/09/2008
13:13 h
    Your family is still my "family of heroes." I am praying again for all of you as the family works together to "kick butt" again! You are examples of a family whose faith, love, and sense of humor causes you to keep rising above the rest! God bless you.


Ron George
 
01/07/2008
10:32 h
    Many thanks for your Web site. I have added Keeghan to my prayer list, and with your permission would send his name to an extensive prayer chain managed by a friend of mine in Austin, Texas. Blessings and peace to you, courage and Presence. Ron George
Renee Garcia
 
01/06/2008
19:24 h
    Hello! I stumbled across your site and thought I would say hello! My name is Renee, my husband Frank is in the Army. We have a son named Keeghan (he's 8 months old) and daughter named Kennedy who is in remission with Leukemia. We also have 2 more kids, Kassidy and Kameron. Anyway, I just wanted to let you know we will add Keeghan to our prayer list. Cancer sucks! We look forward to following Keeghan's journey as he kicks cancer's butt! God Bless!
Renee & kids
www.myspecialks.blogspot.com
www.carepages.com site name: KennedyGarcia
Sandra
01/05/2008
12:59 h
    Hi There Keeghan,
I was writing a scene for one of my on going manuscripts this morning and I thought maybe for a change you might like to hear about another critter I’ve known in my life.
Years ago when we were living at our previous home, a more rural setting, the following incident happened when my youngest stepdaughter, nicknamed BeeJay, was living with us during the summer of her 13th. Year.
Wanting to please her we bought a horse at her request. He was a Blue Roam Appaloosa with a gentle but stubborn temperament, an insatiable appetite and (lucky for us) a cast iron stomach.
One weekend that summer I purchased a huge watermelon. The fruit was at its absolute peak of ripeness and I realized that after stuffing ourselves with as much of the sweet juicy fruit as we could hold, the remaining quarter would probably go to waste.
I told BeeJay to take the icy cold treat down to the pasture and see if Sundance would eat any of it. He liked most fruit but we had never given him any watermelon before. She asked me how she was supposed to feed it to him. I told her to just scoop handfuls out of the rind and let him eat it out of her hand.
Just a few minutes later she returned empty handed and with a strange look on her face.
I asked her, “Did Sundance eat some of the watermelon?”
“Some!” she replied. “He ate the whole darn thing, rind and all!”
It seems he had taken one whiff of the fragrant treat and snatched the entire quarter of watermelon right out of her hands.
(He was not the most well mannered of our ‘pets’.)
John
01/04/2008
09:18 h
    Keeghan's a guy that's really cool
When the other kids go off to school
Oh where is he?
Where will he be?
He'll be in the garage playing pool.
Nathan Copp
 
01/03/2008
17:48 h
    I am sixteen years old and live on Bolling AFB. I have been struggling with Crohn's disease for several years. I have endured the hospial stays, so I can sort of relate to some of your experience. However, Keeghan's story really encourages me in me own struggle. It is really amazing! God be with you!
Natalie
 
01/03/2008
14:39 h
    I came here via Penny from LiveJournal and ever since reading her post on your family this morning, I have been catching up on your journey. Needless to say, I've been reading for HOURS. Thank you for sharing your story.

I've always been terrified of cancer and surprisingly, your story has made me a little less anxious about it. To see your family grow and thrive and smile through this fight of your lives is inspiring. I see now that there IS life in living with cancer. And LOTS of it!

I know with the latest news that you must be feeling like you're scraping the bottom of the barrel of resilience, but, as you know, when it's something worth fighting for, the strength can always be found. We're all out here sending as much of our own to you as we can. Lie back and listen carefully and you'll hear us.

St. Simons Island, GA


Rob Bowersox
01/03/2008
09:38 h
    Keeghan - We're all pulling for you, you're fighter and I know if anyone can beat this...you can. We're praying for you and the entire Barry family, let me/us know if there's anything you need or can help with.

Rob Bowersox

Teri Soto
01/03/2008
09:23 h
    Keeghan,
You are the true form of a warrior brave. You fight against an evil that you cannot see and your heart makes you victorious. For such a young man you are a great teacher of bravery and courage. In the words of Native American Chief, Charles Alexander Eastman(Chief Ohiyesa) "The brave man, we contend yeilds neither to fear nor to anger, desire, nor agony. He is at all times the master of himself; his courage rises to the heights of chivalry and a powerful spirit that only a true warrior will truly know." You are that brave and willful warrior and I am proud of you. You and your family are in my thoughts and prayers.

Teri Soto and Family
Pamela Browning
 
01/03/2008
09:16 h
    Hi Barrys,

You don't know us well, but we're just down the street if you need ANYTHING. Dog sitters, cat sitters, a cup of sugar, a stick of butter, ANYTHING. We're lifting you up in prayer.

The Brownings
kathi Garner
 
01/03/2008
09:10 h
    Hello Keeghan,
I am a new employee working with your dad and I just learned about your illness. I wanted to let you know that I am praying with you and your family, and I belive God hears and knows our prayers. You keep praying and looking to God for your joy, peace and strenght. I love your smile!! stay in encourage like the solider you are. God Bless you, mon, dad and sister...
Col Rudy Cachuela
 
01/03/2008
08:49 h
    I do not believe we have met yet, but I am the new Director, Medical Readiness. The entire directorate is pulling for Keeghan and the entire Barry Family. If there is anything we can do to help support you all, please do not hesistate to ask. We will keep you all in our prayers. - Col Rudy Cachuela
Joe Haggerty
 
01/03/2008
08:30 h
    Keeghan, Maxx, Shannon, and Mike,

I know that the news that you received yesterday must have been like a "punch in the gut"; I'm so very sorry and unhappy and mad, all at the same time.

I still believe in the power of prayers because I believe that God has a plan; especially for Keeghan! He's already shown us that life is meant to be lived day by day and he's an inspiration to all of us; "Cell By Cell!"

If there is anything I can do besides pray; financial, time, work, hand holding, sitting, etc, etc, etc...all you have to do is say the word and I am there! More than that...the entire Haggerty family is there!

Joe, Shauna, McKenna, Marissa, Megan, Bella(horse), Dee(horse), Babs(dog), Sugar(dog), and Peppers(cat) Haggerty

1023 Suffolk Drive
La Plata, MD 20646
(301) 934-0316 home
(210) 857-8831 cell
(202) 767-5588 work
afjoe1@aol.com Joe's email
dzdoo@aol.com Shauna's email
mckenna.haggerty@gmail.com McKenna's email


Stephanie Van Hoose
 
01/02/2008
23:40 h
    Was reading your home page - You are an amazing woman with strength that leaves me speechless- all of my prayers are yours -- if there is a need just put it out there and I will do everything I can to get it done- I am full of resources as is all of BAHE --Blessings and free mary kay if you need it!
Tami Lingor
 
01/02/2008
21:28 h
    Praying like crazy. Call or e-mail if you need anything.

Tami
Sandra
01/02/2008
15:50 h
    Looks like I was the first to post in 2008 - at last - I'm first at something!!!
Sandra
01/02/2008
15:48 h
    Hi There Keeghan,

Christmas just flew by and here it is another new year. It’s been quite a while since I wrote you last and I guess it is high time I got you caught up with what’s going on in my back yard.

The Mallards are back again this year. Of course, I have no way to telling if they are the same ones, except that they had no trouble finding the corn I put out for them. We have about two dozen here every morning waiting for breakfast at day break along with our usual four resident ducks, Cranes, etc.

We bought a small bench for me to sit on while hand feeding some of my favorite cranes so now I tend to spend a bit more time with all my back yard critters.

The most interesting addition to our mini-zoo is a rather crazy little squirrel. He started coming around several months ago when he was quite small – looked like just a baby or maybe a squirrel ‘teen’. I noticed his coloring was a bit odd. He is mostly grey with areas of reddish coloring on his coat.

He would wait patiently, ten to fifteen yards away, for me to leave and then come in for his share of whatever corn kernels he could snatch from under the Cranes watchful eyes.

Well, about two months ago he was waiting up by the house (those ten yards or so away from my bench) while I was feeding the Cranes and he must have got tired of waiting for me to leave.

Without warning me made a mad dash aimed straight at me. Kicking up a small dust cloud, twigs and dry leaves flying, he was little more than a blur of fur as he bore down on me. I screamed, the cranes flapped their wings jumping in the air, corn flew and I threw my legs aside trying to avoid a collision with the crazy little rodent. He skimmed my pant leg and continued under the bench and up the oak tree behind me.

That was the end of that feeding session. Not knowing whether or not the critter's strange behavior had to do with some sort of illness or not (rabies?) I retreated into the house and watched out for him in succeeding days.

Weeks went by and he seemed perfectly normal, except for his rather bold behavior. Then he repeated his strange attack at which point I nicknamed him, Kamikaze Squirrel . I began watching out for him and I would throw him corn while I was feeding the birds. This seemed to appease him.

One of the oak trees behind my bench had a rotted limb which we had removed several years ago. The stump of this limb is slanted, about 12 inches across and has a small hole in it. Now every day Kamikaze waits for me (along with the Mallards and Cranes) to bring his breakfast. He hangs upside down on the tree trunk and waits for me to fill his ‘bowl’ on the tree. He lets me get within a foot of him and I am going to start taking a peanut with me each morning in the hopes that he will eventually take it from my hand.

Well, that’s all the latest from my backyard zoo. I hope you are doing well and I wish you a wonderful New Year!

Your friend in Florida, Sandra
Laura
12/30/2007
23:59 h
    Hey, I'm praying, and I've got my world (literally, world, norway, maryland, new mexico, cali, germany... ) of prayer warriors praying too. You'll make it through this. And I know you will because Keeghan is amazingly awesome and is always so possitive, he's gonna be ok and so are you all.

~ Laura <><.
Jerrie
 
12/27/2007
18:08 h
    All my love, all my prayers, all of me, for all of you.

If there is ANYTHING I can do, you know that I am here.

I love you all,

Jerrie


Brenda Atterberry
 
12/27/2007
10:33 h
    There are always hope and faith. I believe in both. I wish hope and faith for you.
pam
 
12/26/2007
05:59 h
    sorry to hear about the mri results. you know i am sending very good vibes your way. the kids look so happy in the Christmas pics. i'm so glad they enjoyed it. and keeg looks like quite the pool shark. he'll have to give shan a run for his money if we are able to ever get together sometime. it seems we are so close, but with our daily lives, so hard to get together. i might be switching to a mon-fri job, so that may make it a little more workable. will be praying for you and yours have a very happy new year. love and miss you all much, pam
Billie Bowen
 
12/20/2007
22:31 h
    Hey gang, my thoughts and prayers are always with you. Hang in there, you will get through this. You are the most amazing family. God bless.
Billie & family.
john
12/20/2007
08:53 h
    I've still got my fingers, eyes and legs crossed for the mri. do post as soon as you can with good news. I can manage with my fingers and eyes crossed but having my legs crossed makes it difficult to . . . . . and I have been like it for four days now
Jerrie Weatherly
 
12/18/2007
19:21 h
    WHOO-HOO! Can't wait for you to get here! Give me some dates if you have them, so I can start planning.
Love you guys,

Jerrie
pam
 
12/08/2007
03:43 h
    looks like ya'll had fun putting up the tree. and really in the spirit with your hats and all. that is so neat about stories with all the ornaments--sounds a lot like our tree too. i can't believe how big your ceili has gotten. is that as big as she will get now?. does she eat a lot? i hope you all have a very Merry Christmas. love and miss you all so much. think of you all every day. love, pam


John
12/06/2007
14:20 h
    Hi Keeghan

I liked the Christmas tree pictures but mostly I enjoyed seeing you look so well. I'm back in Prague but I go home tomorrow. I hear you have snow in Washington. The little we had here has gone.

Amanda Coldwell
 
12/05/2007
02:08 h
    Hi
Just been looking through your site after finding you on Ebay.I will keep a regular eye on here now to see how things are going.You all take care
Amanda x
pam
 
11/23/2007
05:47 h
    i am so glad you all are having such a wonderful Thanksgiving. there truly are so many things to be thankful for and i know you are thankful for them each and every day. so did mike cook the turkey? you know shannon, it is good for you to vent, and all the things going through your head are probably all the same things that would go through my head if i were ever in your situation. i hope this finds you all doing very well--good vibes are being sent your way. love and miss you all very very much
Nancy Boriack
 
11/12/2007
14:01 h
    Wonderful news about the port removal. I'm sorry that your day at Walter Reed was LONG but thankful for the outcome! We are thankful to all of you and have been blessed by reading your journey.

Blessings,
Nancy
pam
 
11/10/2007
03:12 h
    hey guys. sorry its been so long since i checked in. it sounds like thinks are going great! i couldn't be happier for you. i'm glad keeg has gotten his port out now. sorry he had such a long day. shan's surg went the same way there. i was surprised at the number of civilians working there. i thought there would have been more active duty. anyway wooo hoo for keeg. i can't believe the holidays are coming so soon. have ya'll got plans. take care. love and miss you all. love pam
John
11/03/2007
08:04 h
    Hi Keeghan
It's a super sunny day here in england - must be about the third sunny day we've had in 2007. I hope your Washington weather is just as good and you are doing well.

All the best
John


Grama Barry
 
10/23/2007
14:16 h
    Hi Keeghan, Grandad conveyed the good news that the Port Is OUT!!! How great that must feel. Now you can hang out with your friends and not worry about infections and stuff. Love to all Grama
Debbie
 
10/18/2007
00:58 h
    I came across your website while doing some research for a program at our elementary school called "Everybody Counts". Your story is full of hope & Keegan is an amazing kid - surrounded by a pretty amazing family! My prayers are with you all for a happy & healthy future!
Dr. W
10/08/2007
19:00 h
    Hey Keeghan - takes a big man to get up in front of a ton of people and do what you did! I'm sure you made your entire family proud! Keep up the great work and don't forget to keep in touch with your Houston team and family!

John
10/01/2007
13:48 h
    Hmmm I meant an American ex port

Ok still not that funny
john
09/30/2007
15:56 h
    Keeghan your tough battle
bravely fought,
Has left me with a funny thought
They fiddled about
and they took it out
And made you an American export.
pam
 
09/30/2007
01:21 h
    hey there bud! great news on getting your port out. it has been a long time coming. it has been beautiful here. can't wait for the fall colors. derious had his first soccer game today. they had a 0-0 tie. he had a pretty good time. he just doesn't like all the running. checked out your pics from camp. was the balloon ride scary? i'm not to fond of heights. well, will close now. just wanted to drop a couple lines and let you know you are in my thoughts and prayers. love and miss you much, pam


Sue Farley
 
09/26/2007
21:33 h
    Hello All:
This has come as quite a shock. I know it's a little late, but I will put you all on my church pray chain. It looks like Keeghan is indeed a champion and is on the road to total recovery. What a blessing.

May God continue to watch over you all.

Sincerely,
Sue Farley
Mark Paul Triglia
 
09/21/2007
17:34 h
    SHANNON , HI IT'S ME HONEY
PLEASE DON'T BE MAD
SEND ME YOUR CELL
SO I CAN CALL
LONG STORY( N0 I WASN'T
IN JAIL)

KEEGAN YOU DON'T KNOW ME, BUT I'M A VERY OLD FRIEND OF YOUR
MOTHERS, AND TONITE BEFORE I SENT THIS E-MAIL I READ YOUR STORY. I'M EXTREMLY PROUD OF YOU AND VERY IMPRESSED!ALMOST A YEAR AGO I STARTED A BIG JOURNEY
AT THE HOSPITAL JUST LIKE YOU ,
AND LET ME TELL YOU IT HASN'T BEEN EASY. SO YOU CAN IMAGINE
WHY I THINK YOUR SO AWESOME, I'M 37 AND FIND IT HARD .AND THERE YOU ARE HANDLING THIS WHOLE THING LIKE A CHAMP. WOW
YES I KNOW YOU HAVE A PERFECT SUPPORT TEAM.

SHANNON,MISS YOU , TELL YOUR MOM HI FOR ME , AND E-MAIL OR CALL, PLEASE

XXX.XXX.XXXX/SFO69MPT@HOTMAIL.CO

P.S. I REALLY DID JUST GET MY HANDS ON YOUR CONTACT INFO TODAY
LOVE MARK
pam
 
09/15/2007
07:22 h
    hey there guys. how are ya'll doing? hope this finds you all well. all is good here. how is school going? we will be in dc oct 27-31 if i haven't already told you. i am VERY absent minded--i was hoping mine would improve with age instead of get worse like most people, but i think i am in SERIOUS trouble!! that will be write around halloween. shan likes to drink his brewsy and pass candy out, but i don't think he will feel like it this year. halloween is his favorite holiday--better than Christmas. again i hope this finds you all well and hope to see you all soon. love and miss you all much, pam
Vinod Gidvani
09/07/2007
18:29 h
    I'm glad you're doing well. You look great. We all miss you over here in hot Texas

take care
Dr G
Angie Hudson
 
09/07/2007
18:21 h
    Oh my goodness,you are even more handsome with hair.I am so glad that you are doing well,I miss you!! I am still in school trying to finish my LVN-RN mobility program,eight more months to go.
You are in my thoughts and prayers Keeghan.Tell your family I said hello.
Love Ya,
Angie Hudson
David Harford
 
09/06/2007
14:43 h
    Keeghan, I am glad to hear you made it to the beach in Ocean City. Part of my family was there the week before you (while I was working of course). Your dad was in clinic yesterday. By the way, cool photos at the Ravens game. Enjoy school and talk to you soon. Say "hi" to your mom, dad and sister for me.

Dave Harford


pam
 
09/01/2007
01:59 h
    hey gang. just checking in on ya. its been a couple weeks. we will be in d.c. area oct.28-30, so maybe we will have the chance to see ya. we will be at walter reed, so can't remember how far you said you were from there. it has finally started cooling down here. derious is back in school and doesn't like it--boy is it gonna be a long year. sighned him up for soccer but haven't heard anything yet. hope all is good with you guys. think of you all the time. love and miss you much, love, pam
Dave Kennedy
 
08/27/2007
18:20 h
    Great family photo Shannon! Looks like a professional took it. Haven't been on the site for a while, but still remember all of you in my prayers daily. Sounds like a great ending to summer, so let's hope for a great fall too. Say hi to Mike, Max and our hero Keeghan.
Dave
pam
 
08/22/2007
15:41 h
    hey guys. sounds like ya'll have been BUSY!!! and keeg--gettin' your pic taken with those hot chics. bet you have a lot of jealous guys looking at ya. was the game good? bet it was ablast just to be there. still been hot and dry here. shan was sent to tx to evacuate pt's for the hurricane, luckily it hit further south than expected. he just made it home today. no more news here. take care love and miss you all. love, pam
John
08/20/2007
18:29 h
    I am so pleased to hear the MRI went well. I have now uncrossed my fingers, my eyes and my legs. Keeghan you must be a real VIP in the USA I think in the UK we only have about six positron emission tomography centres for the whole country. Amazing really when I took an interest in Physics positrons were just cute electrons! Just keep on winning
pam
 
08/14/2007
14:07 h
    hey guys. sounds like you had a great time at the beach. i haven't checked out the pics but will do so when done writing you. been in the 100's here. all i can say is hot, hot, hot. to hot to cook, clean or do anything really. supposed to have a few more days of it, then HOPEFULLY that will be the end of that. hope this finds you all doing well. you are in my thoughts as always, love and miss you all much, pam
John
08/13/2007
17:02 h
    yes me again. I couldn't miss the chance to make the 500th posting in your guest book.


John
08/13/2007
17:00 h
    Hi keeghan

Moravia was great. Barbecues, beer and slivovitz. It sounds as if your holiday was even more fun though. Anyway I am back home again and wondering what to do next.
Stephanie
 
08/05/2007
12:28 h
    Thanks for sharing your life with us!
Love the photos
Sandra
07/28/2007
11:46 h
    next time I'll try to spell better :)
Sandra
 
07/28/2007
11:43 h
    Good Morning Keeghan,

It’s one of those typical sunny days in Florida. It’s 84 and not quite noon yet. Also one of those days that we ‘natives’ stay inside in the afternoon.

We now have another resident in our backyard. It is a predatory bird of some sort – hawk or falcon (maybe they are one in the same, I am not a bird expert). I haven’t been able to identify it yet because I am not that fast with the binoculars and he is one speedy bird. He has a brown head and is white underneath with lots of brown spots on the white parts.

His ‘cry’ is quite different from most other birds and is the same or very similar to the one they used in all those outdoor movies made in the mountains when big birds fly overhead.

I think it is nesting in one of the big oak trees in the back yard. It’s a good hunting area back there. The trees are quite large and there is not undergrowth to speak of so it would be able to spot moles, mice and such very easily.

All the other ‘critters’ back there look up then duck quickly as he flies by, screeching as he soars through the trees. Even the big cranes keep an eye on him.

I checked out a map of Ireland. It’s not very big, only slightly larger than West Virginia. It must be a very strange feeling to be able to drive completely across a country in a single day. Their flag is green, white and orange. I wonder what the orange stands for. Maybe you could find out for us while you are there?

I have no idea when you will be leaving on your trip, but I wish you a save journey. Right now I have to ‘journey’ out to the front year and fill up the bird bath – they get very thirsty in this heat.

Be Well, Be Happy and Carpe Diem

Sandra
John
07/26/2007
10:04 h
    Hi Keeghan

Well I'm back in Prague with very little to do -which suits me. Most of the students are away on holiday and not many staff about either. It's much hotter than it was in England and much less rain. I'm off to Moravia for the weekend I'll let you know how it turns out. Keep us posted on how Ireland is too.
Nancy Boriack
 
07/24/2007
21:49 h
    Thank you for your continued timely posts. Mike graciously and patiently updates me about Keeghan when I'm in the office but its always good to know that at any time I can hear about your family from your faithful posts.

Blessings to all of you as you await the 10 August MRI. My husband, Mark, and I pray for your entire family daily.

Love and blessings,
Nancy


pam
 
07/22/2007
03:21 h
    hey there gang. just checking in. its been hot and humid here. hope we get some rain soon. aaron headed back to texas. we had a really good summer. he has gotten so tall. he is as tall as shannon. derious says he is gonna play soccer this year, so i will have to get used to the hustle and bustle of school and sports again. not much else going on around here. have you heard anything more about your upcoming trip to ireland? will close for now. love and miss you all lots. love, pam
Sandra
 
07/17/2007
14:59 h
    Hi There Keeghan,

I can now spell Tyrannosaurus – thanks to you. ;)

I like rocks too, especially crystals and gemstones. I’m not really a collector, but have acquired a few. My best specimen is a geode that has been sawed in half. It stands about 18 inches high, about a foot wide and has amethyst crystals inside. It collects lots of dust as it weighs a ‘ton’ and rarely makes it to the sink for a bath.

Misty (that’s our parrot) learns most of what she says all by herself. We have spent very little time teaching her, but she is in the family room so is constantly ‘exposed’ to language.

One of the funniest incidents happened after we’d had her for only about a year or so. It was a few weeks before Christmas and I decided to teach her a phrase appropriate for the holiday. Every time I passed her cage I repeated the phrase. This went on for those several weeks with no response from her, just an intense stare with her head tilted to one side and her pupils would dilate and contract – a sign of concentration, I suppose.

Well, I was a little disappointed with our lack of success until Christmas morning. I was sitting in my favorite chair in the family room and my husband was coming out of the bedroom when Misty loudly, clearly and very cheerfully proclaimed, “Merry Christmas,” then added in perfect imitation and inflection (a very grumpy), “Bah, Humbug!” We still can’t figure out how she realized it was actually Christmas Day?!? :)

Now, every year, shortly before Christmas I repeat that phrase as a reminder to her and sure enough, she’ll repeat it at random during the holiday season.

She also imitates our dog barking (small poodle). When the dog barks at something she will join in barking along with her and then after 10 or 15 seconds, she’ll stop ‘barking’ and say, “What are we barking at?”

The thing that tickles us most is when we are watching a sit-com and she laughs at a joke before we do – smart bird! She’s an African Grey, Congo variety and is now about 18 years old, loves grapes, but if given banana will decorate the walls with it – Splat!

Although messy, she also has a generous heart. Her very favorite thing is peanuts and even though we give her a limited supply she will gladly share one with our dog. I watched on day, after I had put the peanuts in her cage. The dog walked up to the cage, looked up at the bird and waited patiently. Misty grabbed a peanut with one foot, reached out through the bars of her cage and dropped it right in front of the dog. – Now, everyone say, “Aaaaaahhhhhhhhhhhhhh.”

Be Well, Be happy and Laugh A Lot – It’s good for you, Sandra


Sandra
07/16/2007
08:34 h
    Gosh - I ended up talking about birds anyway!
Sandra
 
07/16/2007
08:32 h
    Good Morning Keeghan,

It’s going to be another scorcher here in Florida today. If it wasn’t for good ole’ A.C. this state would be deserted except for alligators, snakes and all those bird-types I’m always telling you about. I (am green with) envy you your trip to the Emerald Isle. A cool morning mist would be greatly appreciated about now.

I’m not going to talk about birds today – they must be getting rather boring to you. I was just sitting here at my keyboard trying to figure out what I liked when I was about your age and a memory came to mind. I was about nine or ten at the time and I was sitting on the front porch late one simmer afternoon when my father came home and handed me a book. It had a picture of a very strange animal on the front cover – like nothing I had ever seen before. It was a T-Rex (note: I am not going to even try to spell the “T” part).

That book was my introduction to the Jurassic age. Later, that evening, as it was getting too dark to even read out on the porch, my father finally coaxed me indoors. I had read through the book from cover to cover and wanted more, more, more.

Ever since that warm summer afternoon I have been fascinated by dinosaurs and what I find most amazing is that our present day birds are descendants of some of those huge creatures that wandered our Earth more than 65 million years ago.

An African Grey parrot shares our home with us and I often stare at her in wonder when I realize who her Great (to the power of millions, probably) Grand Parents were. What is even more interesting is her ability to ‘talk’. But the most amazing part is that she connects certain words and phrases with ‘events’. When she is covered at night she says, “Good Night,” and in the morning she says “Good Morning,” but not before my husband is awake. No matter how much noise I make when I am up and about making my tea, she remains quiet until she is sure he is up. Very considerate bird. At last count she was able to speak over 100 words and phrases. One of the latest phrases she has learned is, “Ah, shut up, bird!” (she does get rather noisy in the evenings just as the sun goes down).

It makes one wonder if her ancestors were able to ‘talk’. It is believed that the Raptors communicated while hunting - or at least that is what we are led to believe in novels and movies. I suspect there is more communication going on in the animals world than we realize.

And I think it is time to end this particular communication. As I sign off I am wondering if you like dinosaurs too. My favorite is the Brontosaurus with her long graceful neck for grazing in the tree tops – lots of ‘greens’. See, even way back then they knew that green veggies were good for you! :)

Think Green!
Sandra
pam
 
07/13/2007
12:05 h
    me AGAIN. you may get tired of hearing from me, but i love ya guys and can't help but letting you know i'm always sending good vibies and prayers your way and no doubt we will get through this like you have come through everything else this past year. you all are so amazing. you are all in my thoughts. love ya, pam
pam
 
07/10/2007
12:38 h
    keeg and maxx,
was so sorry to hear about your friend slater. you all are in my prayers as well as his family. wish i could take away some of your hurt for you. take care. love, pam


Sandra
 
07/09/2007
10:56 h
    Hi Keeghan,

It’s been a long time since I’ve touched base with you. I ran into our mutual friend (John) on the net Saturday and he told me you were soon going to be taking a grand trip to Ireland – Well, I hope you like the color green (it’s my very favorite color, actually) because you will be seeing a lot of it.

I love green, sky blue and white together – just so happens I see a lot of it in my back yard when I watch those cranes that come by every day.

I think you will remember me telling you about Mama, Papa and Junior crane (I was not very creative in naming them, was I?). Well, Junior got his full head of red feathers and was unceremoniously ousted from the family. Several months later he came back for a visit with his new mate. I knew it was him by his sloppy eating habits. He always dove at my hand like he was trying to eat the entire palm full of corn in one gulp, which, of course, with his long skinny beak was impossible. He merely succeeded in spilling most of it on the ground.

He hasn’t been back since. I suspect (and hope) those two are raising their own brood by now.

As for Mama and Papa – well, they stayed away for several months and just about two weeks ago started showing up for their share of the corn. I knew it was Papa because he is very gentle when he eats out of my hand and he’s quite well mannered, rarely spilling any on the ground. For some reason they have no babies with them this year. Due to the fact that they were absent from my back yard for so long, I suspect they did have at least one hatchling, but their survival rate is not the greatest. Most mated pairs have two babies and are lucky if one survives to adulthood.

But another mated pair started coming by this spring. They have ‘twins’ and they are just beginning to molt – the back yard is littered with the evidence of their passing through, feathers everywhere.

I hope you find a four leaf clover while you are there – I wonder if you scanned it and sent it out over the net if it would bring us all good luck?

I hope you have a wonderful trip and get to eat lots of – ah, lots of – gee, what is traditional fare in Ireland besides potatoes. You’ll have to find out and let us all know.

Pack something green – and have lots of fun - Sandra



John
07/06/2007
20:18 h
    Hi Keeghan
It's done nothing but rain continuously since I've been back in England. But nothing to compare with irish rain! Just you wait and see. You'll all return to washington looking brown but it'll be rust not a sun tan!
pam
 
07/05/2007
15:17 h
    hey guys. just writing to see if you all had a good 4th of july. loved the pics from the play. was it just a one time performance? it is so great that keeg got to participate this year. not much going on here. shan was really glad to see mike in florida. it would be good to see all of you. love and miss you guys much, love, pam
billie bowen
 
06/28/2007
20:08 h
    Yippeeeee. congrats on the last chemo! wish I could be there for the october walk, but will be with you all in spirit. Though we have never met, I feel like we are old friends. keep smiling gang and have a blast in Ireland.
Billie
pam
 
06/27/2007
12:03 h
    hey guys!! so gld you're done with chemo!!! i was so excited that you are going to ireland that is one of shannon's (my shannon) dreams as well. you will have to post lots of pics. i can believe the p.t. probs from when i broke my leg. i will pray you find a civilian provider close to your house that they will approve. this has been such a long journey and all of you have been such troopers, especially you keeg. the strengh that you show is much more than i have seen in some adults. i will continue to pray and send good vibes your way. i miss you guys a lot. i hope you enjoy your trip to ireland. when do you go? (did i miss that in the post? i was pretty excited i may have missed it!) take care. love and miss ya, pam
Laney
06/18/2007
19:55 h
    Ireland, how exciting!!! I would already be packing.
Take lots of pics and share them with us all, please. My prayers and thoughts are with you all.
Thanks so much for keeping us all updated.
Sincerely,
Laney


Andy Nelson
 
06/13/2007
19:41 h
    Wow. All I can say is wow. I was reading through this stuff and I don't think I've cried like that in a really really really long time. I don't know if you guys remember or not but Tyler had to have heart surgey right after you all left. I know how heart wrenching that was and can only imagine what you all must have felt. 1 day they are fine and the next they are in the OR. I am so glad to hear that things are looking up. I have to run to a ball game but I wanted to make sure that I left a little note. As I get some more time I will definitely be back. A few thoughts before I go. Keeghan, bud, I am so glad that you are doing so well. Seems like you are the real trooper here. Mike, glad to see that I am not the only one who has gotten fat. Shannon, Maxx, as lovely as ever. Believe me, I will keep in touch.
pam
 
06/09/2007
00:28 h
    hey there bud! haven't checked in for a while so i thought i'd drop a line to let ya know i'm thinking about ya'll. i'm so excited that you are about to start your last cycle of chemo. no more puking days!!yeahh! i can't believe how big ceili has gotten? she is prob still got more growing to go to huh? will close now. just thinking of you as always and lovin' ya and missin' ya. love, pam
Nancy Boriack
 
05/29/2007
23:18 h
    Keeghan,

Belated blessings to you and your fine family as you continue to celebrate your one year anniversary! You dad shared the details of your celebration. I know that you appreciate your awesome parents and their love and care for you. Your dad tells me how much he appreciates you!

Glad you got to dine at the Melting Pot. Fondue is a favorite food of mine also. What fun to emjoy that delcious feast in a restaurant!

Take care and enjoy good days.

Love and blessings,
Nancy Boriack
Laney
05/27/2007
19:08 h
    Ahhhh, that puppy is so cute. I imagine that one has been good medicine!!! Glad you are doing so great and the end of chemo is in sight. My prayers are with you all.
Sincerely,
Laney
Tracy
 
05/20/2007
02:42 h
    Here are a few funny memories from a few weeks before the diagnosis:
1. Keeghan was sick all of the time. He FINISHED his TAKS test. We brought him honey buns and skittles so his blood sugar wouldn't drop!
2.Keeghan was a TERROR on the skateboard. I complained about it. Mike came to see what all of the fuss was about. Mike got ON THE SKATEBOARD. I gave up complaining. I thought you all were batty.
3. Lauren and Keeghan got into trouble for trying to rescue every stray, sick or slow animal in the neighborhood.
4.Keeghan ate a honey bun everyday after school. I had a very ugly name for this "addiction". Does he still eat them?
All I want to say is that I'm so glad he is better. I experienced first hand how a family could pull together in a matter of seconds. From the first phone calls, everyone started mobilizing. It was amazing to see. I am proud to have been around.
LORENE POE
 
05/19/2007
19:06 h
    There's no skill in ridin a bronc
When the critter is standin still
There's no thrill in ropin' a horse grazin' peaceful on a hill
But, there's great satisfaction
That's mighty sweet to take
When You are crowned Hero Of the month,
A goal 'they' said you couldn't make. Yipeee you did it.
With that adorable smile how could it be otherwise?


Laney
05/18/2007
08:37 h
    Hey Keeghan,
Wow, congrats!!! I can easily see you as a hero. I think you were born to be a hero.

Sincerely,
Laney
Dorothy
 
05/14/2007
08:39 h
    Keeghan, Congrads on the hero of the month! Very Cool!
Love your cousin in Traverse City, MI
John
05/14/2007
07:21 h
    Hero of the Month!

I'm proud to know you.
pam
 
05/13/2007
01:51 h
    hey there keeg. i saw where you were hero of the month on the bravery hearts website. that is so cool and is such an inspirational write up. i am so proud of you and your whole family. you keep hanging in there and taking it one day at a time buddy. still sending good vibes your way. love and miss you all very much. pam
Renee Peete
 
05/07/2007
07:19 h
    Bless your heart. I haven't read your whole journey yet, but from what I have it sounds so familiar. Little Sean, has scans every 6 months now (which started in September) rather than every 3 like before. He's 1.5 years out from chemo for an optic nerve glioma. I seem to still have absolute breakdowns at MRI time, glad to know that I'm not the only one! Take care!
Laney
05/05/2007
00:19 h
    The Watchmen

There is always clean up when the battle has been won
The work is kind of nasty and yet it must be done
Enlisted are the watchmen
who are always on their guard
Aware acceptance of the loss
some invaders find quite hard

So posted are the finest
the guardsmen are all elite
Re-enforcing to the enemy
it has met defeat
Though the job is tiring, some times it feels it has no end
That is when you pause and survey the kingdom, noble watchmen now defend

You see beyond the ravages of the war torn look today
Right into the future which is not so very far away
You see the noble walls all etched with solid proof
That you are more than conquorers, in this battle you've been through

The watchmen do their work with thundering steps you are disturbed
But it is for the enemy they stamp so hard, making sure each one has heard
Sir Keeghan's rule is established here
And is being reaffirmed by the watchmen's care



John
05/04/2007
06:48 h
    I knew you'd do it!

Wooo hoooo!
pam
 
05/03/2007
10:36 h
    woo hoooooh!!!!! i am so excited about your mri results!! that is awesome!! i can't put into words how happy i am, and i know how all of you must be feeling. how much longer have you all got for school? do you have any plans for summer? will talk to ya later and again woooo hooooooh!!!!! love and misss you, pam
Grama Barry
 
05/03/2007
09:04 h
    Dearest Keeghan -- you really did beat it one cell at a time and one day at a time. The whole "fabulous four" gets a big cheer for triumphing this past year. Love N Hugs Grama B.
pam
 
04/28/2007
04:39 h
    hey there. just checking in on ya. hope this finds you all doing well.(ceili too) you should be getting pretty close to being done with your treatments. that will be a great day to celebrate too. you have come a long way. you all have. you all are such a strong and special family.(and goofy too!!) i sure do miss you guys. take care. pam
John
04/24/2007
05:43 h
    Hi Keeghan

Have you got Ceilidh retrieving balls for you yet? Most labs seem to do this instinctively without training.

Today in Prague it's raining and I had to run for the tram this morning. I hope your day has started better than mine!
Jerrie
04/22/2007
18:15 h
    Hey Guys!
Thanks for a great weekend. We had so much fun. Keeghan, you never did play Kryptonite!!!!!!! Ha-ha.
We are home now and our 4 dogs sniffed me for about 10 minutes. I guess I had Ceili all over me.
See you guys soon.
We love you,
Jerrie and Mason



Laney
04/20/2007
22:30 h
    Thinking of you Keeghan!!! Hope you are having a wonderful day. I also hope round six is going well and you sail through the remainder of the treatments like the real trooper you have proven to be.
My prayers of ever with you.
Sincerely,
Laney
billie bowen
 
04/20/2007
14:55 h
    Here's a huge group hug from all of us. happy TG in april.
luv billie, kayleigh, John William, and luckie. Hope your day is special, already toasted you with our morning coffee, and i am sure we will do more toasts throughout the day. keep smiling. oh and shannon, I think you are a great writer!!!!
Donna Rumburg
 
04/16/2007
10:45 h
    Keeghan you are a really special boy. I don't even know you and am so proud of you and how strong you have been. Best wishes to you. Keep the faith little hottie!!
Billie Bowen
 
04/15/2007
18:36 h
    Hello gang. greetings from Lakewood, WA. (i relocated here from corpus last week, to help my daughter while her husband is deployed) I just love the new puppy. she has the same name as my daughter, we spell it kayleigh. she says the puppy is cuter than her though. i love the new layout of the website and the fact that all i had to do was type it in google and it popped right up. hang in there gang and keep smiling. luv billie, kayleigh and john william.
Jerrie
 
04/15/2007
08:32 h
    Hey Guys!
Read "The Beginning". Whew! Made me laugh, made me cry.
Can't wait to see you all.
See you Friday.

Love,
Jerrie
Maj Leigh Ann Erdman
 
04/11/2007
13:46 h
    It is so great to see Keeghan get to do real kid things. As part of a multiple pet menagerie I am thrilled for your new addition. I am still awed when I read everyone's comments and realize that Keeghan has more courage, spunk and character than many folks much, much older.


John
04/08/2007
06:47 h
    Dogs look like their owners
So it's no surprise
That Ceilidh and Keeghan
Have the same look in their eyes.

Super photos - super dog. (but labradors when they grow like to walk (and walk and walk and walk)
Laney
04/04/2007
22:27 h
    That is the most adorable little puppy!!! Congrats on the choice of your new pet Keeghan, I know you are going to be very happy together.
Take care,
Laney
John
03/31/2007
05:12 h
    Hi Keeghan
I like your dad's idea of being made a knight but since you are still a bit young for that perhaps you could be made a kmorning or a knevening instead.

Mack's right go for Europe with a trip to Prague. See you in Vaclav Namesti.
pam
 
03/31/2007
04:41 h
    hello to you guys. sounds like you have been very busy. how exciting for you little man that you get to make your own wish. i know it will be unique coming from such a great kid. i'm sure you all will enjoy it. has the weather been warming up? it has been in the 80's alraedy on some days here and i've been dreading summer already. and the pollen is kicking my fanny this year for some reason. normally it doesn't bother me. hope this finds you all doing well. love and miss you lots. by the way, how is your puzzle coming along? love, pam
John
03/28/2007
11:24 h
    Hi Keeghan

The sun is out, flowers are blooming, trees covered with blossoms; this really is the time of the year for getting better.
Laney
03/20/2007
23:32 h
    Hi Keeghan,
Happy,Happy Birthday you to you and Max!!!!
What are you going to wish for? I can't wait to find out! Hurry up and make the decision, Ireland sounds like lots of fun, not that I would try to sway you or anything.
I am also looking forward to April 20th!!! It is my birthday.
Glad to know everything is going so well and the the end of treatment is in sight!! You are a real little trooper. I am so proud of how well you have done.
Always in my prayers,
Laney


Dr. Jeff
03/15/2007
15:19 h
    Hey Keeghan. Glad to hear you are keeping up the good fight! A very Happy Birthday to you and Max! Looking forward to April 20th.

Cousin Dave
 
03/10/2007
15:54 h
    Happy Birthday Keeghan!!! We hope you had a great day. It is nice to see things getting better for you guys. We are always thinking about you guys and will definitely be holding up a Molson Export on April 20th. Cheers! Love, Dave ,Janet, Ashley and Blake
Laney
03/09/2007
11:21 h
    Dear Keeghan,
I can not tell you how amazing I have found you to be during this struggle. My admiration for you grows with every knew challenage you overcome.
I would like to say Happy!!! Happy!!! Birthday!!! to you.
You and your family are always in my prayers. Keep on smiling and laughing no matter what, it seems to work well for you!
God Bless,
Laney


John
03/07/2007
12:41 h
    Happy birthday Keeghan
Gina A.
 
02/27/2007
20:22 h
    Hey y'all! I hope everything is going well! Love the pictures and the site looks great.
pam
 
02/26/2007
11:45 h
    just checking in on ya. sounds like things are going pretty good. do yall have your wish list for birthday gifts? hope ya have good birthdays. miss you guys a lot. pam


Jerrie
 
02/22/2007
21:52 h
    Hey Guys!
Well, I think things have finally calmed down here and Mason and I may actually get to come see you guys. I just need a good weekend. April has committed to watching our 'dog pound', so think about it and let me know when would be good. Hopefully the weather will be nice, as Mr. Mason has never been to DC and he would like to see a few things, if you all can stand it.
We love you and miss you.
See you soon,
Miss Jerrie and Mr. Mason
John
02/22/2007
19:12 h
    In Washington when it snows
Mack loves it and out she goes
She's the princess of the ice
Keeghan stays in where it's nice.
With his mom and warms his toes.

Very sensible too Keegh. I'm back in England for another week - no snow but lots of rain. Back to Prague Sunday.
Judy M. Martin
 
02/20/2007
12:36 h
    I have added you guys to our mailing list and hope to hear from you soon. We have some camps coming up so check out our website regularly.
LORENE POE
 
02/12/2007
17:17 h
    YOU HAVE BEEN LEARNING USEFUL, INTELLIGENT THINGS IN SCHOOL, HERE IS A LITTLE USELESS IDIOT FARE JUST FOR FUN.
1. HOW DO YOU CATCH A UNIQUE RABBIT? UNIQUE UPON IT.
2. HOW DO YOU CATCH A TAME RABBIT? TAME WAY
3. WHAT IS A BOOMERANG THAT DOESNT WORK? A STICK.
4. WHAT DO YOU CALL SANTAS HELPERS? SUBORDINATE CLAUSES
5. WHAT DO YOU GET FROM A PAMPERED COW? SPOILED MILK
6. WHY DID PILGRIMS PANTS ALWAYS FALL DOWN? THEY WORE THEIR BELT BUCKLE ON THEIR HAT.
AND THAT'S ENOUGH OF THAT.
Jerrie
 
02/10/2007
21:04 h
    OMG! I was so excited to see you met Christopher Moore. I am also very jealous. That just rocks! I'm hanging in Charlotte with my grandfather, step-grandmother, Mama, and Mary Alice. We are taking a break from playing poker, so I signed on to see what was up. Let me get through this with my grandfather and Mason and I will be up to see you guys soon.
Half way there! Awesome. You are doing great kiddo - I am personally so proud.

I love you guys,

Jerrie

P.S. Maxx - Hey Baby Girl!
pam
02/09/2007
12:19 h
    thought i would check in again. i'm so glad you're 1/2 way through!! you have all been so strong through this journey keep up the good fight. love and miss you all. will continue to pray for you, pam



Nick Schwedock
 
02/07/2007
17:29 h
    Great news on the MRI read.
We will keep up the prayers.

I will buy some beads when the time comes and I still have a gift to mail to keeghan.

Nick Schwedock MD(work with your aunt lynda)
Darren Enkin
 
02/05/2007
23:09 h
    Keep fighting Keeghan! So happy to hear the Doc's good news. You are going to beat this and we are very proud of you and looking forward to having you as our Hero of the Week. We'll keep you posted when the new page begins. Best Regards, Darren
John
02/05/2007
04:42 h
    Hi Keeghan

Well the snow has gone here but I believe you still have it in Washington. Prague is a bit boring until the formal lectures begin but there is a party tonight at the French embassy. I suppose I'll have to pretend to like them.
Jeff Persch
 
01/31/2007
18:57 h
    Hello Peoples. I finally went into classmates and saw your message. Thankfully you are still at this web address. Drop me an e-mail or give me a call. 603.305.2088

Jeff Persch
Chandler & Jensen et al.
01/31/2007
18:43 h
    Hey Keeghan!

We are so happy about the MRI stuff. Way cool! We hope you are liking DC and school and stuff! We miss the snow!

Talk to you soon.

Love,
Chandler & Jensen
Aunt Heather & Uncle Joe
John
01/27/2007
09:45 h
    Nearly one foot of snow fell out at
veleslavin where my hotel is. Prague looks wonderful with all the snow over it.

There ain't no fuss
And no school bus
When you've got homeschool
A class of two
Just Mack and you
Now that's what I call cool.


pam
 
01/24/2007
12:57 h
    hey again. just wanted to see how things are going with the bravest family i know. sounds like you all are starting the year off great. just writing to let you know you are in my thoughts and prayers and we love and miss ya. maybe we can make it up there this spring to visit you guys. love ya, pam
K. Gorsky
 
01/19/2007
19:44 h
    Keeghan,

Well wishes from Detroit,Michigan...keep on truckin'! :P

Kim
John
01/19/2007
12:19 h
    Hi Keeghan

You might like to know that 'skeleigh's madness' now turns up on a google search (via a review of your website)

Though touched by fame
Keeghan stays the same
with a smile and a laugh
He'll sign his autograph.

all of us here at fjfi CVUT are cheering you on.
Ms. Brenda
 
01/17/2007
12:03 h
    Hi Keeghan,

Just wanted to wish you a great day. You and your family are always in my thoughts and prayers. I hope your days are full of sunshine and fun days. Love,

Brenda
Nancy Boriack
 
01/10/2007
19:26 h
    Many thanks for keeping us posted on Keeghan's progress. My husband and I lift you all up each day in prayer.

Blessings,
Nancy
Laney
01/10/2007
01:20 h
    Hi Keeghan,
Just wanted to say HI!! Happy New Year to all of you. Here is a huge hug to help cheer your mom up and to say thank you to her for keeping us posted when she is able! I love all the pictures it is so thoughtful of her to share them with us.
My prayers are with you all.

Sincerely,
Laney


Leigh Ann Erdman, Maj
 
01/05/2007
11:17 h
    Happy New Year to a great family! Prayers and Blessings for everyone!
Lorene Poe
 
12/31/2006
21:46 h
    HAPPY NEW YEAR..
Although it's early, fireworks are exploding already. The moon is shining its silly head off and the cowboys are stacking logs for a bonfire. We are going to the ranch to wait for Baby New Year to show up clad only in smiles and his little band of ribbon.
I found time to catch up on your posts again. Keegan looks great with all of his beads. He looks so good and is getting more handsome every day..
You have a great Mom there Keegan. Sometimes there are days that have to be held together with nothing but love and pure nerve. You are surrounded by this kind of love.
May the new year bring only happiness to all of you.
Best Wishes Always, Lorene Poe
Dorothy Leary
 
12/24/2006
13:49 h
    Merry Christmas! From Traverse City, MI
pam
 
12/23/2006
02:42 h
    hey there bud! loved seeing all of your pics and love your new cut. you have been through a lot again this past few weeks. you have the beads to prove it. hope you don't have to get anymore though. sure you you all have a very Merry Christmas and a Haapy New Year. love and miss you guys much. love pam
Sandra
 
12/21/2006
10:32 h
    Hello Keeghan,

It’s been quite a while since I posted anything in your guest book, so I have some catching up to do on the subject of our water fowl here at the lake.

My little family of three SandHill Cranes started behaving a bit odd the second week of November. During their ‘breakfast’ they would pause occasionally and stare out over the water, sometimes calling to something unseen and unheard (at least to my ears).

Then, suddenly, on November 15th they disappeared. After a couple of weeks I was beginning to fear that they might have met with some sort of disaster and was quite sad. Well, you can imagine how relieved I was when last Thursday (the 14th of Dec.) they showed up at my back door. They were just standing there gazing through the sliding glass door into the family room apparently wondering when I was going to come out and feed them.

It seems they have joined a flock that migrated here in November – which is a good thing because now, in the Spring they will have traveling companions for the long trip North. Unless, of course, they have another late baby and have to stay over again. They now take ‘a break’ from their group at least once or twice daily and stop by for a little TLC and a free snack. Junior (the now almost adult baby) still has 'messy' eating habits spilling more from my hand then he eats, but Papa is very gentle. Mama is more elusive, choosing to stand aside and wait for me to toss some her way.

The really odd thing is that twice, several of their flock tried to join them and they ran them off. Seems like they want to keep their special ‘feeding ground’ all to themselves.

I don’t know if you remember me talking about the white ducks before, but they are still here – two of them, and have been joined by the odd looking brown one with the ‘crown’ of tufted feathers on top of his head. They make daily stops also. BUT, now they have been joined by a migrating flock of Mallards. The original flock was only about 9 or 10 ducks, but those Mallards keep growing in number. This morning I counted over 40. It’s a good thing corn is cheap.

They are also accompanied by several Coots (those are the little birds with the green feet). And several resident gray squirrels are beginning ‘widen’ in the middle, too.

I suspect my neighbors are starting to refer to me as “The Bird Lady” (or, worse yet, The Duck Lady) and it all started because a family down the street released some white ducks several weeks after Easter last spring. The white ones will stay, but I’m going to miss the rest of them next Spring when they migrate, but it will be fun to see if they can find their way to my back yard in the fall.

Well, that's about all the BirdNews. I hope you are doing well and I wish you a very Merry Christmas, Sandra

Dr. W
12/20/2006
18:55 h
    Hey Keeghan! Glad to hear you are doing well. I'm glad Dr. Cooper was able to do such a good job. And, thanks to you and your family for the card and pictures. I wish you and all of your family Happy Holidays and a Happy and Healthy New Year!

Jeff


John
12/20/2006
15:03 h
    Hi Keeghan

What do you call someone that can only speak one language?
An american (sorry!)
What do you call someone that can speak two languages?
A European
What do you call someone that can speak thre or more languages?
A waiter or a taxi driver
Leigh Ann Erdman, Maj
 
12/19/2006
15:41 h
    Keeghan is an amazing kid! The entire family is full of heroes.
aunt lynda
 
12/15/2006
09:41 h
    Hi guys
I am so-o amazed by y'all! Keeghan another couple holes in your head. If you ever go see a phrenologist there will be an interesting story told by the bumps on your noggin!
It is a way small world that you are all the way in DC and encounter a neurosurgeon who also knows of Keeghan's case and in fact met you in Houston.
Shannon, you keep going girl, you have amazing stength. Mike you keep being the warrior I know you are (the outcome is not known by any of us and all we have is this one day!)Maxx, you inspire me with your devotion and remarkable selfless care of you brother. Keeghan you just continue to amaze everyone, keep fighting one cell at a time, and keep fighting all these side effects of the fight!
the world continues to send up its positive energy in support and love for you all, some who dont even know you but know those who do know you.
love and hugs and prayers and positive energy and thoughts into the universe for you
aunt lynda
JOHN
12/14/2006
05:03 h
    I envy you your skateboard. I as born too soon for them. I have pair of in line skates but Anna has never allowed me out of the house with them. she says if I can skate backwords down the upstairs hall at home without falling or touching the wall she will. So far I haven't managed it.

I go back to england on the 23rd so I may try it again then.
Dave Kennedy
 
12/12/2006
15:16 h
    Hi Shannon. Check in every once in a while to see how Keeghan is doing. Very sweet Thanksgiving story, brought tears to my eyes too. I can understand how proud you are of your very brave and considerate children. God bless Keeghan, Max, you and Mike and I hope you all have a wonderful holiday season.
Dave Kennedy
pam m.
 
12/09/2006
04:00 h
    been a while since i checked in on ya'll. hope this finds you well and excited for Christmas! glad there was no growth in the cultures. have you made out your wish list to santa yet? thank goodness you both are good, or you would get a big ol' hunk of coal. i bet that's what your dad is gonna get! just wanted to drop a quick line and let you know i and thinking of you guys as always and praying as always and hope you have a very merry holiday season. love and miss you guys. love, pam


John
12/08/2006
07:24 h
    Hi Keeghan

That sounded like quite a Christmas party. I'm winding down for christmas now just making students' lives as miserable as I can with zapocets and exams.

A quick joke

Two goldfish are in a tank
One says to the other:

Do you know how to drive this thing?
Lorene Poe
 
12/04/2006
06:30 h
    Hello again, I loved the new pictures, and actually found time to look at ALL of the pictures carefully. What a great collection.
John
12/02/2006
05:28 h
    Hi Keeghan

How many pins have you got stuck in that map of yours now? And which pin is farthest away from Washington? I thought perhaps Mongolia but maybe New Zealand. Check it out on a globe. It's much easier to check long distances on a globe rather than a map. if you are sticking pins into it check it isn't the inflatable kind first.
aunt lynda
 
11/29/2006
09:16 h
    Hi guys
I havent written much lately but I check on y'all as often as possible. And, constantly keep positive energy flowing in y'alls (sorry, Shannon sometimes the Texan just creeps out) direction.
I am praying that the elevated temp this morning does not amount to anything and that Keeghans counts are terrific. CCNU sucks and I hate when Keeghan gets jingle bells (I told Sarah and Ryne about the Jingle AWWWLLL the way - so every time we sing or hear that song now we gag a little!)
love and hugs all around
lots of positive energy
aunt lynda
Tracy Cespiva
 
11/27/2006
22:52 h
    Hey Guys. I'm glad Keeghan actually got to enjoy Thanksgiving dinner. I know that is a big deal. San Antonio is still the same, HOT (85F today) and Brent got deployment orders! Just like the cancer, this too shall pass.
grama barry
 
11/27/2006
12:12 h
    It was easy to see the picture your words painted of the family around the Thanksgiving holiday table. You all are in our thoughts and prayers of thanksgiving at our holiday tables and everyday. Grama


Uncle Jack & Aunt Ada
 
11/24/2006
20:38 h
    Just realized that it had been a long time since we checked in on all of you,even though we think of you often. Glad to know things are oing well and pray that it continues so. Jack seems to be doing well also and I seem to be healthy, too. So--love and prayers
Jerrie
 
11/23/2006
18:09 h
    Hey Guys!
I hope you had a great meal. We just got back from Charlotte where we had Thanksgiving lunch with my Papa, Nanny Laura, Cris (my mom), Mary Alice, and Bob. Of course, George and Max, the pomeranians were there, too. It was a nice day and we definitely didn't over do it, like we did 3 years ago (remember that?).
Mason and I are settled in for the evening. He has to work tomorrow and Miss Jerrie gets to stay home. Yippie!
Hope you guys are enjoying this eating holiday.

Jerrie and Mason
Grandad
11/22/2006
20:51 h
    By the way guys...I love the school pictures...What great looking smart achievers you are!
Makes us proud!
Love
Grandad
Grandad
11/22/2006
20:46 h
    Hey guys,
How about a history moment?
On this day, in 1963, Our then President, John Fitzgerald Kennedy, was shot and killed in Dallas Texas. Those diminishing numbers of us who were around at the time will never forget where we were or what we were doing when we heard the news. I was 25, Aunt Lynda was 9 months old, Aunt "Baby" was just barely on the way. Your dad was just a gleam in my eye and, at that time, grama's last thought (sorry Mike). I was an intern on my Pediatrics rotation. I was examining a healthy, kicking and screaming newborn baby. (Life really does go on!).
I was actually a little surprized today, (and disappointed in myself) when I was thinking there was something that I should be remembering about this date??? There were not the usual reminders in our local media. I retrieved the morning newspaper from the garbage. Sure enough, there it was on page two in the "a day like today" column, along with the 1718 pirate story, the 1928 "Bolero" story, 1943 FDR story about WWII, and then, there it was...1963, the JFK story... and on down to this day in 2005, Ted Koppel hosted his last ABC Nightline.
I wonder if there was some reason Ted K. chose that date to retire? This is no big deal, of course, you had to be there.
Love
Grandad.
John
11/18/2006
13:09 h
    Hi Keeghan

You can take the pin out of England and put it back in Prague today! Carefully please! Great pictures posted by your mum (mom if you prefer).
Jeff Weinberg
11/13/2006
17:15 h
    Keeghan - Just getting caught up!
Keep up the good fight! Everything looks great!

Jeff


Sue Dawson
11/11/2006
13:02 h
    Hi,

I am a BookCrosser from Dallas, OR. My BookCrosser screen name is suebooks. I hope that your son continues to do well.
pam
 
11/11/2006
06:09 h
    just checking in on ya buddy. great to hear about your mri results!! i'm sorry you're feeling yucky from your tx. just hang in there bud and take it one day at a time and know we are all here sending good vibes your way. love and miss you all very much. pam
Rachel
 
11/10/2006
16:34 h
    Wishing you well from Maryland, USA.
John
11/10/2006
04:53 h
    Hi Keeghan

I've just logged on before going to the airport and flying home. i had my fingers crossed that I might be number 400 and didn't want to miss the chance.

for my next posting you can put a pin in England. (but try not to pop it!)
Tammy
 
11/10/2006
02:35 h
    Hey there. How is the bravest family I know? I hope things are going better for you guys. I am so happy you are still posting on your website Shannon. I love reading about the journey you guys are taking. Keeghan stay brave! You and Max are the bravest kids I know.
Your Montana Friend, Tam
Brenda McGowan
 
11/08/2006
21:39 h
    Keeghan,
Oops! didn't mean to send it blank. I am so encouraged by your courage and especially your mothers wisdom. God gives us everyone we know and everything we have for His purpose. This site is so great, thank you for shareing it with us. We will keep you in our prayers.
Homeschool Family Just down the street.


Brenda McGowan
11/08/2006
21:29 h
Lynne Alice
 
11/08/2006
06:45 h
    Kegan,

sening you best wishes and a very loud and lively haka from New Zealand.
Sakho Fily
 
11/07/2006
06:41 h
    Salut Max et Keeghan,
j espere que vous allez bien, votre site est tres interressant,passez mon bonjour a tout le monde :Papa,Maman et les autres.

Amusez vous bien et profitez de la vie.
Sofia Lazareva
 
11/06/2006
09:58 h
    Privet vsem! Ochen interesnii sait! Prikolnie fotki i vse takoe! Jelaiu vam udachi v jizni! Sonka!
Roman Samkharadze
 
11/06/2006
09:56 h
    dzalian lamazi suratebia! vici rom araferi ar icit, magram maic gicert amas! Tqveni natesavi, chemi mascavlebelia, xo da magan mtxova, mmicere tko. Aba kargad iyavit! Roman
Nott
11/05/2006
10:50 h
    Hi Keeghan

From Madrid (Spain) I wish you all the best


John
11/04/2006
06:49 h
    Hi Keeghan

We had our first snow in Prague this week. It didn't last but a taste of things to come. The only time I was in Washington it was hot and humid. I hope you get some decent snowy weather this winter.

Shannon, Mike, Keegh and Mack
Skating on the Potomac?
aunt lynda
 
11/03/2006
08:39 h
    Hey Gang
Havent posted in a while and what an explosion on the guest book!! From everywhere. I knew there was positive energy in the universe but I had no idea just how much!!
When Mike called to let us know about the MRI findings and the blood counts we were in beyond excited and thrilled and I wish I had a thesaurus!
We are always thinking of you all and sending lots more positive energy into the universe for Keeghan and for all of you
Live Strong
Love and hugs all around
Aunt Lynda
Purple-lilly
 
11/03/2006
04:06 h
    :) I should have let you know that I live in Adelaide in South Australia, so I have the good luck of posting again.
Health and Happiness!!!
Linda McClelland
 
11/03/2006
04:04 h
    Best wishes for health and happiness from another Bookcrosser.
CanberraPenny
 
11/03/2006
02:27 h
    Hi Keeghan, I'm writing to you from Austria - I moved here with my family in June this year - it's a lot different to Australia and we even had a bit of snow here yesterday (it's COLD!!!). I heard about you from your mum's message at BookCrossing. I just wanted to say 'hi' and let you know you are in my prayers. Best wishes for a great Holiday Season!
Tracy Cespiva
 
11/01/2006
19:33 h
    Hey Barry gang! We are hoping that ya'll (a Texas word) are still going strong. Last night was Halloween. We missed our buddies to go trick or treating with. Take Care. We miss you.


Laney
10/31/2006
09:13 h
    Dear Keeghan,
Here is looking forward to the end of this battle you have faught so gallantly!!! You have awed me as I have read of your progress through all the stuggles you have faced. You are an amazing young man who has been blessed with a marvelous support system. Your mother has been so thoughtful to keep us all updated and it is greatly appreciated.
My Prayers are ever with you all.
Sincerely,
Laney
Grandad
10/30/2006
22:01 h
    Hey guys,
Grama and I had a great weekend hanging out with y'all. But you know that already! I feel really privileged among all the wonderful people all over the world who are sending you their energy, 'cause I actually get to be there with you and I can feel it working. Wow! Hey, how do you feel getting all those messages from every corner of the world? Awesome! Right?
Grandad.
TexasWren
 
10/29/2006
20:54 h
    Hi Keeghan! I'm sending you wishes and vibes (ask your mom about BC vibes) from Texas. I'm in Hillsboro, a new hours north of your old homeplace!

best wishes to you!
Caridad
10/29/2006
13:25 h
    Max,
Hope you get better real soon. I am one of those Bookcrossing geeks you mom virtually hangs out with. I am spending the afternoon burning a pizza and watching the NFL. My favorite team is the Miami Dolphins but they stink this season and they aren't playing - BYE week - Thank God! It's been painful watching them. Oh yeah, READ A BOOK!
bookcrossing Kimmi
10/29/2006
11:49 h
    I'm from Kelowna, British Columbia, Canada and I just want to wish you health and happiness as the holiday season approaches. Your family looks awesome. You are all so lucky to have one another.
Liz
 
10/29/2006
10:44 h
    Hello dear, I am writing from lake Como, Italy. I read your mum's message on BC.com, so I wanted to tell you that here, today, it's a beautiful sunny day, even if it's autumn and should be really cold. Well, not because I live here, but it is a really lovely place, so you must come and visit in the next future :)
In the meanwhile, I'm sending you loads of positive vibes and happyness and joy!
Kisses!!


Melissa G.
 
10/29/2006
08:16 h
    Hi Keeghan!

I'm writing to you from just outside Detroit, Michigan - The Motor City, Hockeytown, Motown. Home of the Detroit Tigers, the Detroit Lions, the Detroit Pistons, the Detroit Red Wings, the Detroit Shock and a whole lotta cars!

It looks like you have an awesome family, and I'm totally bowled over by all the great things you have here on the site. Good luck to you, and I'm sending out tons of good vibes for your continued recovery.

Happy Halloween!

-Melissa
Ragnhild Lervik
 
10/29/2006
08:13 h
    No residual tumor - well that has to be good news *biggrin*

And that IS a cool hat - cancer does, indeed, suck.

This is an hello from Trondheim, Norway :)
John
10/29/2006
05:36 h
    

CARVE YOUR OWN PUMPKIN. HAVE FUN


Hi Keegh

Here'a neat little timewaster.

http://www.coasttocoastam.com/timages/page/pumpkin_sim.html

all the best
John


deadendmind
 
10/29/2006
03:01 h
    Hi there! I came across you mom's message on bookcrossing and thought I'd pass by. I'm for Athens, Greece. Sending you tons of hugs and good health vibes!
Daphne a.k.a. deadendmind
Jodi Jenkins
10/29/2006
00:36 h
    Hi to Keeghan, Max, and Mom and Dad, from yet another BookCrosser! Right now, I live in a small town in Kentucky called Bardstown, but I'm originally from the Houston area. I decided I had to move to get away from the heat, and if you've been at MDAnderson in the summer, you know what I mean! Keeghan, I'll definitely be keeping you in my thoughts and prayers. I also want to say a special thank you to Max for being what is obviously a great big sister. Take care, all of you, and blessed be.
SCOUT-FINCH
 
10/28/2006
22:58 h
    Hey, Keeghan, I'm a mom writing to you from Sherman Oaks, Ca. (a suburb of Los Angeles) I'm a BookCrosser like your mom and saw that you like to have people sign your guest book from all over. You seem like an extremely cool kid, and I wish my 10 year old son legomeister (as he's known on BC) had a big sister as cool as Max. He's a solo act but a great kid. What do you like to read? legomeister is into fantasy but it usually has to be funny. He's read every Time Warp Trio there is, he loves Manga, and he's currently reading The Supernaturalist by Eoin Colfer which he loves..He's in 5th Grade, not too into sports but has been doing gymnastics for 2+ years - did Ninjitsu before that. He's a Cub Scout too. I figured you'd be more interested in knowing what another kid is into than what I'm into! One great thing about being home-schooled like you are is that you don't have to worry about where you're going to go to Middle School next year. Legomeister thinks he might like the Technology Academy at our local Middle School - but now we have to apply and see if he gets in. Every kid has their own laptop which they do all their schoolwork on. This is public school - someone went out and got some amazing grants...
I hope your treatment continues to progress well - I'm rooting for you and I have a real good feeling about you!!
All the best,
Alexa (SCOUT-FINCH on BC)


magicjessnrach
 
10/28/2006
20:24 h
    Hello from Adelaide, Australia!!!

I took a look at your website as asked in the wishlist :) It is really well done; you have a talent for writing. You are so lucky to be able to homeschool your kids, I wish I could do that.

I am sending you lots of good vibes for the future.

Please let me know if your kids would like a little something from Aussie-land for Christmas. I know my girls would love to make them up a little parcel.

Rachel (magicjessnrach)
Barbara
 
10/28/2006
16:57 h
    Prayers to your family in the time of stress. Hpoe everything is going great for Keegan. I am from North Carolina.
yvensong
10/28/2006
15:33 h
    Hello and good wishes from the The Biggest Little City in the World, Reno, Nevada.
Dorina Van Guilder
 
10/28/2006
15:27 h
    Hello from a Bookcrossing friend from northwest New Jersey! I'm sending positive energy, kind thoughts, big BC hug and of course prayers your way.
soleille
10/28/2006
14:16 h
    Greetings to a very special little man - from Leipzig, Germany!
Keeghan, you are so brave in your battle, I'll be sure to check back on how you're doing on this site every so often. My best wishes to you and your family,
soleille (and if you'd like a postcard from over here, have your mom PM me with the address and what you'd like to see from the east of Germany :O)
BigKat
10/28/2006
14:04 h
    Wishing you all the very best and sending thoughts and prayers from Washington (the state not the nation's capitol)


atalante3134
 
10/28/2006
13:49 h
    Hello Keeghan,

Here is a small message coming from Montpellier, in the South of France.
I really hope you will get better soon.

Take care,

atalante3134
Amber
 
10/28/2006
13:43 h
    Hallo from Vienna, Austria!

I hope you are enjoying all these messages! It must be really cool to read through them all!

Take care and enjoy!
Susan
 
10/28/2006
13:24 h
    Hi! From Brooklin Ontario, a little town just east of Toronto Ontario. I'm also a bookcrosser - BrooklinBrat on that site.

I'll be thinking "stay well" thoughts for Keeghan - it sounds like things are turning around, and here's hoping they stay headed in the right direction!

Take care of each other.
Susan
cara
 
10/28/2006
13:16 h
    hey there from south australia! i read your post on the bookcrossing forum, and came straight here to say hi. you're in my thoughts.

love cara
xox
cara
 
10/28/2006
13:15 h
    hey there from cara in south australia! i read your post on the bookcrossing forum, and came straight here to say hi. you're in my thoughts.

love cara
xox
Ferfer
 
10/28/2006
12:42 h
    Hi Keeghan!! I am ferfer, best known as Anna-O among your mother's friends at bookcrossing.
I am so glad you're doing fine both with your health and your studies!
I am from Buenos Aires, the capital city of Argentina. It's way, way south. Can you see it on the map?
If you want to know anything about my country, you can just send an email to me.
take care
ferfer

Mim
 
10/28/2006
07:40 h
    Hi folk! I'm another of the mad bookcrossing.com people who just live giving stuff away! I hope this little message encourages Keeghan and his family to know that a family in Australia cares and said a prayer for Keeghans recovery tonight.

If Keeghan and Max would like a postcard from Australia please PM me via the BC system with your address and I'll pop one in the post to you both!

cheers! Mim (aussie-rose)
Kath de Groot
 
10/28/2006
06:07 h
    Hi Keeghan!

I am a keen member of Bookcrossing, and read about you in one of the Forums. It's my pleasure to send you a "good luck and get well" message from my town of Sale, which is just outside the city of Manchester in England. We have a famous football (or soccer!) team here called Manchester United - perhaps you may have heard of them.

I hope that it will help you just a bit to know that you and your family are in the thoughts and prayers of people all over the world.

Go Keeghan!!

Love and hugs
Kath xx
Jan
 
10/28/2006
06:01 h
    I am from Cape Coral, FL -- my prayers and thoughts are with you for a complete healing. God bless you.
Tamara
 
10/28/2006
05:59 h
    G'day Keeghan from 'Down Under' Queensland in Australia, home of the koala, the kangaroo, the shrip on the barbie (BBQ), the home of Australia Zoo and the legacy of Steve Irwin. I have visited your site after a lovely message from your mum on bookcrossing. 'our thoughts are with you'
Lesley Allen
 
10/28/2006
05:33 h
    Lots of love and best wishes to Keeghan from one of your Mum's BookCrossing friends in France. Ellemay
Jenny
 
10/28/2006
03:32 h
    Our thoughts are with you.Hope all goes well.We are from Auckland,New Zealand


Barb
 
10/27/2006
22:38 h
    Hi Keeghan! This is a wicked good greeting from Mexico Maine- yep we have strange town names here in Maine!! Strange names and moose are our claim to fame (well, lobsters too but not in my part of Maine.) Wishing you all the best!
Linda Oldford
 
10/27/2006
22:03 h
    Hello to Keeghan and family from a bookcrosser in Lewins Cove, Newfoundland, Canada. Love your site. hugs and get well wishes to you.I'm a 15 yr survivor & I know how much support means so hang on for continued good reports. I'll be sending good vibes your way
Kimberly
 
10/27/2006
21:44 h
    Hello Keeghan,

I am a memeber of bookcrossing.com and live in the state of oregon. My city is Cottage Grove. We are a very small city and are the "covered bridge capital" of the state. I wish you the best of everything and will keep you in my prayers for a full recovery :)
The Ostler Family
 
10/27/2006
21:05 h
    Best wishes from Sandy, Utah.
Thank you for the invitation to visit your website and to share in your family project.
Safron
 
10/27/2006
20:18 h
    Hello to you from Coventry, in the UK
chubsiewhubsie
 
10/27/2006
19:27 h
    Keeghan....Hiya, I heard what an awesome dude you are and cool...and nice!
I am praying for you. You rock! Think healthy thoughts. :)
Do you like Beenie babies and books? I will send you some of both!!!!
Peace & Love to you and your family. I am located in Brunswick Ohio, USA.
It is South of Cleveland and North of Akron.
Hugs & sloppy puppy kisses to you!


Sarah (Twynnie)
 
10/27/2006
18:21 h
    Hi Keeghan,

Hope you will be feeling better soon, and that you enjoy marking all these places on your map! I'm yet another one of these crazy bookcrossing people your Mom asked to sign this for you and I live in Faversham in England. It's not a very famous place so if you can't find it for your map it's near to Canterbury which is a lot more famous...

Bye for now and get well soon!

Sarah(Twynnie)
Linda
 
10/27/2006
18:01 h
    Hello Keeghan,

I read your mother's wish on the Bookcrossing site. So herewith I send you a lot of get well hugs and good vibes from Amsterdam, this is the capitol of The Netherlands in Europe. Maybe your mother can show you on the map!

Bye for now!
Linniepinnie

Linda
 
10/27/2006
17:58 h
    Hello from Oregon. My prayers are with keeghan and your family.
Tia Armstrong
 
10/27/2006
17:51 h
    Big hugs and smooochies from tiatia @bookcrossing.com! (I'm from Virginia for your map)
Carol plotke
 
10/27/2006
17:50 h
    I'm Oliviapoolside from BXing. I saw your special wish and wanted to respond with my family's love and best wishes for Keeghan's health and our hope that he should grow up to be an old man with children and grandchildren of his own.
macewoman
 
10/27/2006
15:42 h
    Hi from Winston Salem, NC! I wanted to say hello and wish you and your family all the best. I love your site and all of the pictures are great.
Hope you have a great Halloween!
May God protect and keep you.
Best wishes - Kelly


JoolsW
 
10/27/2006
15:05 h
    Healing vibes for Keeghan and love to all the family from JoolsW in Haworth, West Yorkshire, England. (Yes, another BookCrosser!)

Take care x
nwpassage
 
10/27/2006
14:53 h
    Best wishes from Prince George, BC, Canada... where the snow is flying, even though it's not quite Halloween yet. ;)
Kathy Baker
 
10/27/2006
14:06 h
    Hoping you are feeling much better. I must admit, the name caught my eye. I have a grandson named "Keygan" and although I wasn't used to it at first, it now seems to keep popping up. Good wishes from Springport, Michigan!
kz4ufo
 
10/27/2006
12:15 h
    I currently live in Fort Pierce, Florida (USA). Fort Pierce is in region along the Atlantic Coast called "The Treasure Coast" because it is famous for sunken treasure ships off the coast. It is a beautiful place to live. :)
marcenda
 
10/27/2006
11:09 h
    Hi Keeghan and family. Just dropped by to wish you wonderful Holidays and to say that I'm rooting for you all! Love from Lisbon, Portugal.
(Portugal is on the Western tip of Europe. It has a hand, see? Lisbon is on the tip of the hand.)
Jane O'Hannan
 
10/27/2006
10:46 h
    Hi Keeghan! I like your name. I am Jane and I live in Albuquerque, New Mexico. It's a medium size city I guess. Every October we go to Zoo Boo at the Albuquerque zoo. Kids get in free if they wears a costume. They also have a haunted house. The newest thing in Albuquerque is going to be a huge movie studio, which will open in April 2007. It will be similar to where they make the movies in Hollywood and we can't wait to check it out. Have a great day Keeghan!


ajsmom
 
10/27/2006
10:05 h
    Best wishes to your family from Quesnel, British Columbia, Canada.
Sarah Shipley
 
10/27/2006
10:05 h
    Best wishes to your family from Quesnel, British Columbia, Canada.
verenka
 
10/27/2006
09:50 h
    very best wishes to you and your family from verenka, a bookcrosser from Vienna, Austria
Jennifer, NH, USA
10/27/2006
08:42 h
    Blessings to you, Shannon, and your beautiful family! Stay healthy, Keeghan. From Guinneth, Bookcrosser :)
Lisa Kelsey
 
10/27/2006
08:37 h
    To Keeghan and family:

Greetings, prayers and best wishes from another bookcrosser in the Empire State: New York!
katayoun
 
10/27/2006
08:30 h
    sending best wishes and get well soon vibes from tehran-iran.


Rozonda
 
10/27/2006
07:50 h
    Hello from spain, I'm a BookCrosser and have visited your site, it is really cool!!! A big hug for you all, pecially for Keeghan ( you have a lovely name :) )
Quiron
 
10/27/2006
07:41 h
    Greetings from this corner of Europe, Portugal :D

Hello Keeghan and all the Skeleigh's family!
Just passing by to wish you all the best!!
Sending your way positive thoughts and good vibes ((()))
:D

Love***

P.S: Great job on the site skeleigh ;) Added to my favorites so that I can keep passing by to get updated from time to time :)
P.S.2: Oh yeah! Almost forgot to say so now I'm gonna shout it out: BOOKCROSSING RULES (especially the people in it) :D
Janet
 
10/27/2006
07:11 h
    Hi Keeghan from Reading, Pennsylvania!
Rachel White
 
10/27/2006
05:34 h
    Hello from Sheffield (UK)! Hi Keeghan, Hi Max! I was on the BookCrossing site and saw your wish and wanted to say "ey up"! (that's a bit of Yorkshire for you - it means "hello"). I had a little look at your pictures on the site (I hope you don't mind - it felt quite nosey!) and it looks like you lot have a right laugh! You look like an ace family with loads of love and support for each other. It looks and sounds like you're doing really well, Keeghan - you'd put plenty of adults to shame (like my boyfriend when he gets "man flu" - what a wuss!). I hope you have a fab weekend - are you doing anything special for Halloween? I'm going to a fancy dress party as a spider - I flippin' hope other people dress up or I'm gonna look like a right wally!

Right I'd better go before I take up your whole site, cos I've got a serious case of vebal diarrhoea and I'm writing a bit of an essay!

Take care and sending you lots and lots of good wishes

Rachel x
Innae
 
10/27/2006
05:26 h
    Hi from Colorado. I just want you and your mom to know there a lot of people thinking of you and wishing you well.

house-elfdobby
 
10/27/2006
04:51 h
    Hello from a mum of four in Kegworth, United Kingdom Keeghan! I saw your mum's wish on the BookCrossing forum and thought I'd send you a little message from across the sea. You are doing so well, and your website is fantastic, and what a lovely family you have around you. I'm saying lots of prayers for you and have lit you a candle here - http://www.gratefulness.org/candles/message.cfm?l=eng&cid=1900146
Hope you have a lovely autumn weekend with your family. Very best wishes from house-elfdobby
PS. Will pop a pin in your cluster map when it is up and running. Cheerio!


kihli
 
10/27/2006
03:47 h
    Shannon,here's a greeting from another mother,in Greece this time,a Bookcrossing member,to tell you to continue being strong. I'll keep praying for your son,keep smiling,you're doing great! I can't express my feelings tight now...hoping the best for you!
Janneke
 
10/27/2006
02:38 h
    Read your mom's posting on BookCrossing and wanted to say goodbye to you. Read the latest news on this website: encouraging! I had 2 familymembers diagnosed with cancer this year (1 is better; the other can't be operated but is feeling well at the moment), so I can imagine the agony you and your family must be going through. Wishing you all the best and hope you'll have a wonderful Christmas later this year.
With love, from Holland.
KarmelK
 
10/27/2006
02:00 h
    Hello from Michigan, USA. I'm a mom of 6. Two have bookcrossing shelves like Mom. The youngest is 10. Her bxing ID is ritznMMK. Our dacshund's name is Ritz and his photo is on her site. We are wishing you a wonderful Christmas and many Blessings and Health in the Year to Come. From all the K's
Hazel Tuscano
 
10/27/2006
00:45 h
    Hi Keeghan!
Glad to hear you're feeling better! I'm a bookcrosser from Garfield, NJ and I want to wish you & your family all the best!
Peace,
spuddossis (bookcrossing ID)
Hazel
Johni Frye
 
10/26/2006
23:48 h
    I am a bookcrosser and I read the post today and wanted to come by and wish you well. It looks likes you already got a good report.
I am from South Carolina.
Katie Kaczmarek
 
10/26/2006
22:54 h
    I love your "Cancer Sucks!" hat! My grandmother has been finishing up treatments for lung cancer that spread to her jaw (she was a lifetime smoker), so we got her the "cancer sucks" beanie baby for Christmas last year. She just gave us that look... I'm sure you know what that's like.... ;)

I'm so impressed with the things you get to learn in school! I'm studying to be a teacher, and so far my students haven't had any of that kind of fun. Soak it all up and enjoy it!

Best wishes and prayers to you and your family!


Sue Bancroft
 
10/26/2006
22:44 h
    Best to all of you.Kimmie my 18 yr old neice went through this before her 2nd bday.sending prayers and healing vibes.I am from Citrus Heights california,near Sacramento.
Sue Bancroft
 
10/26/2006
22:43 h
    Best to all of you.Kimmie my 18 yr old neice went through this before her 2nd bday.sending prayers and healing vibes.
Ana Andrioli
 
10/26/2006
22:01 h
    from argentina with love, get well soon!!! :)
froggirlwendy
 
10/26/2006
21:33 h
    Best wishes from sunny Brisbane, Australia. I'm so happy that your results are positive and pray that the good health continues always. Love & hug each other every minute you have spare :o) Hugs, happiness & positive healthy vibes to you all, from another BookCrosser and her treasured family.
LoveTeaAndBooks
 
10/26/2006
20:42 h
    Hello from Fort Campbell, Kentucky, Max! Technically, I'm sitting in Clarksville, TN, so that's actually 2 states you're hearing from! Your mom has done a fabulous job with your website. My husband is in the Army and the same rank as your dad. My girls are 5 and 8, and we will be praying for you to continue doing so well with your recovery. Before being a mom, I was an ICU where I got to see lots of surgeries like yours. You should be so proud of yourself for being so tough and doing so well getting better. Keep your chin up!
peaceofpi
 
10/26/2006
20:21 h
    Hello from wet and wonderful Vancouver BC CANADA!
All the best to each of you.
Happy autumn and happy reading from bookcrosser peaceofpi :)


Lisa
 
10/26/2006
20:18 h
    Hello from Pennsylvania! I loved looking at your pictures. You have such a lovely family! I will pray for you. I personally know another little boy who has cancer. I see the pain that it causes but also the joy when he sees how much people care for him. Remember, people care for you!!
Dale Nowe
 
10/26/2006
20:05 h
    What a great looking family and a brave one too! I wish you all the best and hope everything continues to go well.
queenfrog from bookcrossing who lives in Pugwash Nova Scotia Canada
givebookstokids
 
10/26/2006
19:42 h
    Hello skeleigh and family. Just checking in from wisconsin to see how all is going. Loved all the pictures of your family. Personally, the dart heads were my favorite. Keeghan, our thoughts and prayers are with you and your family. Saw your thread on bookcrossing. Looking for any books? Let me know. Peace...
Gypsy Gray
 
10/26/2006
19:38 h
    Hi there! I am a fellow Bookcrosser (logansbabo). I live in Washington state (above Oregon). I am 60 miles south of Seattle. I will be praying for your son. Please keep me updated, and if you need a friend, or just someone to talk to, feel free to email me at atlantabravesgrl@comcast.net :)

Love,
~Gypsy~
thegoaliegirl
 
10/26/2006
18:56 h
    Hi from Seattle, WA!
shelley and kevin langelaar
 
10/26/2006
18:50 h
    opps -- forgot to tell you that we are from abbotsford, british columbia canada


shelley and kevin langelaar
 
10/26/2006
18:31 h
    You are all in our prayers -- keep loving up on each other.

Blessings and love

Shelley

Snowy652
Jensen & Chandler
10/25/2006
17:26 h
    
Woo hoo Keeghan!!!

Have fun with Grandma & Grandad!

Love
Cousins Chandler & Jensen

(Mom & Dad are way happy for you too!!!)
grandad
10/24/2006
22:31 h
    Just another thought, hoping maybe to inspire Laney...the white knights are winning, their numbers get depleted in the battle, and yet they fight on, they bounce back (it's a Barry thing).
Cell by cell..as we speak.
One day at a time.
We will prevail!
Just me again.
love
grandad
Grandad
10/24/2006
22:12 h
    Hey guys, I just heard the great news about the latest MRI results. I can't imagine how it could be any better!
The blood count numbers are good too, of course, but it's what's NOT going on inside that head that matters most...except for the incredible stuff that's going on in school...
Grama and I will be there this weekend to check it all out in person...how nice...what fun...i can't wait..oh, wow!
love
grandad
Patricia Morin
 
10/24/2006
20:28 h
    It is obvious from your website that you all are an incredible family! My prayers are with Keegan and all of you for a swift and effective recovery.

Blessings,
Tricia, Roger, Charles and Katie Morin
John
10/19/2006
09:32 h
    Hi Keeghan

When are you going to post this cool angels with hairwaves stuff?



Tracy Cespiva
 
10/14/2006
13:07 h
    Hey Guys! I am glad that Keeghan is getting cool stuff! I just wonder when you guys are going to be on Oprah. I'll set the TIVO (provided that Shannon doesn't ask me to go...as the official Oprah advocate/advisor!
Take Care everyone. We still miss you.
pam mcbee
 
10/14/2006
00:59 h
    hey there guys. glad you got to do your chemo little man. glad your numbers are doing great too. that dragon puzzle is awesome! i have only managed to have the patience for 500 peice puzzles so you are doing an outstanding job for such large puzzles. just wanted to check in on you guys and let you know i love you all and miss you all very much. you are in my thoughts and prayers EVERY day. Pam
aunt lynda
 
10/11/2006
18:04 h
    Hi gang
I have been neglectful of my posting and hadnt realized a whole month had gone by. One of my collegues here, Nick told me he had been reading the website recently and about your angry post, in terms of "how strongly you advocate for your child"
I want to echo grandad's comments regarding the "tirade" As another doctor in the family (another family doctor in the family) I agree 1 billion % with the notion that the Keeghan is NOT one more "kid with cancer" he is your son, your half a heart, our nephew, grandson, and parts of our hearts.
Who are these stupid people to treat you like you are stupid, you keep being the saber toothed tiger mom and you show your kids (the whole of your heart) that you are their defender, their stalwart, their protection from the badness in the world including pediatric clinics full of sick kids. He is going to make it through all of this partly because of the strength of your will.
Keeghan and Mackenzie you watch your mom when she goes saber tooth tigered on someone and remember thats for you and thats how you will act when your "hearts" are threatened. Be proud of her and stand by her side (but not literally if she tells you NOT to go in that clinic)
love all of you and thinking of you even when I dont have time to post
aunt lynda
Lorene Poe
 
10/06/2006
03:35 h
    Hi Keegan: Fall is finally here and you should see our lovely colored leaves. We are having a barn dance for the kids next week. There will be bales of hay around the gym to sit on and a big beach ball covered with sparkles, like on a Christmas card, will be hung from the basket ball hoop. I was put in charge of decorations and thought "We may as well make it look like a real barn."
We drew pictures of comical horses to be mouonted along one wall to look like they are in stalls. We are also making a stand up copy of that famous picture of the farmer with a pitch fork, and his wife. The face is cut out so the kids stand behind the poster and look through that to have their picture taken. Wish you could be here to join us. Take good care of yourself.
Keep dancin'
Lorene Poe
John
10/05/2006
07:44 h
    Hi Keegh

It's good to hear things are going better for you. No news here except I bought a guitar - I was actually going to get another digital camera but I thought it wouldn't be so easy to lose a guitar.

keep on truckin'
grandad
10/04/2006
22:28 h
    Sorry Shannon,
Can't help you here.
It's genetic.
The great grandfather is the culprit. It's not my fault this time. I hate jigsaw puzzles for all the reasons you have articulately articulated. But my dad....that was a different story. I just passed along a gene or two (without ever suffering the horrible effects). Who ever heard of pasting together puzzles. Did you know you can also frame them and that they come in 3-D versions? Oops, sorry!
Seriously, it is good to hear the good news...we can take all of that that you have. See y'all later this month!
Love,
Grandad.


Col Linda Ebling
 
09/29/2006
20:53 h
    Hi Keeghan!
I just wanted to say hello and wish you well. SoOunds like you had an interesting time with your appointment last week in Pediatrics. Sometimes people forget IMPORTANT things ...like making sure you don't spend time near little kids with colds, etc. I know it was hard for your family with your Dad being away -- so I hope things are better NOW My thoughts and prayers are for you today. God bless. Linda E.
Shannon
 
09/27/2006
15:50 h
    Hey Dad - I'm glad you understood where I was coming from as far as my rant from Monday goes. I didn't want it to seem like I was bashing on the docs & nurses that are caring for Keeghan. I know that they are looking out for Keeghan's well being. I just think that they forget sometimes that we come at Keeghan's situation from two vastly different directions.

They look at Keeghan as another kid with cancer, and they're doing everything they can to help him. I look at Keeghan and see half my heart, wishing that I could move heaven, hell and all things in between to help him, and I can't do anything other than make sure THEY do their jobs.

So sometimes I feel the need to remind them of where I'm coming from.

I was really worried that my post would offend the medical types around here - glad to hear that it didn't offend you at least!

Shannon
Grandad
09/27/2006
11:14 h
    Wow...way to go MOM!
As the occasional recipient (thankfully very occasional) of such a tirade, I am compelled to put in my two cents worth. Shannon, job #1 for you is to look out for the health and well-being of your kids...whatever it takes. They are very lucky to have you doing that as well and as fiercely as you are. So are the health professionals. (believe it or not) We sometimes get so embedded in our world that we forget how it looks and feels to the people we are supposed to be helping. You are not the stupid one. If they are looking at you and talking to you like you are stupid, or if their response to you makes you feel that way, they have forgotten (hopefully temporarily) why they are there. Most of them will respond fairly well to being straightened out, and many will actually appreciate it. Don't ever roll over. Stick to your guns. Make sure everyone is doing it right! And you are the educated one here who knows what is going on with Keeghan better than anyone else on the planet. Remember that is how this problem got discovered in the first place. So keep on pounding on it as fiercely as necessary until you are the last one standing if that's what it takes. There now I feel better.

love y'all
grandad
pam mcbee
 
09/26/2006
08:37 h
    hey there buddy. just checking in on ya. sorry to hear about your counts. they will straighten out though and you'll be back where you were before ya know it!! we went fishing/camping at the beach this weekend. the only thing i caught was a little blue crab. they kept eating the bait off our line--the dirty little boogers!! mr. shan is leaving sunday to go back to iraq for awhile. he will be flying on the helicopters this time. not much else going on here. keep hanging in there little man. you are so strong and you have got that great ma, pa, and especially that wonderful sis of yours to help ya day by day. i love you. love and miss you too mackenzie, shannon and mike.
Laney
09/23/2006
18:26 h
    Hi Keeghan,
Sorry you are having such a rough time of it with the numbers. Look how far you have come though, this is just a little glitch, it will pass!!! Here is to those numbers rising and you feeling stronger and trudging on ahead towards full victory in this battle!!!! My prayers are with you and your family.
Sincerely,
Laney
SuZann Eversberg
 
09/22/2006
13:06 h
    G'day Mate;
That's how we say hello here in Australia. Keegan I am so impressed with that wonderful smile you always have on your face. You are an inspiration to a lot of people. My prayers are with you. All the best, SuZann


John
09/22/2006
05:24 h
    Hi Keeghan

A few more trips to that Walter Reed and your car will know its own way there. No need for mom to go at all! You just sit in the car and it is so used to going there it will just start up and drive there by itself with you playing video games in the back. (NO PLEASE DON'T TRY IT.) Well I had eight hours with an orthodentist yesterday which sounds as bad as you having to wait around Walter Reed. Well to be honest it wasn't bad - we were just writing a paper together on using MR and MRSI scans on masseter muscles - four hours work and four hours over dinner afterwards. I thought of you and I reckon you probably know more about MR scans than nearly anyone else I know. Fortunately all of our conversation was in English not Czech so I could sound as if I knew what I was talking about(although, of course, I didn't!).

Have you started your German lessons yet?
All the best
John
Peter
 
09/14/2006
04:33 h
    Ahoj, volam sa Peto a posielam ti najsrdecnejsie pozdravy z Popradu, ktory lezi po Vysokymi Tatrami.Dufam,ze budes coskoro zdravi.
Grandad
09/13/2006
13:54 h
    Hi guys. It's great to see the new pictures of your adventures in DC. How cool is that to be relaxing under a tree on a grassy knoll in the midst of all that history. Just keep on learning. It's wonderful!
I hope the docs there soon get your chemo under control so there aren't so many deep troughs in your blood counts.
Keep on truckin'
Love, grandad
Shannon Merritt
 
09/13/2006
10:29 h
    To your family I send prayers for strength and courage. As I have read many of your entries of daily life I realize that you have a remarkable young man. I speak to your mother a few times a month and always inquire how you all are doing and she always says that all of you are doing well. I can see that is very true. May God Bless Your Family and Give You Strength to Endure.
Laney
09/12/2006
22:21 h
    Hmmmm, you know Keegham, I have a ticket concerning an incident with a red light, wonder if I could use that red light thingy as a defense. I could claim the need for self protection made me do it or something maybe. What do you think? Will it work? Hmmm, maybe I will rethink this one. They could tear up the ticket and give me a straight jacket instead, better not risk it, was just a passing thought.

Your pictures remind me of the tours of DC, I took my children on. I am very glad you all are sharing them with us, they are wonderful!!!

Knights Mighty In Number
~
The town is now awaking
As everyone comes to view the sight
Of Sir Keegham witnessing the presence
Of his endless noble Knights
~
They are coming from everywhere
Gathering in the streets of Crimson Red
Renewing each the vow and honor
Of having Sir Keeghan as thier head
~
Bonded with the will of Keeghan
Ready to fight when there is need
The Knights are gathering quickly
With Sir Keeghan as their lead
~
No matter what the battle
Sir Keeghan may be called to face
The Knights will be there with him
As he finishes every race
~
The trumpets now are blowing
All sleeping Knights are roused from sleep
Urged to join the celebration
And make a showing in the streets
~end

You are terrific kid!!! Your parents must be so proud of you.
You are always in my prayers.
Sincerely,
Laney










Martin Noll
 
09/12/2006
07:30 h
    Ahoj Keeghan moj profesor anglictiny mi spominal ze si super chalan a ze si velmi silny a odvazny.a tak ti pisem aby som ta pozdravil a poprial ti vela sil a nezlomnu volu v tvojom tvrdom zapase.urcite vyhras, pretoze kazdy spravny bojovnik, ktory ma vieru a ciel a ide si tvrdo za tym vzdy zvitazi. s pozdravom Martin.


Duong Minh Vuong
 
09/12/2006
06:05 h
    Hello, I'm student of mr Wilson.I just wanna give u some wish in my language... Chuc cho ban som khoe manh va dat nhung dieu ma ban luon luon mong muon.
Tara Alder
 
09/11/2006
20:27 h
    Your website is great! You've inspired me to update my own after a year long "leave of absence"... See you tomorrow at the Sign-Ups meeting!
Tara
aunt lynda
 
09/11/2006
15:21 h
    Hi guys
Bet you thought I had fallen off the planet. Not so and thinking of you even when I dont have the time to get a note written. I love the MIB story. And burst out giggling right here! I can just picture the whole thing.
love and hugs
hope the counts are good
watch out for flashy red light thingies!
aunt lynda
Dom Camus
 
09/08/2006
11:25 h
    Found this linked off your LJ, which I stumbled across via onyxblue. Makes sad reading in a lot of ways. But wow - what a great family you have ! Keeghan's attitude is just amazingly cool.

Best wishes to you all from here in London !
John
09/08/2006
05:08 h
    Hi Keeghan

Those are great pictures of you all at the Smithsonian. Did you see Lindbergh's plane? Well school is starting for you again - still that should be fun with your mum. It starts for me again too I go back to Prague on Sunday.

All your European fans would love to see a message from you in the guest book if you feel like writing one!
Laney
09/02/2006
01:04 h
    Keeghan,
I am so glad to hear your WBC is up!!!! You and your family are in my prayers.
Sincerely,
Laney


pam
 
08/31/2006
12:50 h
    hey buddy. you should have known dad could draw your blood so good. he is awesome!! plus that is so much better than having to drive all the way to the hospital. hope that zyrtec helps with your allergies. those allergies can make ya feel pretty rough. was glad to hear you didn'y need a transfusion. glad you are excited for school. it will be kinda neat having your mom for a teacher, huh? are you gonna call her mrs. Barry while your in class? that would be kinda funny and weird too, huh? well, bud, you hang in there and i will check in again with ya later. love you guys and miss you so much. i'm so glad you have such a strong family and such a beautiful caring sister beside you all the way!!
David Kennedy
 
08/28/2006
18:45 h
    Shannon, Mike, Mackenzie and Keeghan: Glad to see you are all settled in Washington, D.C. and Keeghan is doing so well. Finally spent some time to go over the website. It's a beautiful story Shannon. I am glad you shared it with us. Keeghan, I am remembering you and your family in my daily prayers. You are a very brave young man, just like your father. Keep up the faith and all will be fine. God bless you all.
Dave Kennedy
Lorene Poe
 
08/24/2006
20:41 h
    Snake? No I havent found the other snake yet, but have come to the conclusion that it has left the premesis. This is the only one I have seen here. Before we tore down the old ranch house there were a few of them over there. My son shot one and made a hat band from the skin.

It is almost as exciting to live here as it was living in Alaska. Hope you are feeling better Keegan. Allergies can be a real pain in the neck, and nose, and eyes and all over generally.
aunt lynda
 
08/24/2006
17:25 h
    Hello to the Barry gang!
Shannon, I have been worrying over that snake too!
So, good to hear the first round of consolidation has gone so very well.
I love the most recent poem on the guestbook.
My daily posts have dwindled of late due to other stuff, but I think of y'all every day and send up positive energy several times daily!
love and hugs
aunt lynda
John
08/23/2006
05:12 h
    Keeghan's photo taken stood by the penny
Like lots of other kids? No not that many.
Gut the strangest thing I ever heard
Keeghan's sister played a big pink bird.
Now she won't eat from a plate or dish
But stands in a pond demanding fish.
Going to the the hospital ain't much fun
while Dad gets to play at the pentagon.
Mom's gonna teach you she'll be fair and steady
But no home work! because you're there already.

Hang on in there Keeghan We're all behind you cheering you on.
Heather Ward
 
08/23/2006
01:49 h
    Hey there, I am glad you are finally settled in! Now I can get some of those Alaskan rocks for you and send them to you! I will try to do so soon, I am working now, so I dont really have much time to do anything other than work and sleep lately! Glad you are all doing well! Bye for now, Heather, Jason, and Christy Ward

Cousin Dave
 
08/22/2006
15:52 h
    Hi, we are glad to here that your lives are getting back to normal and I'm also glad there is another actor in the family ( well I try anyway......)good for you Max. Take care, Dave, Janet,Ashley and Blake
aunt lynda
 
08/21/2006
12:27 h
    Hi gang
just a wee note to check in on y'all. hope Keeghan continues to be tolerating the chemo consolidation pahse of things. hope Max's experience as Flamingo #4 was excellent. hope the house is coming together for Shannon and that Mike is finding his way successfully around the pentagon!
prayers and positive energy into the universe for all of you
love and hugs
Aunt Lynda
Laney
08/21/2006
05:32 h
    Keeghan,
I am soooo glad to hear the white blood cell count is rising so well!!! You just keep proving what an AMAZING, young man you are. I am thinking of you and keeping you and your family in my prayers.
Sincerely,
Laney
pam
08/20/2006
05:59 h
    just checking to see how you are doing. hope all is well. checked out your pics. you have been a tough guy!! keep hanging in there bud. love ya, pam
aunt lynda
 
08/17/2006
14:40 h
    hello all
hope today is another great day in the lives of Mike, Shannon, Mackenzie and Keeghan.
positive energy all over the place.
love and hugs
aunt lynda
aunt lynda
 
08/16/2006
13:44 h
    Hi Gang
what a scary story on the preceding post. I would have moved out until someone found the other snake!!
I hope all is continuing to go well with all four of you and for today especially for Max as she gets ready for her play.
love and hugs
aunt lynda


Lorene Poe
 
08/15/2006
18:52 h
    sorry this is coming in bits, having trouble with the computer, but had to tell you the rest of the snake story. The county agent said it was a ground rattler. "When you find the other one bring it in," he saud, "They travel in pairs," Now Im tip toping around the house with one eye out at all times for the other rattler. Best of Everything to you. My prayers are with you. Lorene Poe
Lorebe Poe
 
08/15/2006
18:43 h
    The snake resisted getting into hhe box, but I finally got the lid closed. While inspecting him through the side, he struck at me....Garden snakes dont strike.
Lorene Poe
 
08/15/2006
18:40 h
    Hello again Keegan. wow did I have an adventure lately, Since you have been to TX I thought you might like to hear about it. I got up in the middle of the night to go get a drink of water. In the dimly lit hallway I saw what looked like a piece of rope and scooped it up in my hand. Suddenly, the rope wiggled, slid out of my hand and landed across my bare foot. I screamed and danced away as the 'rope' wiggled into the bathroom. "It's not a rope," I decided and followed it. "It must be a garden snake that slithered in through the garage and laundry room and into the house." I grabbed up a dust pan and small brush and went after mr garden snake. A small plastic shoe box in the hall closet would make a nice place for him until morning.
aunt lynda
 
08/15/2006
08:35 h
    Hi gang
I have missed reading what is going on at the "Mike Barry" household! It was really great to hear from you the other night Bro'. It sounds all great tho'.
Keeghan, I am so-o excited to hear that you are doing great with this round of chemo and have lots of continuous positive energy going into the universe in favor of that.
I love hearing about the new digs! and Shannon, a do nothing day is Always a good thing! (especially when you dont even get out of pajamas!)
Mackenzie, I am looking forward to hearing more about the play and of course seeing the pictures of that too.
love and hugs
aunt lynda is back on line!
Grandad
08/14/2006
23:16 h
    Hey guy, those white knights might be getting a little out of hand. (just kidding, of course, but I'm jealous!) My latest WBC was 3.3 on 7/10/06 so you got double mine...That should hold off the bad stuff just fine! It's good to hear your appetite is back...you know I was a little worried about that. Now I'm going to be bugging you about exercise so you don't get to be too rolly-polly now that your appetite is back...sorry, I know, I will always find something to bug you about, right?

Keep on showing everbody how that "Keeghan factor" works.

Love,

Grandad
LORENE POE
 
08/12/2006
08:15 h
    Hello again Keegan. Guess what? I live in Texas you know, about 50 miles South of Houston. The city is nice and citified, but out here it gets a little different. When you come to Texas on a vacation you must come out and go riding with us. Also see the allagators.

Jolene
 
08/11/2006
23:37 h
    Barrys-

Shannon, you old lady, you don't know how you made my day today. I wish that I had the words to say to make this time in your life a little easier. Shannon and Mike, you are such great people that you deserve nothing but the best in your life. And Max and Keeghan, even though I've never met you, I'm sure that you are a couple of great kids because of who your parents are. If you're ever in South Dakota (yeah, right), stop in. You always have a place to stay.

Take care,

Jolene
pam mcbee
 
08/11/2006
01:16 h
    hey little man!! i had A LOT of reading to catch up on. (i lost the web address) I have been thinking about you and praying for you every day. you stay brave and maybe we can come visit you, now that you are closer. i was happy to hear there is no tumor and i will continue to pray for you and hope you have better times through your chemo. sure do love you and your family. love, pam, shannon, aaron and derious
John
08/10/2006
06:24 h
    Hi Keeghan

Well today is my last day in Prague for a month. I fly home to England this evening with a case full of slivovice, kirsh and absolut vodka clinking away when I check it in. Just to make me feel welcome back in the UK they have declared a heightened terrorist alert and are allowing no carry on hand luggage on the plane so the poor old laptop and my cameras all have to take their chances in with these bottles.

If my spelling deteriorates you'll know the lap top has finished up full of schnapps!

All the best this month we're all thinking of you.

John
Dr. Jeff
08/08/2006
19:22 h
    Keeghan - Just checked in to see how the trip went. Glad you got to enjoy chocolate before you left. And, I like the picture with the dart on your head. I hope your dad is not hitting your head anymore. Glad to hear you are tolerating the chemotherapy. Be strong and keep up the good work. We are all sending good thoughts your way!

Jeff
Laney
08/08/2006
13:01 h
    Keeghan,
My heart and prayers are with you as you begin this leg of your journey to recovery!!!! One day at a time and smile when ever possible, knowing someone, somewhere is thinking of you and praying for you and your family.
Look how far you have come already!!!! You are just so amazing and so blessed with that Mom of yours. You are all in my thoughts.
Sincerely,
Laney
Iva
08/08/2006
05:41 h
    Ahoj Keegene, jsem jedna pani ucitelka z &#268;eské republiky a cht&#283;la bych T&#283; pozdravit a vyjád&#345;it velké p&#345;ání, aby ses brzy uzdravil. Ur&#269;it&#283; to bude brzy zase dobré, jen se musíš hodn&#283; snažit a mít velkou trp&#283;livost. Držím všechny palce a t&#283;ším se zase n&#283;kdy na shledanou. Ahoj IVA




John
08/08/2006
05:06 h
    Sir Keeghan - Dragon slayer

You have two staunch allies, tried and true.
Sir Prednisone and squire CCNU
And on the days in between
They're joined by Sir Vinchristine
And as Sir Keeghan rides into battle
Taking all these pills; will he rattle?


Cheering you on from the bleachers - John
Sandra
 
08/07/2006
12:27 h
    Hi There, Keeghan,

Writing from Florida again. I hope you are in good spirits, sir knight and that your armor is all polished and bright.

I am looking out my window as I write this and I can see two Red Headed Woodpeckers in the oak tree by the water’s edge. There are squirrels out there too, eating some of the left over corn that I fed the ducks this morning.

I have named the ducks Chatty & Cathy because they quack so much. They only finally shut up when I give them their corn. I suspect it’s impossible to eat and quack at the same time.

Chatty & Cathy are often joined by four smaller ducks/birds – I don’t know what to call them. They don’t have webbed feed, but they spend most of their time in the water. They are about the size of large pigeon, with mostly black feathers – just a tiny white portion on the lower part of their folded wings. They have light yellow beaks and a bright red streak on the top of their heads that makes them look like they are wearing very stylish little caps. And, (now, I’m sure this is going to be hard to believe) they appear to have GREEN feet. It might be some green slime they walk through at the water’s edge, I’m not sure. They are weird – cute, but weird.

Our favorite family of SandHill Cranes (three of them, Mom, Dad and Junior) have managed to ‘memorize’ the ducks feeding times and show up for their share every morning at about seven and usually again for the evening meal about half an hour or so before the sun sets. They are getting braver every day. These past two days they were waiting for me just a yard or so from our back door. The larger one, the male I suspect, is eye level with my chin. It’s kind of weird to be standing three feet from a bird who is checking you out at just about eye level.

It’s getting crowded out there!

Sandra
Janie
 
08/07/2006
08:41 h
    Do you know that goldfish grow up to be giant carp is let loose, but they stay golden?

Just a tidbit. I wonder if they are edible. My friend John gave me your link again, but there are no carp here to tell you about. Just palm trees but I hear you have those in England so not amazing.

Jane A.
John
08/06/2006
09:46 h
    Hi Keeghan

I had to sneak another posting in just to be number 250!


I hope you're having a good day. I am off to Nad Dzabanem to swim in the lake. As a budding marine biologist can you assure me that Czech lakes do not contain anything that will bite a lump out of me? I know this one is full of large carp and they actually come up and sort of bump into you if you stand still in the water. Carp and the traditional Czech christmas dinner. I just don't want there to be any role reversal while I am in the lake.

John
John
08/04/2006
07:29 h
    Hi Keeghan

The Smithsonian will be there another day.

I went there because I wanted to see Lindbergh's plane. I couldn't believe he took off and flew the Atlantic without being able to see through the windscreen at the front but used a periscope. Apparantly they imstalled extra fuel tanks at the centre of gravity which totally obscured the forward view. It was a bit bigger than I expected - certainly larger than most single engined planes I have ever been around - but still a bit small to tackle the Atlantic. The funny thing about their aeronautical collection was that the original Wright flyer was kept in an English museum because the Smithsonian upset the Wright brothers by not recognising they were the first to fly in a heavier than air machine.
They got their own back by having their 'flyer' exhibited in England.

When you do have a bit of time how about posting a little in this guest book?

You have fans all around Europe that want to hear from you.
Laney
08/01/2006
21:36 h
    Hi Keeghan,
A joke for you:

What is brown all over and weights about two tons?

A chocolate covered elephant of course!
P.S. don't snack on them before dinner save then for after. lol

Ok, you are probably good for one more, right?

What is worse than a hippo with hiccups?

An elephant with a runny nose silly.(kind of gross but, oh well.)


You are in my prayers and thoughts.
Sincerely,
Laney



aunt lynda
 
07/28/2006
09:05 h
    Hi guys
hope today is another good day! I will be out of pocket again for a few days but will be continuing to send positive energy into the universe and thinking about y'all every day
love you
aunt lynda
aunt lynda
 
07/27/2006
09:24 h
    Good Morning to the Fantastic Four
So good to hear that things continue to get better. and that you can almost normalize life with your "stuff" being all in one place. and, your own beds how great is that!!!
the poems continue to inspire and the last writer has a great idea, Shannon you should see if the content of this website is a publishable thing!!
love and hugs and positive energy continuing to go up daily
aunt lynda
Lorene Poe
 
07/27/2006
08:21 h
    Hello again Keegan; Im so glad to hear you are doing so well. I live very near Houston, and hope you like our city. John Wilson is very interested in your progress and keeps his friends informed of how you are doing.
I see you have a lot of friends with wonderful writing talent. All of these poems showing up would make a fascinating book, and with your story attatched I am sure a publisher would be interested. It is all quite an inspirational collection, it is certainly something that would make a lovely gift to someone else who faces the difficulties you have faced so bravely. It's wonderful to know you are doing so well.
God Bless....
Lorene Poe
Laney
07/26/2006
10:21 h
    White Knights of Awesome Might
.
Crimson Red has now voted
White Knights numbers must increase
To protect the city
So Sir Keeghan can live in peace
.
The streets are now so busy
White Knights have heard the call
They are bringing up their numbers
And vowing never to withdraw
.
It is really awesome
To see their numbers climbing every day
Serving and protecting
Keeping all enemies at bay
.
The White Knights are all so healthy
They are so mighty and so strong!!!
Each dedicated to protecting
Sir Keeghan, his whole life long!!!!
(by: L. J. Smith 7/26/2006)

Keeghan,
Such terrific news!!!!!
You are always in my prayers and thoughts. Love the pics your mom added and the latest news about you. Keep of the great work, you are one awesome kid!!!!
Sincerely,
Laney



William
 
07/25/2006
23:42 h
    Thank you for shareing this journey with the world. My thoughts are with you all as your life together goes on. I am an over the road truck driver. I travel all over the land. I call Alabama home. I am in Oregon tonight, and will see Seattle for dinner tomorrow. Keep you chins up and keep smileing. Your Trucker Buddy, Bill.
aunt lynda
 
07/25/2006
08:43 h
    Hi Gang!
I am so-o happy to hear y'all are finally in DC and getting settled in. And, that Keeghan's numbers are looking good. Cant get much better than Walter Reid for care!
I have been told that it takes days or months to really see everything there is to see and learn about Washington. and, now y'all LIVE there! that is just so cool. and, walking distance from the Potomac!
Sarah loved her trip there last March with Gramma and cant wait to have a chance to go back.
The pictures showing the start of the next leg of this journey are great. And, the house looks like a nice place to "hang your hat"
love and hugs to all four of you
aunt lynda


George Anderson
 
07/24/2006
09:56 h
    Hey Keeghan,
I just wanted to drop a line to let you know I'm thinkin' 'bout ya! Hope your doing OK!

Geo
John
07/23/2006
07:40 h
    Hi Keeghan

I really think that ReMission game is great for visualising what you are doing. I like Laney's poems as well so that you can sort of actually feel what your body is doing as it fights back cell by cell.

I sort of visualise it by using bubblewrap. Do you know the stuff I mean? It's like a sort of plastic film with bubbles in that people use to protect things in the post. If you get some you can pop the bubbles between your fingers. Each bubble is a bad cell being popped by your T-killer cells. Better still get lots of bubble wrap and walk up and down on it popping it.

I've spent many a happy hour during boring times like now while the students are still away. The dean was a bit surprised though when he saw me doing it in the corridor. It is one of the great underestimated pleasures of life.

Anyway just in case you have no bubblewrap handy here is some virtual bubblewrap to pop.

Cell by cell!

http://www.virtual-bubblewrap.com/popnow.shtml

John
Nick
 
07/20/2006
18:10 h
    awesome news on the MRI results!
Hope the move and adjustments are going well.
Will keep you in our prayers.

also, there is some great poems on the site.

Nick
John
07/18/2006
08:39 h
    Hi Keeghan

All the news this week seems to be good (as long as you don't live in Lebanon that is)
I'm so glad to hear you are back to eating.

A little soup but when hunger gnaws
Angel hair noodles and big crab claws
Are grabbed and pushed into Sir Keeghans jaws

His table manners are just so polite
Mack gives up her claws without a fight
To feed sir Keeghan's appetite
to restore the strength of our good knight.

Now he's eating once again
Can his armour take the strain?
It's no fun for a growing knight
When his armour gets too tight.

Oh one hint the airforce taught me when they failed to turn me into a proper navigator

When you get lost it is ALWAYS the pilot's fault.


aunt lynda
 
07/18/2006
08:28 h
    Hi Gang!
I hope the journey is continuing as uneventfully as possible. And,that conditions havent been too overcrowded with all the two legged and fourlegged family members!
I cannot wait to hear about the new situation in DC.
I cant believe how wonderful Laney's poetry is! the Ballad of Sir Keeghan and his White Knights in Crimson Red is fantastic!
love to all of you
aunt lynda
Laney
07/17/2006
15:07 h
    Crimson Red is into clean up
Sir Keeghan's orders have filtered down
everyone is in the streets
cleaning up the town
.
White Knights are dawning aprons
dustpans and even brooms
sending trash to outer space
where they've heard there is lots of room
.
We are speeding through recovery
we've been hit but did not fall
Is the latest word Keeghan
and Crimson Reds new rally call.
(7/17/2006 by: L. J. Smith)

Thinking of you Keeghan
Sincerely,
Laney


aunt lynda
 
07/17/2006
08:52 h
    Hello to the Fantastic Four! and to Grandad on this long journey to the nation's capitol (that is the correct spelling I am pretty sure, Heather)
Sounds like the trip has been tolerable so far.
So much good news, Keeghan's brain with no tumor, Keeghans stomach now more interested in food. Could mean the White Knights are coming back in huge force and the poisons are finally leaving the system!
Max and Shannon, I want exact directions to the Chocolate Bar in case we ever decide to stop in Houston (I know Sarah and Ryne would love a visit there)
Mike, you must be getting pretty jazzed about getting to the next stop and that being in DC.
thinking of you all, all the time especially on your journey.
love
aunt lynda
Aunt Heather & Uncle Joe and Jensen & Chandler
07/16/2006
23:38 h
    Hi Keeghan!

Great news of course!! It is always nice to hear... and be the cause of a woo hoo!

We had a great time hangin' out in Houston with you and it was also cool to see you off on your next journey to Washington DC.

I'm glad you are eating and that is another woo hoo.

Enjoy your trek to our capitol? capital? (oh man, English was never my strong suit!) I'm sure we will be visiting soon! As you know,we are counting on you as our tour guide, ok?

Love ya,
Aunt Heather, Uncle Joe, Chandler & Jensen

P.S
Give our love to Grandad!:)
(I'm sure he'll correct my English when he gets home) :)

John
07/16/2006
07:20 h
    Hi Keegh
Just a quick entry to czech up on you. Yes I'm back in Prague. spahettios today maybe a complete roasted buffalo tomorrow. (that's what you Americans eat isn't it?)
patty mossburg
 
07/15/2006
13:03 h
    Wow!!! I just read the great news of a clean MRI!!!! Way to go Keeghan!! Keep up the battling Sir Keeghan and white knights.
Still in my prayers,
patty
Laney
07/15/2006
11:51 h
    Angel Wings
.
When you think you can't go on
that giving up is where you belong
that's where an angels work begins
picking up when you've caved in
.
when an angel gets its wings
it is caused by earthly things
like someone who is very sick
and needs and angel super quick
.
in a flash its in the air
soaring towards the great dispair
calling out "NOW DON'T DELAY,
ALL YOU ANGELS COME THIS WAY"
.
all of them come flying in
with soothing comfort felt within
renewing strength not found on earth
just goes to prove an angels worth
(by L. J. Smith 7/15/2006)

So Sorry, that will teach me to read before I hit send
Laney
07/15/2006
11:46 h
    Keeghan,
John told me something a health care worker had revealed to you at a time you were in distress. I wrote the following for you this morning, based on what he had told me.
Your Prayerful Friend,
Laney

Angel Wings
.
When you think you can't go on
that giving up is where you belong
that's where an angels work begins
giving up when you've caved in
.
when an angel gets its wings
it is caused by earthly things
like someone who is very sick
and needs and angel super quick
.
in a flash its in the air
soaring towards the great dispair
calling out, "NOW DON'T DELAY,
ALL YOU ANGELS COME THIS WAY"
.
all of them come flying in
with soothing comfort felt within
renewing strength not found on earth
just goes to prove an angels worth
(by L. J. Smith 7/15/2006)


Janie
 
07/14/2006
18:56 h
    John Wilson told me your good news. Congratulations! This is how things are supposed to happen but we never know ahead.

On with life!!
Laney
07/14/2006
14:16 h
    Keeghans Land

White Knights have now in Crimson Red
On Bended knees bow their head
To give honor its just due
Sir Keeghan is proving His awesome rule
.
Now White Knights have gathered strength
Most of the invading forces spent
Driven back by firm command
Crimson Red is Sir Keeghans land
.
As they search for any remaining foe
They begin repairing as they go
Crimson Red they have declared
Pristine again...it's only fair
.
Now the strong throughout this land
Have all joined with this noble stand
Working endless hours, no fret
Sir Keeghan must rule, don't forget
.
The mighty ruler of them all
Will not allow this kingdoms fall
As health and hopes are renewed
White Knights have vowed to see it through
.
Until the last thought in Sir Keeghans head
Is what is happening in Crimson Red
Because his White Knights do their jobs so well
They need no orders for their ranks to swell
.
Now they strive to clear the battles mess
And know their rulers heart and mind's at rest
Assured they will be on constant watch
In Crimson Red, a White Knights work don't stop!!!
By: L. J. Smith 7/14/2006


Keeghan,
I am so very thrilled with your good news!!!! Way to go!!! You are so very AWESOME!!!!!
Sincerely,
Laney
aunt lynda
 
07/14/2006
11:43 h
    Hip Hip HOOORRRRAAAAAYYYYY!!!!!
I am almost in tears as I sit here reading these notes. Grandad did let me know yesterday but I dont think it finally sunk in until right now.
POSITIVE ENERGY INTO THE UNIVERSE!!!!!!
Y'all have a safe journey to DC. Be strong. Take care of each other.
the world will continue to send positive energy and now extra prayers of thanksgiving too!
love all of you
aunt lynda
Cousin Dave
 
07/14/2006
10:39 h
    Hi Keeghan, it is great to hear the good news about the tumor. You are one tough kid!!! You obviously get that from your mother....I hope everyone is doing well and you made my day with the good news. Love Dave, Janet, Ashley and Blake
John
 
07/14/2006
04:15 h
    Hi Keeghan

I've just read the wonderful newd about your MRI scan.

I am not just happy for you but for me too. All day yesterday I had my fingers crossed and then I thought that might not be enough so I crossed my legs and my eyes too. This was a bit uncomfortable but I guess I can risk uncrossing them all now!
Joan Newberne
 
07/13/2006
23:38 h
    Hi Keeghan!

I'm so glad to hear of your exciting news!!! I've been praying for you and I'm very very happy. I hope that you all enjoy your new home in DC and I hope to visit you there sometime. Of course you always have a place to stay and someone in Las Vegas is thinking of you! Take care! Love, Joan


John
07/13/2006
10:06 h
    Hi sir Keeghan

wWe are all cheering you on today for the big day and wishing you all the best.
aunt lynda
 
07/13/2006
09:08 h
    Hi gang
today is the big day!
MRI then appts with the big doctors Weinburg and Wolfe. I know all will be well!
I am there in spirit and thoughts and prayers.
Be strong, hold each other up!
love all of you
aunt lynda
Jerrie
 
07/12/2006
17:32 h
    Hey Guys! Glad to hear you are one step closer to making your journey to DC.
Keeghan, stay headstrong, which I totally know you are, because I know you so well!
Max, keep being that backbone for Keeghan, as well as your mom. I hear you have become quite the little nurturer.
Mike, keep them laughing, you know, that thing you do when I'm on the phone with your wife. (!)
Shannon, know that I am here for you, all the time. I leave for FL tomorrow, but I'll have my phone and I sure hope I get to see you on your pass through NC. I love you!

Guys, be safe, I'll see you soon!

Love and prayers,

Jerrie
aunt lynda
 
07/12/2006
08:58 h
    Yay!!! HOOOORAAAAY!!!!
Finally on the road!
What awesome poetry from Laney and John about those rascal WBC's
I know its going to be good news in Houston.
Sir Keeghan is going to win the day as his wee body fights all his battles to victory one cell at a time.
Positive energy going into the universe every single day!
love you all
aunt lynda
John
07/11/2006
20:46 h
    Sir Keeghan

From your marrow and from your spleen
To the thymus and all organs in between
Your white blood cells go into the fray
to fight for Sir Keeghan Knight and day

Laney
07/11/2006
12:25 h
    My Gift For Keeghan

Crimson Red

There is a land called Crimson Red
Sir Keeghan rules it as its head
He has made a noble stand
To drive invaders from his land
.
His White Knights all tried and true
Help keep established Sir Keeghans rule
They have heard his rally call
Of all for one and one for all
.
Even when Sir Keeghan goes to bed
White Knights are fighting in Crimson Red
Keeping envaders all at bay
They never stop not night or day
.
Each has vowed to give their life
To stop the invaders causing strife
Living to serve Sir Keeghans good
They do the job they vowed they would
.
White Knights come from everywhere
To fight the battle they know is fair
The army in Crimson Red today
Grows constantly and never strays
.
From the cause they know is true
Sir Keeghan in Crimson Red will rule
With White Knights ready to take quick stand
Against all invaders in Keeghans land.
By: L. J. Smith 7/11/2006



aunt lynda
 
07/11/2006
09:29 h
    Keeghan
Awesome news from your dad last night when we talked. I am so excited to hear that your infection fighters are starting to climb again. I had no doubt your fighting spirit would induce those little guys to start growing again and to do their job.

you are indeed fighting this war one cell at a time and now the troups in your body are rallying too!

I cant wait to hear stories from Houston and then form the journey to DC.

Grandad, you are exactly right to recommend a specific focus for our prayer and otherwise positive energy.

everyone, think on those white blood cells waking up and growing and doing their job to keep Keeghan safe and strong and focus those cells on fighting the cancer.

love and hugs to the Fantastic Four as you begin the next leg of this journey
aunt lynda
grandad
07/10/2006
21:39 h
    Keeghan,
I forgot to tell you that we have finally received the video game "Remission" from Hopelab that your Grama ordered. People are raving about it. I am bringing it with me, so you can check it out for yourself. It's yours from there on.
Love
grandad
grandad
 
07/10/2006
21:31 h
    Hey Keeghan,
It was great to talk with you on the phone tonight and to learn that you will be getting out of the hospital tomorrow so we can begin our trek to our nations capital, as planned. I know you are pumped up about that as I am.

I know it has been a rough time for you and for your dad, mom and Max. But, what the heck, it's how it all comes out that counts.

I am ready to get on the road when you are!

I know you are working on getting a few more of those "white knights" into the blood battle, and who better than Sir Keeghan to command them? This would be a good place for your friends around the world to focus their energy as they pray and otherwise wish for good things to happen for you.

You can call me anytime, good news or bad, I am here for you.

Love
grandad
aunt lynda
07/10/2006
18:12 h
    Hello Gang
(out of pocket again for a spell)
I hope the weekend went well and that things are beginning to smooth out. Next hurtle (if things have smoothed out) is the trip to Houston and then on you go to Washington DC.
I know things have been bumpy this past week but you guys have strength, and each other and all these people from all over the world looking in on you and sending up positive energy into the universe.
Keeghan, I bet you are getting excited about having the Smithsonian right there in your "back yard" Talk about a source for projects!
Keep the spirit
love and hugs
auntlynda
Laney
07/09/2006
16:16 h
    Hi Max and Keeghan,

I thought of the two of you as my grandson was talking to his sister who is off visiting family in another state. They exchanged firework stories and brought to mind the first time my sports minded son broke his leg. His older sister and he were your average siblings and she left me amazed when her brother was hurt. She watched him struggle to even bath and suddenly, his low tolerance sister became his best friend. The image of her leaning against me quietly as I tried to make him comfortable that first night is still in my head. She and her friends decorated his cast and kept him entertained for the many weeks it took him to get back on both feet again.

I have a tremendous urge to hug Max close and reassure her everything will alright but I am left with no doubt many are doing that for her.

My sisters and all our friends are praying for all of you. You lift the spirits of all who read this web site, I hope you know this.

Now, I am thinking I should have put more thought into this before I sat down to write. Oh well, next time I will.

Just know you are all in the thoughts and prayers of many people. God Bless.
Janie
 
07/09/2006
15:41 h
    Keeghan, I think you are lucky to have the family and friends you do. Life is sweet, even in the tought times.


Emily
07/09/2006
14:47 h
    Hey! Keeghan, I hear you have been amazingly brave and strong and that everyone admires you. In fact, the word is out, you are the amazing Keeghan! Get well buddy.
Just me, Emily
Martha
 
07/09/2006
14:16 h
    Hello Keeghan, I am a friend of John Wilson. I want you to know I am pulling for you. Keep smiling and fight the good fight. You have friends you do not even know you have, I am one of them. Martha
Sandra
 
07/07/2006
23:39 h
    Hi Keeghan

It’s eleven o’clock and I am supposed to be asleep, but I have something called Rheumatoid Arthritis and sometime it keeps me from sleeping.

I was thinking about you and decided to come down to my office and write you a note. I was thinking about your being a Marine Biologist. We (my husband and I) used to live at the beach a while back – St. Petersburg Beach, Florida – and we had some really unusual experiences when we lived there.

One year, it was mating season for the sting rays and the shallows, just off shore, were covered with sting rays. Well, my stepdaughter was spending the summer with us and we went to the beach every day. We used to free dive a lot (that mean diving with masks and snorkels, but without supplemental oxygen) and we would collect shells.

The stingrays are not aggressive and they will not sting you unless they feel threatened (in other words, will not sting you unless you step on them).

We used to stand at the water’s edge and shuffle our feet in the sand to get out into the water. The shuffling motion would scatter the rays – they would harmlessly swim away from us. Then, we would spend hours swimming and enjoying the ocean.

The problem was, when we wanted to come back to shore. We learned to carry a long (about 18 inch) plastic Mickey Mouse back scratcher with us – it was one of the souvenior items my husband sold (he was a souvenior salesman). It was basically just a long plastic ‘stick’.

As we were swimming toward the shore and got into shallow waters, we would use the long plastic back scratchers, We would push them ahead of us, stirring up the sand on the bottom of the ocean. It would stir up and scatter any sting rays in our path and they would just harmlessly swim away, and then we could put our feet on the sand and safely walk up onto the beach.

(Just a little bit of information I thought you might find helpful in the future.)

I hope you are feeling well and making a speedy recovery.

Your friend, Sandra

Michal Zaruba
 
07/07/2006
14:42 h
    Ahoj Keeghane!

Zdravi Te Michal, Johnuv student. Mozna tomu nebudes verit, ale John me a dalsi studenty CVUT v Praze (v Ceske Republice, v Evrope) uci anglictinu.
Nedavno mi poslal odkaz na tuhle stranku. Hned jak jsem se do ni zacetl, bylo mi jasne, ze jses opravdu tvrdy chlapik. A ze i pres vsechny ty trable mas velke stesti, protoze mas opravdu skvelou rodinu, ktera Te miluje, jak je videt na vsech tech fotkach, na kteryh se porad smejes. Brzy se uzdrav.

Hi Keeghan!

I greet you! I'm Michal, the John's student. You probably won't believe it, but John teaches me and other students of The Czech Technical University in Prague (in The Czech Republic, Europe) English.
He sent me a link of this web site recently. When I read through it, I have realized immediately, that you are a realy though guy. And despite all those troubles you have, you are a happy one because you have got a really great family that loves you, as I can see from all the pictures where you are always smiling. I hope you'll be fine soon.

Michal
aunt lynda
 
07/07/2006
08:37 h
    Good Morning to the Fantastic Four

hope today is a better and great day for all of you!

John's poetry continues to be eloquent and he is absolutley right the world that is following the story of "Sir Keeghan" is pulling for him and sending all kinds of positive energy into the universe.

Keep the spirit guys! we are here for you! (I feel like one of the "who's" on the dust speck yelling "We are here, we are here, we are here" in Horton hears a Who!) And, I expect we will be here for as long as it takes and with as much positve energy as it takes to help y'all make it through this challenge.

thinking about all four of you every single day
love and hugs
aunt lynda
Tracey Flock
 
07/07/2006
00:24 h
    Just a line to tell all hi. Sounds like things have been up & down there, but overall doing good. Glad to hear. Hope your trip is smooth sailing. Keehan and Max, I'll have to send you a picture here in about a week when their eyes are open, but I am the proud??? grandmother of 11 puppies. Didn't know a dog could have a litter that large. Well mine can and did. So, I leave you wish fresh puppy breath in my nostrils, hoping all continues to find you well.



Laney
07/06/2006
21:06 h
    Dear Keeghan and family,
Thank you for sharing all that you have concerning Keeghan's progress.
As a family you are truely the picture of strength in the face of great adversity. Keegahan's smiling face speaks volumes about those surrounding him.
My thoughts and prayers are with you and your entire family Keeghan, as you move forward towards complete recovery.
John
07/06/2006
20:25 h
    Hi Sir Keeghan

a little message for any sneaky cells that tried to dodge the radiation.

Don’t mess with Keeghan – He’ll fight back.
And so will Shannon,Mike and Mack.
And everyone that gets to look
Or write a message in his guest book
Will join in – It’s our fight too.
We’ll all join hands and pull him through.
Jac
 
07/06/2006
10:29 h
    Hi again. I hope you're feeling better every day.
I found some riddles and thought they might make you smile. O.K.?

Q: What happened to the sun burnt banana?

A: It started to peel.

Q: What did one arithmetic book say to the other?

A: We’ve got problems.


Q: What do invisible people like to drink?

A: Evaporated milk.

Q: Why did God make only one Yogi Bear?

A: Because when he tried to make a second one he made a
boo-boo.

aunt lynda
 
07/06/2006
08:23 h
    Hi Gang
I hope Sir Keeghan is getting through this difficult time of "low counts" with his usual spunky spirit.
Soon, those counts will begin to climb again as his "Fierce one" body begins to do its outstanding job of rebuilding the good cells that were destroyed by the "poisons" (chemo) along with the bad cells which arent going to rebuild!- because the good cells are fighting the bad cells one cell at a time even as we speak (to paraphrase)
Hang tough - Fantastic Four and soon this too will be in the past.
thinking of y'all every day
aunt lynda
Billie
 
07/05/2006
16:03 h
    Hi gang, happy belated 4th.
hope today you are all doing well and the moggies (cats) are adjusting. Max you are really a great girl, your family is very lucky to have you. Sir Keeghan, you have already earned your knighthood in my book!!!!. Shannon, i get a chuckle picturing you with steam coming out of your ears, and little "doogie haulser's" just running with their little new white lab coats flapping in the wind:) I can soooo relate.
they still remember me by name at driscoll childrens hosp. And
finally mike, to you and all military families, we thank you for all you do to keep us safe and free. God Bless
Billie
Sandra
 
07/05/2006
14:40 h
    Hello Keeghan

My name is Sandra and we have a mutual friend, John Wilson. John told me you just finished some treatment. I am glad to hear that you are through that now. I live in the United States in a place called Florida.

We live on a small lake that has alligators in it. John told me you want to be a Marine Biologist – that is a wonderful profession. You will probably find it interesting to know we also have very large turtles and snails – huge snails, and a lot of water fowl, too. We have Great Blue Herons, Ibis, Limpets, regular white ducks, Sandhill Cranes and more – many I don’t even know the names of.

But our lake is not nearly as interesting as the oceans you will be studying. I wish you a speedy recovery so you can get on with your studies and all the fun things in life.

God Bless,
Sandra


aunt lynda
 
07/05/2006
08:56 h
    Hi Gang
Happy Independence Day! ( a day late!)
Thanks to Dr. Patty Mossburg for reminding us that Mike is in the military and that all who serve our country deserve our thanks and blessings!

I am starting a new year with a whole new group of residents and will remind them that while they are "caught up in their own stuff" about being new, they must not forget that each and every patient they see is their immediate focus.

It would be a good thing for all of us in healthcare who are following Keeghans story to remember that the patient is why we are doing what we do. And, that goes for everyone right down to the clerical person who inputs the orders to the system. Half an hour to get an order in for a transfusion is nuts!

When a mother blows a gasket we need to step back from that and remember that there is a reason (in this case a precious member of my own family) that that mother is blowing up and resume our focus back on the patient.

so, enough preaching for today
hope today is a better day and that the July 4th holiday went well with no further frustrations.

thinking of y'all daily
aunt lynda
PS love the poems from John
John
07/05/2006
04:40 h
    Hi Keeghan

I'm so glad you are out of hospital and starting to feel better and no more puking. An Australian friend of mine calls it yawning in technicolour.

I'm glad your home again now
with mom, dad and your big sis
with email from Anti Lynda
without Anti peristalsis.
patty mossburg
 
07/04/2006
18:43 h
    Way to go Keeghan on finishing your long treatment. I'm sorry to hear how long you had to wait to get your transfusion the other day...I almost forgot what the first day of residency was like until I read your post. As you can tell being an intern is usually safest when you cling together. Not only did those 3 interns leave the ward as a group, but they also got their little bottoms chewed out as a group.
Hope you feel better Keeghan - keeping you in my prayers. Have a great 4th of July and enjoy the fireworks!!!
And Mike, thanks for not only keeping your family safe as Dr. DeArmond mentioned but also our nation!
patty
Joe "The Cool Nurse"
 
07/04/2006
11:36 h
    Keeghan & the Family,

It has truly been a pleasure to be a part of your journey. All of you have been great to work and interact with. I will always remember you. As you head out on your next adventure, I wish you the best. I will see all of your again in the future.

Your Friend from 8D
Lt. Joe
grandad
07/03/2006
23:25 h
    Well, I could have said "Crown" Prince Keeghan but I decided not to.
Love
grandad
grandad
07/03/2006
10:59 h
    I meant "illegitimi"
me again


grandad
07/03/2006
10:58 h
    That Latin expression is "illegitmi non carborundum" and aunt Lynda's translation is very loose but close enough.
Love to all
grandad
aunt lynda
 
07/03/2006
09:19 h
    Hello to the fantastic four!!!!
One of the disadvantages to living out in the country is that sometimes the computer access doesnt work! (like cell phones)
I am so-o happy to hear that Keeghan is doing better now and able to not throw up for a while! I keep thinking of how jingly his braveheart chain must be by now after so many days of barfing!
but, I also keep thinking about the "little fierce one" fighting with his whole spirit and body "cell by cell even as we speak"
Shannon, (Wise Woman) people say stupid things! Keeghan is not a statistic and he has only one brain tumor to fight! AND HE IS DOING IT AND WILL CONTINUE TO DO IT!!!!! Emend may well be a wonder drug but it was Keeghan's wee body and huge spirit that was able to use that wonder drug to its advantage and stop earning jingle bells!
You guys are a huge inspiration to the world community that watch this site. With your indominatable (sp?) spirits and strength as you role with every punch that has come your way so far. (there is some latin saying which I cannot remember the latin but the loose translation is "dont let the turkeys (some other not for public broadcast word actually) get you down" so enough about a stupid woman who is so caught in her own stuff she cant see outside to others anymore.
Mackenzie, (daughter of a wise woman) I am so proud of you. I spent that whole first week of this with you and didnt tell you that. You are being truly amazing in the face of all this. You are holding up your mom and dad and Keeghan and that must be really hard sometimes. Dont, forget we (your extended family) are here for you whenever you need us.
Mike (God's Warrior) ever since Shannon posted what your names mean I have had this image of you dressed like a medieval warrior or some futuristic knight fighting this battle and protecting and holding your family safe and together.
much love and many huge hugs
aunt lynda
grandad
07/02/2006
18:20 h
    Well Keeghan,
I can see that you had a little help from your friend, John, on the fluid measures calculation. Those conversion rules can be tricky sometimes. I am going to be thinking of a question for you to solve on the physiology of puking. As soon as I finish reading the 14 page package insert for "Emend". Stay tuned. I know one of your basic medical scientist friends will give you a few hints on that one too! You are getting to be too hard to stump.
How about that offer to be Sir Keeghan, a Knight of the Realm, no less. What a great honor to be considered for that. Prince Keeghan would also work, of course, as you are an heir to the throne, after all!
Give your folks a good hug from all of us. I imagine they could benefit from that as often as you can stand it.
Love
grandad
Jac
 
07/02/2006
09:43 h
    Hello again Keeghan.
I mentioned when I wrote before that I did a little writing, too. I've started a new book and part of it is about a young boy who wants to be one of King Arthur's knights. I've been looking for a nice name for that boy, one a little different from the ones everyone else uses. Since you are such a brave young man I wonder if you would mind if I named my knight Sir Keeghan? If you would like, I'll send that part of the story to your mom so she can read it for you.
Keep up the good fight.
Always, Jac
John
07/02/2006
09:02 h
    Keeghan

Well OK I was wrong about that but this one must be 200!

Have a great fourth of July
John
07/02/2006
09:00 h
    Hi Keeghan

Your granddad is right. I've been trying to work out how much 16 fluid ounces is in millilitres. Is it about just a tespoonfull? In fact do you have teaspoons in the USA or are they all coffee spoons?

Or is it enough to fill a bathtub?

Anyway after hours of research involving many colleagues and more than 16 fluid ounces of beer here is a hint from me.

16 fluid ounces is an american pint.

A British pint (imperial pint is 20 fluid ounces)

Then I found out that your fluid ounces are not the same as our fluid ounces!!

So i was going to abandon it altogether but I did want to post today so I could be number 200 in your guest book.

Then I found out that:

U.S. regulation 21CFR101.9(b)(5)(viii) also defines a fluid ounce of exactly 30 mL, for use in nutrition labeling.[2]

So since I am worn out with calculations all you need to do is multiply 16 fluid ounces by 30 and the answer will be in millitres.

The whole of Europe is waiting for the answer so go to it!

Use your calculator I know you have a good one there called MAx.

And this should be posting number 200 in your guest book.



Bill Brake
 
07/01/2006
21:05 h
    Keeghan, This is Bill Brake from little old Fort Worth ,Texas. John Wilson, the teacher of English from England, mentioned you & asked me to write to you.I am not a teacher & my computer is not the best speller. I read some of your guest book.John said you are going to Wash. DC. My grandaughter went there about a year ago. She was in high school & went with a group from her school. She lives in Lubbock, TX. Drop me an E-mail if you have time.Send me a joke. Like "which side of a Dalmation has the most spots" ? Bye for now,my friend, Bill
Jerrie
 
07/01/2006
10:47 h
    Hello Barry's!
I'm glad to hear that all is well. I'm looking forward to seeing you guys soon. Yeah, for DC! You will be so close. Take care and I'll talk to you soon.

Jerrie
grandad
06/30/2006
22:30 h
    Hey Keeghan,
You have no idea how great it was to talk to you today after the rough day you had yesterday. I am so glad your mom handed you the phone so we could talk; and you sounded so strong. It made my day! (Your dad told me about your rough day yesterday). It is amazing to me how good you are at setting goals and then doing it!
Like you told me, you were going to do the 16 oz of fluids today (and keep it all down) to get out of the hospital, and there you are, out of the hospital. How cool is that?
Can you figure out how many millilitres there are in 16 oz for all of our Canadian and other friends from those other countries who are cheering for us? (We, in the US, are a little behind the rest of the world in going metric.) Hint: a pint is about half a litre. It must feel a little weird to be "homeless", but I wonder how homeless a person can be with so many well wishing friends from all over the world?
By the way, you may now be the poster boy for Merck. Think about it and rock on!
Love,
grandad

Meryl
 
06/30/2006
13:15 h
    John asked if I would add a message here. Best wishes and all good thoughts to you and your family.

Ef
 
06/30/2006
11:34 h
    Our British friend John sent me over to express my best wishes and let you know my prayers are with you.
John
06/30/2006
08:59 h
    And another wooo hooo for your immune system that will carry on the fight after the chemo stops.


Keeghan’s T cells will be full of fight
Cell by cell through day and night
Those CD eights and CD fours
Fighting on while Keeghan snores
The cytotoxic T lymphocyte.

Sorry Keeghan I’m sure you don’t really snore but rhyming isn’t easy!
John


aunt lynda
 
06/30/2006
08:36 h
    Hello to the Fantastic Four
I know how things can get a little rough sometimes and take a turn thats unexpected. but, you four have held it together through everything that has been thrown your way to date. (dont lose sight of that fact)And, Keeghan is "the little fierce one" fighting this "cell by cell even as we speak". I have no (not one, zero, nada) doubt that you all can get through this hospitalization and anything it throws at you.
Let me know if I can help in anyway.
thinking of you, all four of you, every day.
love
aunt lynda
Jac
 
06/30/2006
06:11 h
    Hello there. A friend told me about Keeghan and how very brave he is. I hope he's feeling fine there In Washington D C. There are so many wonderful things to see. The Smithsonian has dinosaurs and just over the state line in Maryland is the Goddard Space Museum. I used to live just the other side of D C in Virginia so I've seen some of these wonders. Enjoy this opportunity.
Thank you for sharing your story, Keeghan. It's very good. I write a little, too.
Best wishes.
Jac
Art Delage
 
06/29/2006
22:47 h
    Hello Shannon, I just wanted to let you know that your son is my new hero!! For that matter, your hole family are heros!! Brad shared this link with me. I have been and will continue to pray for your sons complete recovery. Take care and God bless.
Art
aunt lynda
 
06/29/2006
08:18 h
    Hi Gang
LAST RADIATION TODAY!!!!!
I hope everyone is doing okay and the plans for the move are going as smoothly as these things go. Keeghan you are through another milestone today. Next milestone is your MDAnderson visit in July and then on the road to DC!
Stay Strong y'all!
thinking of all four of you every day.
aunt lynda
aunt lynda
 
06/28/2006
08:19 h
    Hi Gang
Another daily post and Another WOOOHOOOO!!! Chemo is over for a while!!!today is a kick back and enjoy the hydration day at the "hotel Wilford Hall" in sunny San Antonio.
I know life is crazy right now and getting ready for a move in the midst of it makes it feel even crazier but you guys are an amazing family and you have held it all together for over two months now. Keep going one day, one moment at a time and you will get through!
thinking of you everyday and here whenever you need us
aunt lynda
aunt lynda
 
06/27/2006
08:22 h
    Hi Gang
How was that for a couple of woohoos!? those last two posts say it all.
LAST DAY OF CHEMO (for a little while anyway) Hip Hip Hooooraaaay!
thinking of y'all every day
aunt lynda


John
06/27/2006
06:50 h
    Keeghan

er

um . . .

Oh well . . . .

WOOOOOO HOOOOOOO!
nick
 
06/26/2006
22:11 h
    Keegan;
I will give a BIG WOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO
HOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO!!!!!!!!!!!!!!!!!!!!!!!!!!

how is that for a woo hoo.
keep it up. finish this round strong. We are praying for you and your family.

Exciting things are in store for you in DC. Keep the faith.

you may want to know who I am.

work with your aunt lynda

praying always
nick
aunt lynda
 
06/26/2006
09:05 h
    Hi Gang
WOO!! HOO!!! and again WOO HOO!!!
the light at the end of the tunnel!! I am so-o glad all are on the same sheet of music and that all is going so well on this final leg of the current treatment regimen.
still thinking of y'all every single day.
love and hugs
aunt lynda
John
06/25/2006
06:01 h
    Sorry - your guestbook doesn't handle cyrillic script. (that funny Russian alphabet!)

Just as well perhaps because I am sure I didn't spell it right and I know how keen Shannon is on correct spelling.
John
john
06/25/2006
05:58 h
    Hi Keeghan
&#1075;&#1086;&#1074;&#1086;&#1088;&#1080;&#1090;&#1077; &#1087;&#1086;-&#1088;&#1091;&#1089;&#1089;&#1082;&#1080;?
&#1058;&#1099; &#1084;&#1086;&#1081; &#1093;&#1086;&#1088;&#1086;&#1096;&#1080;&#1081; &#1071; &#1090;&#1077;&#1073;&#1103; &#1083;&#1102;&#1073;&#1083;&#1102;

That message (which I have probably managed to spell wrong) is from a Russian friend of mine. She is a doctor in Saransk and if she gets on the internet soon she will put an entry in person.

She says you are a brave boy and she loves you.

John for Lioudmilla
aunt lynda
 
06/24/2006
17:02 h
    hi Gang
Hope your last two days have gone well and that Keeghan is feeling okay as he enters this phase of his treatment. I love the poem that the "poster" before me sent you, it says a lot doesnt it!?
We have had some storms here and its made my internet spotty, but just because I dont get to post does not mean that I am not thinking of yoy guys and sending my share of positive energy into the universe.
let us know if you need anything
love and hugs
aunt lynda


Lorene Poe
 
06/22/2006
21:22 h
    Hi Keegan: John told me you have a really terrific bunch of people in your guestbook. You must have a real ball visiting the websites of other people, too. I have a poem I'd like to share with you. I memorized it many years ago so that I could always have it with me. This little poem is for those days when you just want to say, "I can't do this anymore." If you like to sail, you will like this.
There is no fun in sailing
When skies are clear and blue.
There is no fun in doing things
That just anyone can do.
But there is great satisfaction
Thats mighty sweet to take
When you reach a destination
THEY said you couildn't make.
******************************
Have a happy 4th of July, Lorene Poe
Mindy Zamora
 
06/22/2006
16:39 h
    Keeghan, hope this note finds you feeling good today. We here at GSAHC think about you and your family alot. We mostly just want you to get better and things get back to normal for you. Tell your mom and dad hello for me and your sister too. If Joe, Jake and I can do anything at all please do not hesitate to call us. Mike has my number. God Bless and get well soon. Mindy
George Anderson
 
06/22/2006
09:55 h
    Hey,
I want to tell you what an inspiration you all are. Sea World sounds like a lot of fun. Keeghan, you look a little tired but happy. Tell your Dad congrats for the "pinning" recognition.

My sister (Gina) is one of my best friends too... Max seems like a great person.

How is spot doing? He looks tore up in the picture...
grandad
06/21/2006
23:05 h
    Hi there, guys...
Great new pictures and what a great day at Sea World!
We will be there this weekend to be with you all during part of the inpatient time. Like Aunt Lynda says, you are old hands at this, so you will slam dunk it again! (well ok, I'm just paraphrasing what I thought she meant)
One day at a time, cell by cell!
Love
grandad
aunt lynda
 
06/21/2006
21:30 h
    hi gang
well tomorrow is the start of another leg in this journey. but it is at least a familiar one becuase y'all have already done it once six weeks ago. and y'all came through it with flying colors. ( a few more beads on the bravery chain and a few jingle bells but with flying colors nonetheless) i know you will do the same again.
we are all routing for you, all four of you!
we are here for you at a moments notice just call
love and hugs
aunt lynda and the rest of the DeArmond troop
Irena
06/21/2006
12:54 h
    Hello,
the destiny is sometimes very mean, but we should never give up. And that´s why I admire you so much. I wish you have a good luck and hope for good news


Erland - Carlos
 
06/21/2006
11:23 h
    HOLA AMIGO !!!
Saludos y TODO lo MEJOR para TI, que te recuperes muy pronto y que sepas que a pesar de todo estamos contigo. Que el Valor de la Vida se mide por quien lucha mas por ella, que vivir es luchar. FUERZA QUERIDO AMIGO!!!.

http://www.ebibleteacher.com/backgrnd/strength.jpg

Cuidate y escribenos:
Erland - Carlos
john
 
06/21/2006
06:24 h
    Hi Keeghan

I'm back in wet and windy England now for the holidays.

I know it's tough and you'll feel bad
And regret the lovely hair you had.
It will come back and maybe longer
Fighting this will make you stronger
Fight it day by day and cell by cell
You're going to win and again feel well.
Bethany Cabell
06/20/2006
23:48 h
    Hey guys- well, I guess you could say we are already feeling the loss of the Barry family at Warm Springs! I just wanted to let you know that as a family you have each touched my heart and I will continue to read up on all the news with Keeghan. I wish I could have sent the pedalo home with you but hopefully your memories will last as you laugh at the videos! Keep up the hard work and remember, I will be thinking about you and praying for all of you! Love, Bethany-your favorite PT :)
grandad
06/20/2006
22:55 h
    hi guys, I am just now recovering from our very strenuous weekend with you all visiting and the cousins loud, wild sometimes frenetic scary madness. Anybody doubt it? Just check the pics!
And we know this break was just that...a break before the week in hospital, heavy duty chemo and more radiation, then the furious planning for a cross country move. How can anybody possibly deal with all of this gihugic stuff? Well, we know that you all can for sure! So for all of the scary unknown challenges ahead, one thing is certain. You are going to get through it.
The going is getting tough and the tough are already going!
Shannon, I can't begin to imagine how you are feeling right now. Things might turn out good, they might be bad. How does anybody deal with that? It is ALWAYS good until it is ACTUALLY bad. The might be's do not count for anything!
I know. sometimes I don't make much sense. But I do try.
Just keep on keepin' on, ok?
Love
grandad.
aunt lynda
 
06/20/2006
20:19 h
    hi gang
Here's what I think, Shannon, I think you have handled and are handling what life has thrown at you with remarkable grace and aplomb. You have managed to hold it together and move forward one step at a time (which is, after all, all we really have anyway isnt it?)
the Fantastic Four are truly a strong resilient unit, with an amazing man in the lead and an amazing woman at his side. You two (my "little" brother and his wife) have held each other up and have taught your kids so much, just by how you have marched and are marching through this. the world is having the opportunity to watch just a tiny piece of this as you share Keeghans progress. and, the people you have reached and touched with your story, (your lives, your march) are with you and are offering up prayers, thoughts and huge, gihugic positive energy into the universe in Keeghans name. and in the names of the whole fantastic four, Michael, Shannon,Mackenzie and Keeghan. And ,then there is Keeghan "The Fierce One" remember he only has to beat this once. He is NOT a statistic. and, he has already told us his body is fighting this "cell by cell, even as we speak"
Carry on, woman! you can do this (I know it , because you are doing it)
Here for you at a moments notice
and thinking of you more than once daily
love and hugs
aunt lynda
aunt lynda
 
06/19/2006
21:10 h
    hi gang
hope today has been a good one for all.
hope PT and OT are continuing to go well and to be fun and silly but productive.
how cool is it to get all this mail from all over the world and in a multitude of languages.?! I could almost remember enough German from Highschool to read that one note without looking at the translation!
Hey, Keeghan Sarah just finished the Lightning Thief and is now hooked!
thinking of y'all every day
aunt lynda


Sandra Esparza
 
06/19/2006
12:09 h
    Hi Keeghan. I know of you because I trained under Dr. Barry and Dr. DeArmond in Corpus. I think you are one amazing guy. You always have a smile on your face despite the challanges you encounter! You are constantly in my prayers and I enjoy reading all of the positive updates on your progress.
Anna Wilson
 
06/19/2006
06:01 h
    Lieber Keeghan, diese, meine besten Wuensche, kommen aus England und sind mit viel Liebe geschickt. Du bist wirklich ein braver Knabe!Nochmal alles gute von mir Anna *** Gott behuete dich!
Dear Keeghan,these, my best wishes come to you from England and are with sent with lots of love. You are a real brave lad! Again all the very best from me, Anna *** God bless you!
aunt lynda
 
06/18/2006
16:46 h
    Hello to the Fantastic Four

and a BIG HAPPY FATHERS DAY to my "little brother" whose name,as Shannon noted means, the one who is like God" "the leader of Heaven's Armies".

I hope you guys have had a great time visiting in CC this weekend. Wish we could have been there too. sounds like Keeghan is doing excellently.

Keep leading the fight bro' with your "wise one" wife at your side.

We are thinking of you everyday even when I get too much to do on a saturday (who me?!)to take a minute to tell you so.

Love and hugs
aunt lynda and the rest of the DeArmond gang
Norma Breakiron
 
06/17/2006
22:55 h
    Hi Shannon and Keegan,
I remember having an afternoon with MacKenzie and Keegan at Pope AFB. We took a walk in the woods and made a grapevine wreath and decorated it with found things from the woods. It was a shock to learn of Keegan's tumor. We don't expect our children to have such serious illnesses. Your log is a great chronicle- for you and us.
I'll keep you in my prayers. I have no personal understanding of your health issues, but I know about a PCS. UGH!
aunt lynda
 
06/16/2006
20:52 h
    Hi Guys
I love reading and rereading the emails from around the world! I really like Dr. Weinburg's note. I know your Dad wont appreciate it, Keeghan but remember you are under doctor's orders! (Sorry, Mike)
Y'all have a great time in CC. The DeArmond branch of the family wont be able to make it(we were going to try) enjoy Father's Day with the Grandfather!
love and hugs
aunt lynda and the rest of the DeArmond clan
Jeff Weinberg
 
06/16/2006
16:48 h
    Keeghan,
Glad to see you are doing so well. Loved the dragon face look! And the video: where's your helmet? Especially to protect your head from your dad! Doctor's orders: kicking allowed every time he touches your head! See you in a few weeks. Keep up the good work!

Dr. Jeff


aunt lynda
 
06/15/2006
17:43 h
    Hi Gang
Today is a special day for me. For several reasons. One of those reasons I would like to share with y'all but especially with Keeghan. 6 years ago today I had surgery to remove cancer from my breast. I took chemicals (not quite as yukky as the chemo you are experienceing) for 5 years. I am today a 6 year cancer survivor.
The reason I want you to know this Keeghan (little fierce one) is because you are fighting the beast too, "cell by cell, even as we speak". And, I think you should know of others successes in the battle because that might give you even more strength for the fight you are fighting!
thinking of all of you every day
and sending more positive energy into the universe
and we are here for you whenever needed (and even when not needed we are still here for you)
love and hugs
aunt lynda
Cousin Dave
 
06/15/2006
13:21 h
    Hi ya, love the web site,video and it is great to see the pictures of everyone. I hope everyone is doing well and our thoughts are with all of you. Dave, Janet,Ashley, Blake

P.S. Mike it is good to see that you're still getting your ass kicked!!!!
grandad
06/14/2006
21:50 h
    Hey guys that video is the greatest. I think Keeghan won. (sorry Mike). I hope everyone who is posting here can play it and see for themselves what a fighter we have here! Just click on "Videos" to join the fun!
Love
grandad
Jennifer Little
 
06/14/2006
17:32 h
    Just wanted to "drop in" Keeghan and say hello and that I am thinking of you! All the best always, you are in my prayers. Keep that great smile on your face!!

Jennifer (friend of your Aunt Baby's)
Dalibor
06/14/2006
11:25 h
    Despite the dreadful disease you are lucky boy, Keeghan - such a wonderful family! Greetings from middle Europe
aunt lynda
 
06/14/2006
08:43 h
    Good Morning Y'all
(hope this finds everyone up and at 'em) Today is another day! How is OT going? What kind of cool things is Keeghan doing now?
thinking of you
here for you (even when not connected to the internet!)
love and hugs
aunt lynda


aunt lynda
 
06/13/2006
18:43 h
    Hi to the fantastic four!
What a great couple of days posted and I love the new pictures! Sorry, I have been out of pocket for a few days but I am back with internet access so more daily aunt lynda coming your way.
thinking of you every day
and sending more positive energy into the universe for the "little fierce one" and for his tough older sister and his parents who are stalwarts!
love and hugs
aunt lynda
Sean
06/13/2006
05:35 h
    Hi Keeghan

Well one language we have to have on here is Irish

Go n-eiri an t -adh leat

Good luck to a gaelic warrior
grandad
06/12/2006
22:50 h
    Hey, Keeghan,
Don't you love all the notes coming from all over the world to wish you well?
Even one in language I can't understand and others with built in accents (not the Canadians). Isn't it interesting that even if we can't fully understand them, we still know that those messages bring good wishes for you? Good people in far away lands are struggling with our language to reach out to you. Just think about it! Amazing! I love that!
Keep on keepin' on.
grandad
ed fall
 
06/12/2006
19:57 h
    Hi Keegan:

Tons of good wishes and lots of Love coming from Canada. I talked to your Grandad Barry last night and he told me what a brave little soldier you are. We all feel so bad that you have to go through this. Keep smiling as best you can. We know you can do it - you're a "Barry" after all. Say hi to your mom, dad and sister for us. We are praying for you all!

Love Aunt Jane and Uncle Eddie
Frantisek Rolinek
 
06/12/2006
02:37 h
    Hello Keeghan,
I have heard about your disease and I would like to tell you, that I am so pity about it. No one on this planet have deserved such a deadly disease, especially kid. It is so inequitableness... I would like to grapple you a lot of success in your fight with this disease and do not give up!!!
the falls
 
06/11/2006
21:00 h
    we are praying for you , buddy keep fighting it ,we send you our love ,,hi to everyone from us.


the falls
 
06/11/2006
20:58 h
    we are praying for you , buddy eep fighting it ,we send you our love ,,hi to everyone from us.
Jaromír
 
06/11/2006
16:14 h
    Hi Keeghan,
I am Czech from Europe and I speak a little English but I hope you will restore to health I believe you, you will fight off an illness.
When I was 16 years old mym Mom got sick-cancer of hyphophysis it spent about 2 years and it was very hard time for our all family, but as I Christian I believe in God and I prayed for my Mom.It doesn´t matter if you don´t but there is someTHING in Universe or everyTHING around us what I have to say THANK YOU, that my Mom survive, because there was very little chance to survive.This THING I call God and I will pray for you and your family you will fight off an illness.
Faith with you.
Good bye Keeghan
Jaromír from Czech
Tamy
 
06/11/2006
05:11 h
    Pokial mozu slova potesit a pomoct, rad ich zopar pridam: "priatelstvo", "laska", "nadej"...
grandad
06/08/2006
10:29 h
    Keeghan,
Your mom sent me a film clip of you working that contraption in the second to last picture. I am amazed you can do that. I would be landing on my butt for sure.
Keep on, my man!
Love
grandad
Uncle Jack & Aunt Ada
 
06/08/2006
00:44 h
    Hang in there guys.
Love & prayers
Doc Nick
 
06/07/2006
12:27 h
    Hey Keeghan,
I just wanted to say Hello. I work with your Aunt Lynda in Wacky Waco. I want you know that a whole lot of people are praying for you. I have been following your progress through your Aunt. You come to my mind alot and everytime I think of you I say a prayer. Your website is awesome!! I love the new pics of all the cool stuff at PT. That ski/bike thing on wheels is cool. Can you get it going pretty fast?

Well got to go. Keep your great attitude and fight hard. You can beat this.
Liked the Mowhawk also!! always wanted one, but my mom said no.

see ya,
nick


aunt lynda
 
06/07/2006
11:47 h
    Wow! you have know idea how hard it has been to be out of computer touch with you guys!!
Sorry to read about the not so good days, but I agree with gramma and grandad (and everyone else who has posted) that the fighting spirit you all have and the support around the world and the positive energy that goes into the universe daily in support of your fight is so huge that you WILL beat this "cell by cell even as we speak"!
We are all here for you !
Love and hugs
aunt lynda
PS will be out of pocket again for a few days but will be back to daily posts next week (I think about y'all every day even if I dont post)
grandad
06/06/2006
23:18 h
    Hey Keeghan,
Love the new pics..
I can see lots of fighting spirit there.
I love that!
Keep on...
love
grandad
Clan Cespiva
 
06/06/2006
17:55 h
    Hey guys! We haven't forgotton about you. All of the Cespivas are hoping that you are all coping and doing the best that you can. We'll be home in a few weeks! Keep being fierce.
pombo
 
06/06/2006
10:22 h
    Keeghan,

DJ p here...i have been mixin' the one's and two's with my phoenix homey Illustrious B-O-E for 8 years now...you know her as Aunt Baby, but out here she's the baddest rapper in the land. she walks around our office droppin' mad verse while i weave, scatch and tune the lyrics together. you probably didn't know about her rappin' expertise, but you should ask her about her latest work "my radio".

Mad props to your strength and a fierce shout-out to our homeboy MC Keeghan from the 602's west-coast style.

pombo
grandad
06/05/2006
22:37 h
    Well, Keeghan, it was sure good to talk with you tonight. You sound very strong like you are getting back up. That is really good to see. Your dad told me you had some pool time this-afternoon, jumping and diving in the water. I wish
I had been there too. But I had to work today. We are all cheering you on and love to see you enjoying these good days when you get a little break from the battle.
Love
grandad
grandad
 
06/04/2006
12:27 h
    Hey guys, I have heard somewhere of corporate jets that make themselves available to transport cancer kids in difficult travel situations. Maybe we should check this out to see what other options are out there for your move to DC. Remember too that there are doctors and nurses (wonder who?)that can and will travel with you when the time comes. One day at a time....cell by cell.
Love
grandad


Kaye Jones
 
06/03/2006
14:40 h
    I just learned about Keeghan from my friend Lois. She asked me to keep all of you in my prayers, and of course I will. Your kids are beautiful.
Billie Bowen
 
06/03/2006
14:33 h
    Hi Keegan, sorry to hear that
you had a bad day. All of us
here in Corpus are sending some extra special positive energy your way. and since I am a Tai kwon do freak, I am sending a couple little black belts to fight off the negative and bad cells.
Keep smiling!
Billie


John
 
06/03/2006
12:21 h
    A fighting spirit from you and bravery from Mike. What a set of genes that little fellow has.
grandad
06/03/2006
00:31 h
    I heard you had a rough day again today. That sucks! We all know you are going to beat these evil cells in your head. Keep focused on THAT battle. The terrible feelings you are having are just that..terrible feelings. They come and go, Right? Part of the treatment, not bad news from the brain tumor. And they are no match for you. You may go down a time or two and you get back up. Right? Just keep on doin' that! Take each knock down one at a time. Each time you get back up will make you stronger and better. These are all small battles that you can handle. Take them on one at a time and you will win the war. Hug your mom and your dad for me. You and They and Max are our heros!
Love
grandad
patty mossburg
 
06/02/2006
14:33 h
    Hi everyone. I used to be a resident at Corpus Christi and had the pleasure of working with both Dr. Barry and Dr. DeArmond. I still keep in touch with staff and nurses in Corpus and received the email about Keeghan. I love keeping up with his daily adventures and brings up many emotions inside of me. I know that God never gives us challenges that he knows we can't handle so be strong and keep the faith (just think of Job). Always in my prayers,
patty
Grama
 
06/02/2006
09:09 h
    On this unplanned journey, there are going to be some bad days mixed in with the good ones and the whole process would make amyone weary. Remember you have a whole team out here cheering you on and keeping you all in our hearts and minds. Love Grama.


Kristin M Feola
 
06/01/2006
18:18 h
    God-Bless all of you. I worked with Mike at Pope. I will keep you all in my prayers.

Big Smiles,
:) Feola
Lynn Downs
06/01/2006
15:27 h
    I call these pages-Pages of Love and Courage.
Heather
06/01/2006
09:40 h
    Hi all!

I really like all the new pictures.
Jensen said, Grama you got in the pool!!
I wouldn't worry about the hair thing, Keeghan. Remember the doctor said it would grow back, maybe even different. In the meantime, you will look just like your dad and your grandad :)!

Keep on truckin'! Your doing great!

Heather, Joe, Chandler, & Jensen
aunt lynda
 
06/01/2006
08:24 h
    Hi gang
Great post Shannon. I love that Keeghan's name means little fierce one! He certainly is. and, fighting this thing "one cell at a time, even as we speak"!
I may be out of pocket for a few days (traveling to meetings) but if I can find access you will still hear from me. I am thinking of you all anyway even if I miss a "daily dose of aunt lynda"
thoughts and prayers and positive energy to the universe
love and hugs
aunt lynda
Melissa McKenzie
 
05/31/2006
12:44 h
    Hello all, I just wanted to say I am praying for you Keeghan and also to wish you the very best. I will keep checking your webpage for more updates.

God Bless,
Melissa McKenzie
43 A